I am Jaelyn Glaz, a seven-year-old, who has lived a life full of happiness and trials. I came to this world prematurely at 33 weeks. Minutes after taking my first breath, I was rushed to my first surgery where surgeons attempted to save as much of my intestines as possible. My intestines were not where they were supposed to be; they were on the outside of my belly (gastroscisis). I was then faced with the challenges of being a short gut kid. Unfortunately, my intestines were “malfunctioning” and not “cooperating” so the doctors started giving me TPN (IV Nutrition) in order for me to survive. The very nutrition that helped me survive, also caused me to go into liver and intestinal failure.
After countless surgeries and procedures, nothing worked. At 8 months old I was listed for a triple organ transplant. During this time, I waited for many months for a chance to live, to be home, and to get to know my brothers. My Liver and bowels continued to worsen every day, as the Doctors tried their best to stabilize it, I required daily Blood Transfusions and a Platelet Transfusions. This was the only way I could live long enough, holding on until I could get a fighting chance at life.
September 17, 2010 I was given that chance. I now have 3 new “parts”, a liver, small bowel and pancreas. This has sent me on an adventure allowing me much time at home and some hospital stays.
My day to day life has me enjoying my brothers Jonah and Jordan, laughing with my 7 cousins, playing with my Bestie (BFFL), feeling love from my parents, grandparents, great grandparents, uncles, aunts and friends. I enjoyed going to school and learning what it was to be a “regular” kid and to be taught by some amazing teachers.
I know that everywhere I go, if I bring my SMILE, it will be a GREAT day. Sadly, at times my health takes me away from my fairytale life.
In November of 2015 I started feeling really yucky. The Doctors performed countless procedures. That’s when they discovered I had Stage 4 T-cell Lymphoma, a cancer in my blood. It had spread through my small intestine, colon, liver, lungs, and lymph nodes. I had 6 rounds of intense Chemo. But after each round my body would work so hard kick cancer out that I would stay in the hospital for long periods of time feeling so yucky and worn down. On May 2, 2016 I was told I was Cancer free. I kicked cancers butt! I had been enjoying life once again, growing my hair back, playing Pokémon with my brothers, sleepovers with my cousins, swimming with my friends, and going on vacations.
I went back for a checkup October 20th and sadly the Cancer is back. I again am fighting for my life. This has NOT been easy. I have gone through 4 rounds of a combination of different chemotherapies hoping to kick cancer out. Unfortunately, on March 7, 2017 I was told that the chemo did not work and they don’t have any more option to treat me. My parents are searching across the nation to find a treatment that will work. But it is a race against the clock; the Cancer I have is very aggressive.
As a family we are living every day to the fullest. I have a lot of life in me and I will wear my smile and spread sunshine everywhere I go.
I WILL live another day, I WILL fight another day, I Will hug my Mommy and Daddy another day, I WILL boss my brothers around another day, I WILL be a kid one more day!