Help Drake Medinger and Jessica kick cancer

For: Drake or Jessica Medinger
Tomball, TX
Organizer: Ericka and Stephanie Medinger
$166,277
of $10,000 goal.
Raised by 3808 donors
100% Complete
Donate Now

The Story

Drake is on his second time of battling leukemia.  This time is being very hard on him. He is also having side effects from chemo and medicine. We are needing to ask for help to continue to get things needed for Drake along with getting him back and forth to hospital.  He has a page Stinky Joes #1 Pit Crew on facebook where you can get updates on his health. Thank you for all your prayers  and continued support.

Fundraiser Updates

Posted on May 23, 2017

Posted on May 23, 2017

Hey Everyone,
So I had a whole post wrote out the other day and a phone call happened, went back to facebook and it was deleted. I didnt have the energy to retype it out. Sorry.

Drake is doing well. Last Wednesday we spent 13 hours at clinic for spinal tap, blood transfusions, and long push chemo. Drake's counts have dropped which is to be expected from his chemo. He also had four days of chemo through his port at home instead of having to drive into Houston each day. He tolerated it well, with little ickiness.

Thursday, we met with Gastrointestinal docs. They believe his digestion is still delayed but sloooooooowly improving. They talked about doing a E.G.G. (like a EKG, just on the stomach). They want to put him on a gluten free diet, along with limited dairy. So between all of that and no salt for Renal, we are embracing a more plant based diet with lean proteins. Not too much of a change, but he loves Mexican and Italian food so that will be hard to change. We go back in three months for a follow up.

We head back to hem/oc on Wednesday. So far there is no chemo planned as his counts will be too low. They still do not know if he will go onto maintenance or repeat the cycle he started back in February. Most chemo treatments have 40 weeks of intense chemo, Drake has only had 24. So they are up in the air with it.

He will also meat with NueroPsych to start testing. There is concern with school regression, short term memory loss, and possible dyslexia. He had testing a year ago at Munroe Myer but since Drake was uncooperative with the tester, we only were able to get some answers, nothing complete.

Renal function seems to be getting better also. His creatine levels have stayed in the normal range the last two weeks. He was able to stop one of his blood pressure medications. He has a follow up with Renal next week and hopefully things are still good.

The BK virus is basically nonexistent in his blood as of last Wednesday. Victory! None of the genetic testing has came back yet and immunology appointment has been pushed back until July.

Thank you for all the well wishes and prayers. Drake is much stronger and getting back to being goofy old Stink. Never Give Up, All Day, Every Day.

Written by Jessica 

Posted on May 10, 2017

Posted on May 10, 2017

Written by Jessica 

Mr. Stink starts back on chemotherapy today. We are going to finish out his old treatment plan for this block, then they will make a decision on whether to go into maintenance OR repeat this block of chemo again. I dont know about repeating this block again (that is standard procedure with his protocol), I dont think his body could handle it. 
On some good news, his lab work looked great again today. He also gets to do chemo at home for the next four days instead of driving into Houston every day and being admitted on Sunday. Small victory but WE WILL TAKE IT. 
Can we just real talk about this chemo med he is taking today? I dont know the name of it (have spaced it out of my mind apparently), but it had the known reaction of bottoming out blood pressure. They moved us into a private care room "just in case" they need to "work on" Drake. What the fridgenet? Seriously, it is not okay to have medication out there that can do this to children. They are not pretreating him with Benadryl as it does not help prevent the reaction. Most kiddos on chemotherapy treatment plans are on some type of research study. I think I read the percentage is 90% of chemo kids are on studies. Even though that is almost all chemo kids, only 4% of cancer research funding is directed towards kids. That is 4% for all types of cancer (leukemia, brain, tumors, etc). That is why we have meds that can bottom out heart rates, cause sterilization, cause secondary cancers, or other harsh side effects like brain damage. It is frustrating to say the least. I seriously wish I had the mind for science and medicine, because I would push for better and more effective treatment for childhood cancer. 
Crossing fingers that things go well... Never Give Up, All Day, Every Day!

Posted on May 9, 2017

Posted on May 9, 2017

Drake had a routine hem/oc office visit today. His labs were great and his creatine was even lower at .4. That being said, he starts back to chemotherapy on Wednesday, pending labs are still good. We will be heading back to Houston for Wednesday through Saturday, then admitted on Sunday for chemo (since the clinic is closed). They wanted to admit us for all five days of chemotherapy but because there are no admissions available, we will be doing it out patient except for Sunday. Here's crossing my fingers and hoping nothing goes wrong, his counts dont bottom out, or that he has any type of reaction (it is a new to him type of medication they will be giving him). 
Drake has been in great spirits and enjoying spending time outside playing. He still gets tired easily but his endurance has greatly improved. He hasnt needed to use his wheelchair in awhile, and is getting back to his giggly old self. 
He is still on TPN for 18 hours a day (with the possibility of dropping down to 12 after Wednesday). He is at 34.3 kg which is a major improvement. The bathroom picture he was at 26/27 kg. So while it is squishy fluid weight, it is still weight. 
We had a follow up with Renal last week. Nothing new to report there except the decreased his one blood pressure pill in half without cardiology really approving it. We might ask to switch renal doctors as it seems this one does not "play well" with all of Drake's team of docs.
He also finished up radiation. While going through it he did really well. Now the treatment sight is itchy and sunburnt feeling he said. They prescribed some cream stuff, hoping it helps. 
Other than that not much going on, just hanging out at home and taking it a day at a time for Mr. Stink. Thank you for all the continued well wishes, prayers, and positive thoughts. Never Give Up, All Day, Every Day.

About the Organizer

Report Fundraiser

Report Fundraiser

Please report potential fraud and Terms of Service violations only. Personal disputes will not be reviewed.

We require this in case we need to contact you for further details.*

* YouCaring will not distribute your phone number to any third parties or use it for marketing purposes.

Comments

Supporters

Add Our Donation Widget to Your Site
Grab Our Widget

Help Drake Medinger and Jessica kick cancer

Grab Our Widget
Donate Now