Posted on June 27, 2017
Hi everyone, Ed's friend Laura here. Ed's had a rough couple of weeks. Though he wasn't feeling physically (and mentally) up for it, Ed started chemo last Thursday. Due to his fatigue and low body weight, he only got a half dose but even that put him through a whole hell of a lot of pain and discomfort. He's adjusting his medications now and feeling slightly better, but the thought of getting chemo again on Thursday is understandably freaking him and Vanessa out.
Ed and Vanessa are going to Northwestern tomorrow (Wednesday) to get a second opinion. We're hoping this doctor will have new ideas for how to treat Ed's cancer.
Ed and V are very grateful for everyone's well wishes and positive vibes. As Vanessa said
, focus those vibes and prayers on giving him strength and shrinking the tumors!
I know a lot of you would like to see Ed. His energy level varies by the day, sometimes by the hour, but generally Tuesday, Wednesday and Friday evenings are ok. Mondays and Tuesdays during the day, too. Think low-key stuff: watch a movie, play xbox, etc. Please, no pop-ins -- schedule a visit with Vanessa via text (if you don't have her number, email me at [email protected]
) and know that because Ed's health varies so wildly, he might have to cancel. It's not personal! Oh, and you don't need to bring any food for them. Ed is on a very restrictive diet and they have more fruits, veggies and other good stuff than they know what to do with right now!
As a reminder, if you want to help with things like cooking meals, cleaning, errands and driving, fill out this volunteer survey
and someone on Team Ed will contact you when a task comes up. And join the Team Ed Facebook page
for more updates! Thanks for all you've done already.