Bash for FAST

For: Foundation for Angelman Syndrome Therapeutics (FAST)
Woods Cross, UT
Organizer: Lori Ray
Bash for FAST (Foundation for Angelman Syndrome Therapeutics (FAST))
of $60,000 goal
100% Complete
Raised by 95 donors

The Story

Please join us in supporting Kellan and The Foundation for Angelman Syndrome Foundation (FAST). We want to thank everyone who made 2016 a successful event and looking forward to making 2017 even better! Your support is leading to ground breaking results in Gene therapy.

FAST has brought together a multi-disciplined team of more than two-dozen scientists from multiple universities and pharmaceutical companies to join forces on a focused path to a cure. Their work will change life for people with Angelman syndrome and, potentially, related disorders like autism and Alzheimer’s disease. FAST is the largest non-governmental funder of Angelman syndrome research and the only organization with a detailed plan towards a cure. FAST has set a $2 million community goal for this year. If we can meet this $2 million goal, we have an excellent chance of getting those funds matched -- and the faster we will be able to start clinical trials. Every dollar counts!

“Of all the childhood genetic neurologic disorders of the brain, Angelman syndrome may be the single best candidate for developing a definitive treatment (aka a cure).”~Dr. Arthur Beaudet

Angelman Syndrome is not holding Kellan back from living life but your support will help to make his life less challenging and more independent.  The more people who know about FAST, the greater FAST’s impact, so please spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!

Fundraiser Updates

Posted on April 12, 2017

Posted on April 12, 2017

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has.”

~Margaret Mead

I always think of this quote when I think of Ben & Lori Ray’s Bash for FAST event. For the past several years, Ben, Lori and Kellan’s family, friends and supporters have been raising the funds needed to replace the one gene that Kellan is missing, causing Angelman syndrome.  

In 2015, The Kellan Ray Grant was established with proceeds from the Bash for FAST to verify a gene therapy approach to the treatment of Angelman syndrome using two unique methods of gene delivery to the central nervous system. I am delighted to announce that in less than two years time, we have succeeded in this endeavor and are now preparing to move these advances towards clinical trials!

Developing a gene therapy for a debilitating, neurological disorder like Angelman syndrome is a very complicated, expensive process. Thanks in large part to the generosity of the Ray’s supporters, we now have the knowledge, technology and expertise to do this. FAST has partnered with several leaders in the gene therapy field to develop a gene therapy specifically for Angelman syndrome, but we need your support now more than ever.

FAST is the largest, non-governmental funder of Angelman specific research, committing over $10 Million to gene therapy alone. With continued support, we expect to have gene therapy in clinical trials within 24 months.

FAST’s goal has always been simple; to create a better life and brighter future for Kellan and the thousands of children like him. Kellan’s supporters have played a significant role in helping us realize this goal and the entire Angelman community is so grateful for their efforts and generosity.

I look so forward to seeing you on May 20th and sharing more of the amazing advancements your support has made possible. On behalf of the Board of Directors for the Foundation for Angelman Syndrome Therapeutics and the entire Angelman community, I thank you for your vigorous efforts in creating a better and brighter future for all of our children.


Paula Evans

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