3 year old Frankie needs our help so his mom and dad can dedicate themselves fully through his journey to beat cancer.
On May 7th our family had a blowout party for Madeline who turned 16. Everything seemed perfect. That kind of perfect where you wonder if it might end (really I have often thought that- I love my life, I wouldn’t change much of anything).
On May 9th my world was completely turned upside down. Frankie had a mild seizure at daycare and I was called to come get him. Two ambulance rides later and a preliminary scan which simply said he had a mass on his brain was enough to ruin us.
Now, three weeks later he’s shown that he can make it through a nine hour surgery with no problem and be back to himself in four days. I’m holding this speedy recovery as fact and remembering to keep it as my mantra as we step into another phase. The doctors had hoped the tumor was benign and would be cured with surgery but that doesn’t seem to be in our cards. He’s going to be treated for ATRT cancer and it’s going to be rough.
We are looking at seven months of chemo and radiation with a stem cell rescue involved (the chemo is so intense that he needs his own harvested stem cells to save him). Frankie is the light of our lives. He’s strong and brave and sweet and funny. He is a gentleman. He’s always smiling
. We want to spend the rest of our lives with him.Frankie will start an aggressive treatment in two weeks. Kate and Matt will not leave his side through this process. That is why Frankie needs our community to give them the ability to stay by his side while he goes through the fight of his life. Matt and Kate need all our strength and support.
We will be telling Frankie's fight story and sharing on Frankie's Facebook page (coming soon) some hard things and our wins with you.
Information on AT/RT:http://www.cancer.gov/types/brain/patient/child-cns-atrt-treatment-pdq We are so grateful! Thank you!
Kate and Matt's Family