We are we able to purchase Ethan's PROSE lenses from our last fundraiser! THANK YOU!
We are struggling with the monthly maintenance medication drops that are not covered by insurance, and traveling to Baltimore. The Avastin eye drops cost $700 a month with an addition $100 shipping since it's a refrigerated medication and insurance will not cover it because it's a cancer medication, and Ethan does not have cancer. This drug stops cell growth in his eyes, which is what caused his vision loss. We are currently in Baltimore with news Ethan's vision has improved but eye ulcers are developing. We are adjusting medications and I know our next appointment is August 16 to check his eye status. If anyone has points they could use to book our flight or hotel, we would welcome the help!
Thank you and God Bless!