Posted on July 29, 2017
Here's a brief rundown of what's happening after my visit with the neuro-oncologist earlier this week:
- Once again, my MRI was stable -- meaning no significant changes in the size or behavior of the tumor.
- I'm starting on new chemotherapy pill that I can take from home. Right now the plan is to take that first dose on Monday evening.
- The name of the medicine is gleostine (also called lomustine, Ceenu).
- I take it for one day and have six weeks off, as opposed to the five-day regimen for Temodar.
- I will resume weekly labs to make sure my blood counts are good, or at least passable, but I can do them here in Urbana. I'm going to need some fresh veins!
- My doctor gave me a new script for PT/OT. I have to check with insurance to see if I can even afford it. But I’m hoping it will be possible and that it will help me get over some pain and numbness that’s overtaking the left side of my body lately. I will have to adjust to my new dexamethasone dosage before I can even contemplate PT though.
- My dexamethasone dosage is being reduced from 2 mg daily to 1 mg daily. (Fingers crossed, I can stay active but a little less hungry on this dosage. I gained another 10 pounds since my last doc visit.)
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