Our angel passed 8/2/00-6/14/15. We love you Ahmie. This page has been active for 20 months and will continue until Christmas 2015. Let's continue to love and support Ahmie's family as they grieve the loss of Ahmie. Losing a child and sibling is the toughest grief imaginable. Gienna will begin the journey of looking for employment after the new year. Until then, they still need us. This type of grief takes years at the very best to even begin to feel a little normalcy. We know all love and support is needed and appreciated.
Click on link to read about Ahmie's journey, medical updates and how to help support her family and Childhood Cancer Research.
MORE ABOUT AHMIE - Ahmie is a freshman and enjoys math, music, art, video games and Girl Scouts. She adores her younger sister and time with family and friends.
DX 12/1/13: Desmoplasic Round Small Cell Tumors.
Dec 4: Surgery to confim DX, drained 11 liters of fluid from abdomen, and added port.
Dec-June: 11 rounds of in patient chemo completed
3/19/14: Surgery at Seattle Children's Hospital - Ahmie endured 11 hours of surgery removing her spleen, uterus, eggs, half of her diaphragm, and peritoneum lining of her abdomen.
3/21/14: Ahmie is going into a CT Scan for a possible blood clot in her leg. She is in ICU fighting a fever, low blood pressure, and high pulse. She has a breathing tube due to half of her diaphragm being removed. Ahmie will need therapy to learn how to breathe again without assistance.
3/24: breathing tube was removed and Ahmie did awesome!
3/25: Ahmie on TPN for nutrition
3/26: Out if ICU down to recovery floor
3/29: Chest tube out and went for walk
4/3: Other chest tube taken out and more walking
4/4: Moved to floor 8 cancer floor
4/5: Rough day very sick
4/11: First shower!!
4/13: First 24 hours no throwing up and feeding tube in!!
4/14: GOING HOME! GOOD JOB AHMIE - WHAT A FIGHTER!
4/22: 2 Days of Chemo
5/1: Admitted for fever and cough for 2 days
5/8: 5 Days of Chemo
ALL the above treatment also included multipal blood transfusions, constant blood draws, labs, weekly clinic visits, ct scans and ex-rays.
5/13: Radiation begins 5 days a week 20 rounds on abdomen and
20 on chest area
6/2: Radiation to abdomen complete
6/10: 8 hr out patient chemo given
In the month of June Ahmie had four platelet transfusions due to low platelets which is due to the radiation.
AS OF 7/11/14 TREATMENT HAS STOPPED - Ahmie's body is not recovering well enough from radiation to continue the five rounds of chemo she had left.
7/18/14 - Ahmie had a CT scan which showed NO NEW TUMORS! She will begin radiation in the chest area in the next few weeks.
8/12 - Ct scan to chest area at pre-radiation shows 2 new small growing masses. Biopsy ordered prior to radiation.
8/20- Biopsy results show 2 new DSRCT tumors in Ahmie's neck which is devistating news. Several treatment options were given. Next meeting with doctor's to decide on treatment is 9/12. Please pray.
9/18- Chemo started again. 4 pills taken at home each morning. Side effects can be harsh so weekly clinic appointments are needed.
9/18- PET scan done awaiting results.
9/18 - Pet scan shows 2 tumors in neck and 5 tumors behind the heart. Chemo treatment will continue and family is talking with surgeon.
10/7- Ahmie admitted to Children's for 3 days due to severe side and back pain along with vomiting. Test ran with no clear results so sent home on morphine and to monitor at home.
10/16 - Seattle Children's Surgeon will NOT operate to remove tumors in chest, could possibley in neck area. Having scans sent to New York for 2nd opinion.
11/21 - Ahmie is officially part of palliative care offered by Seattle Children's Hospital. They will begin coming to our house weekly for pain management and other services.
12/28- Ahmie has been admitted to Hospice Care (Stepping Stones). Her tumors are beginning to give her constant pain and the need for increased morphine. Ahmie is a very strong fighter! and we are still looking forward to our trip to Disneyland early Jan 15.
12/30 - Meeting with care team at SCH. Treatment options are still available for Ahmie depending on the level of side effects she feels she can tolerate. Scans are scheduled for 1/20/15 and then decisions will be made depending on results. Ahmie's pain has been better controlled on a 12 hr slow release morphine and the iching has stopped. Beside fighting fatigue she has been up feeling well and playing video games. Happy New Year!
2/7/15 - After a month pain free and returning back to school, Ahmie suddently is dealing with pain and is back on bed rest and using exegen due to shortness of breath. We are hoping the is only temporary. PLEASE REFER TO UPDATE SECTION OF PAGE FOR FURTHER UPDATES. Thank you.
5/11/15 - LOVE NOTE: Ahmie has mass fluid in her lungs and mass tumors in her entire body. There is not going to be a cure and at this point we are keeping her as comfortable as possible. So many of us love her and this is very hard to hear. I appreciate all the advice that is coming out of love for Ahmie, but at this point it will not help due to the aggressiveness of her cancer. It is EVIL. I do read every msg and post sent. Feel free to continue sending, I just want to make clear it is not going to change the outcome of her journey. We have and are doing all we can for her. Ahmie is part of every decision that is made for her care and nothing is done without her input and approval. I send this with love and I know how much we all love Ahmie.
How can YOU help? YOU can help by spreading the word about Ahmie and her journey with cancer.
Please read, share, invite, talk, pray, love and donate. You can do this wherever you are in the world! Please make a donation today and/or share with family, friends, co-workers, churches and anyone who may listen. We are also always open to ideas for fundraising. Follow our page @ https://www.facebook.com/miraclesforahmie?fref=ts
Ahmie's Bucket/Wish List - Thank you for loving Ahmie.
Help find a cure for Pediatric Cancer - Fundraising for Strong Against Cancer
Trip to Hawaii - DONE!
Meet Jennifer from Little Couple - Done!
Adopt a child - Done helped support children in Africa
Go to Music Award Show - VMA
Go to 5SOS Concert - GOING 7/15! Meet 5SOS would be ideal.
Be a Nurse - DONE! U/W Nurse for a day!
Go to a Prom - DONE!
Motorcycle bike ride - DONE!
Disneyland - DONE! 1/11-15!!
Have own room - Done
Meet Buddy from Cake Boss - Done!
Fly First Class - Done
Fishing Adventure - Done thank you Y.O.U Youth Outdoors Unlimited
Own Electric Guitar - Done
Learn the art of glass blowing - DONE
Great Wolf Lodge - DONE
Go to Leavenworth and go rafting - DONE
Digital camera - DONE donated by Kenmore Camera
Suncadia Spa & Resort - DONE