Dee McCord is a single Chicago Mom who is struggling to keep her business open while also taking care of her two children, one of whom is fighting for his life.
Levi, who is 4, doesn’t spend his days playing at the park or just having fun like other children do. Instead, he’s hooked up to machines and wearing a medical mask as he fights a rare genetic disease.
Levi has been diagnosed by doctors at Lurie Children’s Hospital with HOOD syndrome. It causes kidney failure and blindness. It also releases a protein into his system that breaks down his organs. Additionally, he has cyclic vomit syndrome where his body doesn’t know how to stop vomiting once it starts. Doctors have also identified a connective tissue issue that causes severe immunity issues which has resulted in him suffering from daily excessive bleeding out of his mouth and nose. As a result, he must wear a medical mask in public at all times.
HOOD syndrome is so rare there are only 185 people living in the US with it. Levi is one of only two children under the age of nine who has it. There are less than 300 cases globally. Right now, Dee is communicating with a family in London who also has a child with symptoms matching Levi’s. She is trying to learn all she can about her son’s condition.
Many of you may know Dee from her multiple posts on the Chicago Mom’s in business page. Right now, as doctors have told her it is unlikely her child will live past age six, she is struggling to make ends meet. As a single mom of two children, she is splitting her time between running her business, being at the hospital and taking care of her daughter. She needs help purchasing medications, getting dinner on the table and paying for childcare. No mother should ever have to make the tough decision of whether she can afford food or buy medicine for her sick child.
Our goal is to raise at least $5000 to help ease her struggles. Any amount, even $1, will make a Difference. If you can’t donate, please consider giving your time—offering to watch her daughter while she is at the hospital or having her daughter over to simply play with your children. Or, we are looking to coordinate having meals prepped and dtopped off her and her family so she doesn’t have to worry about having food on the table. Please contact me privately to learn about dietary restrictions, etc. Just think, a pan of premade lasagna can be frozen and last a month. It just needs to be put in the oven. Some pots of soup can be frozen for months thawed. And if you simply cannot help with any of the above, we ask that you keep Dee and her son in your thoughts and prayers.
we have started a Mealtrain and you can use the following link to get to it. All dietary restrictions are listed there! Thanks!