Posted on January 16, 2018
2018 is proving to be a very challenging year for Dawn and I.
There are already a lot of alterations in just the last few weeks to support Dawn’s changing condition. In addition to the Mobility Scooter, Wheelchair, Stroller, and Seats we have now added a Stairflift and Hospital Bed with Inflatable Mattress. Work to adapt the garage in anticipation that Dawn will not be able to get upstairs is in progress, and we have plans in mind for other alterations downstairs. Although all these can help in the short term they are already proving to be of little help as Dawn’s condition quickly changes.
The Cauda Equina, which is not related to her Cancer, is proving to be far worse than we imagined in that we expected Dawn to eventually lose the use of her legs but did not anticipate the pain that would come with this as nerves are compressed in her spine. This pain is unimaginable and for me I can only liken it to having to stand by and watch someone being tortured as I am left powerless to do anything. Any simple movement causes Dawn unbelievable pain shooting down her back and legs and has brought tears to her eyes. The number of cases in the country are so few that we do not have any reference material as to what the future holds.
Meetings with the relevant consultants have Dawn using a cocktail of drugs to help manage this but so far these are not even touching it as it’s nerve pain and Morphine/Opiates have no effect on this. Options seem to be an epidural anaesthesia to completely numb the area. At the moment anything that would give Dawn some relief is welcomed and we will be looking to take forward these solutions over the coming weeks.
In relation to the cancer, Dawn’s weekly chemotherapy continues and this feels like a walk in the park when compared to the Cauda Equina.
The clots on Dawns lung remain and restrict her ability to fly. As such Spain is on hold. In any event we need to get on top of her back pain.