TeamEd: 2 Tumors 2 Many

For: Ed Siemienkowicz
Chicago, IL
Organizer: Ed Siemienkowicz
TeamEd: 2 Tumors 2 Many (Ed Siemienkowicz)
$17,585
of $25,000 goal.
Raised by 232 donors
70% Complete

The Story

The hardest thing for many of us to do is ask for help, but I'm humbly asking you to help me through this recovery period. As a contractor, I have some savings, but no real safety net. I wish it was otherwise, because God knows I've been working as hard as I could. I don't have a lavish life (ask me about my KonMari purge last year), but I'm looking to take care of my expenses while I recover. It's abdominal surgery, and I don't know how long it will be until I can work again. Anything you care to give I will be grateful for, and will honor by getting back to my life's purpose: telling stories, making art, and helping people to enjoy life a little more.

Sincere thanks,

Ed

Fundraiser Updates

Posted on August 4, 2017

Posted on August 4, 2017

On Sunday, July 30, Ed Siemienkowicz passed away, surrounded by family and friends who love him fiercely and dearly. We take some comfort in the fact that at the end, Ed was ready to go—ready to no longer suffer in pain. Through it all, Vanessa was at his side, holding his hand and telling him how much he is loved.

And now, this fund becomes a way to support Vanessa, who gave up her livelihood to become Ed’s full-time caretaker for the past 4 months. As executor of Ed's will, she also needs this fund to carry out Ed’s final wishes: to have his ashes scattered in 5 different places, including in Japan, where he spent 2 of the best years of his life.

If you’re sad, grieving and want to help in some fashion, this is one way you can do so. One of Ed’s last requests was to make sure Vanessa was taken care of. Please help make that happen.

Information for Ed's memorial service can be found here: https://www.facebook.com/events/1462160983863486/

Posted on July 25, 2017

UpdateImage

Posted on July 25, 2017

And now, the hair.

One good thing about being an ill shut-in is you don’t see too many people, and therefore you don’t HAVE to shower as much. 2 weeks after my one and only dose of chemo I too my second shower, and there was no longer any denying or hiding it.

Hair was just rinsing off my head in clumps, so I got out the old clippers. With major help from Vanessa, I went all the way. Gotta say… it’s kinda fun, and feels pretty good. I need to keep reminding myself that no, that’s not wet hair on my pillow.

At first I thought “Ok, this isn’t so bad…” Then, as it fell out, “Ok, maybe an extreme part?” Then there was no turning back after the second shower.

The best way is to accept it, and know it’ll grow back. Focus on the good things, a forwardrecovery. And take more silly pictures. 

These are still tough times for me. Please get involved, I’d love your help.

YouCaring: Keep up with my progress, and know that any donation will help me out.

LotsaHelpingHands: In the Chicago Area? There’s some real life needs, too (cleaning, meals, etc.) That I just can’t do yet.

Join TeamEd on Facebook!Easy way to stay up to date with my progress, and a little more extras on the personal or silly, stress-relieving side from me. 

Thanks, Ed!


Posted on June 27, 2017

Posted on June 27, 2017

Hi everyone, Ed's friend Laura here. Ed's had a rough couple of weeks. Though he wasn't feeling physically (and mentally) up for it, Ed started chemo last Thursday. Due to his fatigue and low body weight, he only got a half dose but even that put him through a whole hell of a lot of pain and discomfort. He's adjusting his medications now and feeling slightly better, but the thought of getting chemo again on Thursday is understandably freaking him and Vanessa out.

Ed and Vanessa are going to Northwestern tomorrow (Wednesday) to get a second opinion. We're hoping this doctor will have new ideas for how to treat Ed's cancer. 

Ed and V are very grateful for everyone's well wishes and positive vibes. As Vanessa said, focus those vibes and prayers on giving him strength and shrinking the tumors!

I know a lot of you would like to see Ed. His energy level varies by the day, sometimes by the hour, but generally Tuesday, Wednesday and Friday evenings are ok. Mondays and Tuesdays during the day, too. Think low-key stuff: watch a movie, play xbox, etc. Please, no pop-ins -- schedule a visit with Vanessa via text (if you don't have her number, email me at [email protected]) and know that because Ed's health varies so wildly, he might have to cancel. It's not personal! Oh, and you don't need to bring any food for them. Ed is on a very restrictive diet and they have more fruits, veggies and other good stuff than they know what to do with right now!

As a reminder, if you want to help with things like cooking meals, cleaning, errands and driving, fill out this volunteer survey and someone on Team Ed will contact you when a task comes up. And join the Team Ed Facebook page for more updates! Thanks for all you've done already.

Laura

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