Posted on May 9, 2017
Drake had a routine hem/oc office visit today. His labs were great and his creatine was even lower at .4. That being said, he starts back to chemotherapy on Wednesday, pending labs are still good. We will be heading back to Houston for Wednesday through Saturday, then admitted on Sunday for chemo (since the clinic is closed). They wanted to admit us for all five days of chemotherapy but because there are no admissions available, we will be doing it out patient except for Sunday. Here's crossing my fingers and hoping nothing goes wrong, his counts dont bottom out, or that he has any type of reaction (it is a new to him type of medication they will be giving him).
Drake has been in great spirits and enjoying spending time outside playing. He still gets tired easily but his endurance has greatly improved. He hasnt needed to use his wheelchair in awhile, and is getting back to his giggly old self.
He is still on TPN for 18 hours a day (with the possibility of dropping down to 12 after Wednesday). He is at 34.3 kg which is a major improvement. The bathroom picture he was at 26/27 kg. So while it is squishy fluid weight, it is still weight.
We had a follow up with Renal last week. Nothing new to report there except the decreased his one blood pressure pill in half without cardiology really approving it. We might ask to switch renal doctors as it seems this one does not "play well" with all of Drake's team of docs.
He also finished up radiation. While going through it he did really well. Now the treatment sight is itchy and sunburnt feeling he said. They prescribed some cream stuff, hoping it helps.
Other than that not much going on, just hanging out at home and taking it a day at a time for Mr. Stink. Thank you for all the continued well wishes, prayers, and positive thoughts. Never Give Up, All Day, Every Day.