Posted on November 18, 2017
Posted on November 18, 2017Drake had his transfusion. His counts had went down further. Prayers for both momma and Drake. Today momma posted.
Well... Drake has a full blown cold or upper respiratory something or another. No fever YET... but I am quietly freaking out. It is the weekend so no quick doctor appointments and this time last year is when he went into septic shock. Least he is feisty and smart mouthing me this time so I know he isnt completely to the point of taking him. Hospital bag is packed just in case though.... ugh. Off to CVS I go to get a warm mist humidifier and man (I think Im dying and just cant do anything, let me lay on the couch and be catered to) cold supplies :)
Posted on November 16, 2017
Posted on November 16, 2017Well.... ugh. Drake had labs today and his hemoglobin was 6.3. We had already left the clinic when the lab results came back, so we go for a transfusion at 7:15 tomorrow morning. It explains why Drake has been super sleepy and needing a lot of naps lately. His ANC is right at 500, borderline nutrapenic. So, precaution, precaution, precaution.
He also has been having a lot of foot pain lately. We followed up with Sports Medicine with xrays. Drake has ostropenia from the steroids and chemo. His bones are very brittle and can break easy. The doctors have places him on D3 and lots of calcium. Also, the steroids have shortened his ligaments in his feet, ankles, and legs. So much that it is causing his arches in his feet to disfigure and be extremely high. Stink is scheduled to have a Sports Medicine PT evaluation tomorrow to get PT going for his feet but depending on how long the transfusion takes, we might need to reschedule.
Drake also went to Endocrinologist this week. I will write a post about that later. My phone is about dead and it will be a loooooooong post probably :).
School is going okayish. He has some seperation anxiety when dropping him off but he is working through it. I will also go into that more next time also.
Thank you for all the continued prayers, support, and well wishes.
Never Give Up, All Day, Every Day
Posted on October 27, 2017
Posted on October 27, 2017Today was Stinky's first day back to school. Take that cancer! He was super excited to be able to see his friends again. His buddy from scouts and his classroom was able to help him out today to learn the routine, which was the best part he said.
I was a little lost today not having him around, but it was good. It felt like I was sending him off to the first day of kindergarten and it tugged on the heartstrings. Here is hoping tomorrow goes just as smoothly. :)
His counts have been a little low the last weekish, but slowly bouncing back. Platelets are still low, so he is on bleeding precautions a little bit. Yesterday, we had the follow up from March's genetic testing. It was interesting to learn what gene traits Drake and I have. Good thing I have a big brained science geek of a sister :) to explain it to me.
Things are good right now for Stink. He is looking and feeling pretty good.
Never Give Up, All Day, Every Day!