A Van For Baby Kakes!
PLEASE ALSO SEE THE "UPDATES" TAB (above) FOR THE MOST UP TO DATE INFO ABOUT BABY KAKES & FAMILY!
Our Family in a nutshell:
Mom is 38 and Dad is 34. We have been together since 1999 and were married in 2001. We live in Southern California where we both grew up and we even went to the same high school! WE HAVE 4 AWESOME BOYS who are our life! In 2003 we had our 1st son, who is almost 10, in 2009 our 3 year old was born, and then we were blessed with a surprise of twin boys in December of 2011! One of the twins, whom who we lovingly call “Baby Kakes”, was born with life altering complications that we now know as HYPOTONIC CEREBRAL PALSY (A RARE FORM OF CP THAT IS LESS THAN 10% OF ALL CP CASES) plus many other physical, internal, digestive, and respiratory problems that affect his ability to thrive. Many of Baby Kakes’ struggles are also from what your brain normally controls automatically and these are often his larger struggles in daily life. Much of this is due to him being born with reduced white matter in the brain & this is a permenant condition. He can be ok & then 5 minutes later be in terrible distress. Mom went through a huge medical hospitalization after the twins were born that almost cost us her life but she has fought through and is now fighting for the kids every day. We are doing our best with our new life and we try to keep our spirits up! Dad works very hard and supports our entire family. We live in a small manufactured home on his single income due to the needs of our family with multiple disabilities and are in debt due to high medical needs for our entire family after numerous hospital trips & stays plus an ongoing need for PT, OT & speech therapy. Mom is constantly on the road with the kid’s to doctors, hospitals, & therapies or fighting through medical red tape to take care of their needs.
WE NEED YOUR HELP!
We are in desperate need of a large wheelchair lift van so that we can better function for his needs and, eventually, go places together AS A FAMILY again! We really miss those little things more than you can imagine! We currently have an older SUV but it doesn’t meet our size needs now that we always have to take a large wheelchair (that requires us removing a row of seats to make room for it), PLUS 4 children (3 kids in large car seats), plus 2 parents & a nurse who must also ride in the back right next to Baby Kakes to be able to care for him while traveling, a stroller, a large amount of medical equipment that must travel with him at all times, as well as any other essentials needed while away from home with our kids. We really need a van that can easily seat the 4 kids plus the nurse in the back with an empty space or seat open next to our 3 yr old, who has Autism, since he's a very active little guy. So we need at least 8 full sized seats, a large cargo area for wheelchair & stroller plus a wheelchair lift. The wheelchair is incredibly heavy and difficult to lift with Mom’s back injury.
These vans that fit our needs are typically over $35,000 & the lifts can be terribly expensive too so our hope is to raise enough money to buy one used or at auction! We've done our research and have found many available in our price range and that's why we're asking for your help. We are thinking outside the box to solve our problems fast! If we are lucky enough to get a van paid off & outfitted for our needs, we plan on donating our SUV to a local charity that gets handicapped families into vehicles so that another (smaller) family can gain their independence & freedom, too! We'd just like to pay-it-forward if possible.
PLEASE PRAY FOR US - Our NEW goal is to have a van for Baby Kakes by the end of December! The aution vehicles that suit our needs have dried up right now as we approach year end but we hope & pray as we get closer to the NEW year an oppertunity will be within our reach shortly! We will keep you updated on our progress & tell you even more about the family through updates shortly!
It Takes A STRONG Village +
Baby Kakes’ Mom (Mama T) & family friends started an online facebook page for supporting other special needs families going through similar journeys. Please check it out or pass it along to those you know!
May God bless you and your family. Thank you for reading and sharing our journey,
Mom & Dad