Be Brave, Lila - Help Lila Usry Beat Leukemia

For: Heather Usry
West Point, MS
Organizer: Ivey Ivy
Be Brave, Lila - Help Lila Usry Beat Leukemia (Heather Usry)
$35,945
of $50,000 goal.
Raised by 268 donors
71% Complete

The Story

How quickly our lives can change. Last week, Lila was at school playing with her friends and getting ready for Thanksgiving holidays. Today she is in Minnesota at the Mayo Clinic receiving her first round of chemo. Lila was diagnosed with Acute Myeloid Leukemia on November 13, 2017. Our entire community is rallying. This is OUR child.

If you know Lila, you know a spirited, fiercely loving, happy child. She is the child who notices when a friend feels left out. She’s the student who forgoes the prize box so someone else can enjoy. She’s the daughter who writes her mom love letters. It is our mission and prayer that she will be fully healed and that she and her family will find the strength to endure this journey. This is how we help.

In times of crisis, we all feel a little helpless, like there’s nothing we can do. But this is not one of those times. The financial burden will be immense for this treatment. More than any one of us alone would be able to carry. The first 6 month of Lila's treatment plan will have to take place 13 hours away from home at the Mayo Clinic. Lila’s family should not have to worry about how they will afford these medical expenses. Their energy and focus needs to be on staying near their baby girl.

Lila’s mother, Heather, is a generous, courageous person. She is a champion for the vulnerable and a cheerleader for the underdog. She is also fierce and strong and worthy of every blessing coming her way. West Point is her home, and that will prove to be a bigger blessing than she ever realized. We are an amazing community of people who look out for each other's wellbeing. We mow each other's yards, we help raise each other's kids, and we go to our knees in prayer when one of our own is suffering.

Let’s do this. Be brave, Lila. We’ve got you covered.

“Dear children, let us not love with words or speech but with actions and in truth” (1 John 3:18).

“Just as life will upend you, so will LOVE.” – Christine Caine

Fundraiser Updates

Posted on January 3, 2018

UpdateImage

Posted on January 3, 2018

“But just as crucial is finding something powerful in regular life, an ordinary year lived, an exchange of dialogue, a memorable song, or even just a mother’s glance.”


I read that and then the word “microscopic” popped into my head. I thought about how right now, every day, we’re talking about and focusing on microscopic things, white blood cells, lymphocytes, monocytes, neutrophils, hemoglobin. But what each of those things mean, is the exact opposite of microscopic. What they mean and represent is huge. And then that quote above made me think about how our days are filled with microscopic moments that create indistinguishable stretches of time but how monumental these moments feel in the context of this new life path we’re on. But then I thought, weren’t they always? Aren’t they still? I thought how much I want ordinary back. But all that ordinary was always extraordinary anyway. Right?


Here’s an update on Lila and where we are. She’s done with chemo medicine for the second of five rounds. Her white blood cells are at zero, her hemoglobin is just above 7, her platelets are at 19. What that means is that she’s confined to her room again while her bone marrow regrows her cells. That could be around 3-4 weeks. We watch for fevers while she’s neutropenic, and treat with big antibiotics if she gets any. So far, she’s reacted to this second round of chemo dramatically different from the first round. She’s been so much better. Her nausea has been so much more manageable. Her nutrition is improving and contributing positively.  She’s felt so much more like herself and been so much more like herself. 


So, from when she got out of the hospital right before Miller’s Birthday, to Christmas, to New Year’s Eve, to now, we’ve had some of the most memorable, microscopic, monumental, meaningful moments ever.  Our entire family’s gratitude for the efforts and support of our friends and family cannot be measured. We love you! 


Posted on December 9, 2017

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Posted on December 9, 2017

From Heather:

A month ago, today, we found out Lila has leukemia. I can remember every hour of that day up until my dad walked in my front door and said those exact words. So much of this experience still feels impossible. There’ve been so many times I’ve thought of “ifs” that feel unbearable. There’s been so many times I’ve thanked God and asked unanswerable questions. Last night, in a moment of frustration Lila said, “I can’t explain it. And I don’t know what to explain.” Such an insightful encapsulation of what this feels like. 


We still have the same expectation of what her treatment schedule looks like. We are on day 25 of her first cycle of treatment. Just this morning, her white blood cells showed positive signs of recovery. Once they recover to the number her Hematology Oncology team is looking for, they’ll test her bone marrow again. Then we’ll start cycle 2. We know a great deal more than we did a month ago, we are continuing to learn more each day. 


I can’t remember every hour of every day that’s passed in this month. I wish I could forget some things. But I thank God for some of these moments that are even more precious because of the situation we’re in. Lila is honestly (literally) one in a million. She is living up to her call to be brave, every hour of every day. 


#bebravelila #fightlikelila


Posted on December 1, 2017

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Posted on December 1, 2017

$25K by the 25th 🎄


25 days until Christmas


For Christmas this year, I want Heather Usry to check her fundraiser page and see $25,000. 


Her estimated out of pocket expenses TO DATE are close to $200,000. If everyone who liked, loved, and shared the page update yesterday would give just a little, we might just make it.

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