Posted on February 16, 2018
Posted on February 16, 2018I have been getting messages asking for drakes address it us
C/O Ericka Medinger
PO BX 1725
Tomball, TX 77377- 1725
Also an update from Jessica on Drake aka Stinky Joe
A year ago on International Childhood Cancer Day, the world fell in love with my Stinky Joe. It brought complete strangers into our life and made them family. Who would have guessed that my feelings and his picture would been seen organically (from his page) over 9 million times? I sure as heck didn't, all I knew was that day his pain caused my fustration to escape me and I had to release it.
I look at the phenomenal strength Drake has shown this past year, and his determination to win the battle, and I cry. I am so lucky that my kiddo has grit and has survived when I personally didnt know if he would. He celebrated his 11th birthday in January and hope he gets to celebrate 100 more.
Drake is doing awesome. He continues with chemo through his port once a month, weekly chemo pills, and once every three months a spinal tap. Yes, he has some nasty side effects from it all, chemo brain, leg and feet pain, stiff joints, but guess what - HE IS STILL HERE to have those! And that is all that matters!
He is no "normal" little 11 year old, he is a wise old soul with a warrior mentality. He symbolizes hope, faith, strength, and love. I no longer have to beg him to eat one green bean for supper (well sometimes when he refuses to eat his vegetables :) ). He is no longer skin and bones but strong and pleasantly plumpy healthy :)
Drake has never lost his sense of humor through it all and has the best laugh. I should record it because you cant help but smile at his giggle. He is still orney as sin but has the kindest heart. He feels things deeply and so empathic to others. Cancer has not robbed him of being an awesome human.
He is still my smiles, my frowns, and always my heart.
Never Give Up, All Day, Ever Day
Posted on January 20, 2018
Posted on January 20, 2018Good News Saturday
Drake had a six month follow-up cardiology appointment yesterday with an echocardiogram. His heart has grown much stronger than six months ago. The cardiologist has released him from restricted activities. He can now do moderate aerobic things like swimming, running, tennis and most importantly recess. He is still is not able to do weight lifting and significant isometric exercises like weight lifting and push/pull ups. He also can't do competitive contact sports but we will take it.
He still has a slooooooow leaky valve that when he is older he will have to watch very closely to ensure he doesn't need it replaced. His heart has a nice strong beat and functioning at a more productive level. Drake has been bumped to yearly follow up now. Just one more step to getting back to normal.
Never Give Up, All Day, Every Day
Posted on January 17, 2018
Posted on January 17, 2018Drake's labs came out good today. Hemoglobin is 10 and platelets are 119. ANC is over 2000, so he starts back on his chemo pills tonight, but at half dose. Doctor says Drake is good to go back to school, he must wear a mask at all times while there. So teachers if you see him trying to wear it wrong or without it, LET ME KNOW so I can write a post it note and tape it to his forehead :) Cross our fingers and toes that this cold snap has helped kill off some of the viruses junk that has been hanging around. We survived Houston's "winter", these last two days of 20 degree weather has been horrible :) bring on the sunshine. Sure makes me miss the cold of Nebraska and back breaking work of scooping snow.... yeah... no.
Thank you again for all of the Birthday Wishes for Stinky. He had a pretty good day, yesterday. No school, carrot cake, and family from Nebraska came for a visit.
Never Give Up, All Day, Every Day!