Posted on January 3, 2018
“But just as crucial is finding something powerful in regular life, an ordinary year lived, an exchange of dialogue, a memorable song, or even just a mother’s glance.”
I read that and then the word “microscopic” popped into my head. I thought about how right now, every day, we’re talking about and focusing on microscopic things, white blood cells, lymphocytes, monocytes, neutrophils, hemoglobin. But what each of those things mean, is the exact opposite of microscopic. What they mean and represent is huge. And then that quote above made me think about how our days are filled with microscopic moments that create indistinguishable stretches of time but how monumental these moments feel in the context of this new life path we’re on. But then I thought, weren’t they always? Aren’t they still? I thought how much I want ordinary back. But all that ordinary was always extraordinary anyway. Right?
Here’s an update on Lila and where we are. She’s done with chemo medicine for the second of five rounds. Her white blood cells are at zero, her hemoglobin is just above 7, her platelets are at 19. What that means is that she’s confined to her room again while her bone marrow regrows her cells. That could be around 3-4 weeks. We watch for fevers while she’s neutropenic, and treat with big antibiotics if she gets any. So far, she’s reacted to this second round of chemo dramatically different from the first round. She’s been so much better. Her nausea has been so much more manageable. Her nutrition is improving and contributing positively. She’s felt so much more like herself and been so much more like herself.
So, from when she got out of the hospital right before Miller’s Birthday, to Christmas, to New Year’s Eve, to now, we’ve had some of the most memorable, microscopic, monumental, meaningful moments ever. Our entire family’s gratitude for the efforts and support of our friends and family cannot be measured. We love you!