Posted on December 5, 2016
This has been a memorable year for Hana! This summer was her Make-A-Wish trip all the way to Australia for all kinds of animal adventures. She was drawn to Australia for its beautiful birds, her favorite of which was the Victoria's Riflebird, a bird of paradise. We had tours through the rainforest, saw nocturnal animals, giant bats called flying foxes, and fed wild wallabies by hand. The whole family had a wonderful time, truly her wish come true.
Recently, another big wish of Hana's was fulfilled-we finally got her a dog! He is a poodle mix named Acorn. She loves having him sleep in her room with her and she is so comforted by his presence. Hana has gotten a lot more exercise since he has come into our home. We all love him so much!
Hana's health has had some ups and downs this year, which is how it usually goes with her, but mostly she is doing really well right now. Earlier in the year she started to have a lot of joint pain and developed a knee pain syndrome. We do not know what made this suddenly get so much worse, but her hypermobile joints probably contributed to it. She began physical therapy again to help with her legs and knees. She also has had some issues with stomach pain and weight loss earlier in the year, which has led to more doctor's appointments and now feeding therapy at the autism center. She has just recently gotten back up to a BMI in the 25th percentile, which is her goal! So she is doing better and her stomach pains and nausea are not bothering her much these days. Sleep continues to be a big challenge for her, and she has had some times where her autistic behaviors are becoming a problem with emotional regulation and outbursts. But we are trying some more things to help her sleep, including changing her supplements, having her new dog Acorn in her room, and starting sleep therapy as well. It hasn't been long, but so far so good!
About Hana's brain tumor, she has remained stable for the most part this year, praise God! But her MRI's have shown a very small amount of growth at times. Even though this has never been enough of a concern to require more treatment, her doctor told us at her last oncology appointment that the cumulative effect over time is that her tumors are growing, and if this happens again he will recommend that she start either chemo or radiation. Her next MRI is in January-please pray for completely stable tumors with no growth at all, so she can avoid the damaging side effects of cancer treatment!
We have also just recently found Hana a wonderful naturopath that we are hoping can help her to be as healthy as she can so that her body can be well and her cancer will have as little chance as possible to grow. I am again asking for your support to help us to cover the costs of this treatment so that we can help Hana to be her healthiest best! Thank you from the bottom of my heart to everyone who has helped us so far, including the donations made recently to help get Hana her new dog Acorn! As always, we welcome your prayers of healing and health for our special girl in all ways-in her health, her mind, her spirit, and her body!