Save Dave

For: Dave Kay
Ginosar, North District, Israel
Organizer: Emly Kay
$108,459
of $100,000 goal.
Raised by 1395 donors
100% Complete

The Story

UPDATE: August 6th, 2017
All we can say is THANK YOU. In less than a week we have managed to reach our goal and you have given us a chance to #SaveDave. 

The YouCaring page will remain active and all additional donations will continue to go towards Dave's treatment plan. 

We will be posting updates regularly. We hope you will continue to follow our story. 
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Hi - We are the Kay Family.  


In June 2016, Dave was diagnosed with a rare form of cancer, Stage IV Non-Small Cell Lung Carcinoma (NSCLC) EGFR+ with multiple Brain, Liver, and Bones Metastasis.
Dave is 32 years old, never smoked, and has always lived a healthy lifestyle.
This news was and continues to be devastating for us and our young family, including our 2-year-old daughter, Noa.

As Dave’s treatment progresses, we are realizing how much we need extra support. We are surrounded by loving friends in our home in Israel, but our families are located in different countries and the intense medical treatment that Dave requires is taking its toll not only emotionally but financially. Dave has only been able to work occasionally since his diagnosis. 
Often times, due to chemotherapy, radiation, and a variety of pills that make up Dave’s treatment, we find ourselves not only with one household income but the responsibilities of taking care of Dave, our daughter, and daily tasks. Although we have immense support from our friends, we often find ourselves alone on this crazy journey.

This is why we have decided to create a fundraising page: to help ease the financial burden that Dave’s medical situation has put on our family. 


Thank you for reading so far. We will go into more details below, as we know that many of you are interested in hearing Dave’s current diagnosis and treatment updates. In the meantime, thank you for your financial contribution and for keeping Dave in your hearts during this difficult time.

TREATMENT HISTORY

When Dave was diagnosed last summer, his oncologist (who we love) put him on a trial biological breakthrough pill called Tagrisso. Thankfully the treatment had few side effects and it slowly took some of the cancer out of his body. However, 7 months later, the treatment stopped working and Dave changed pills to a less advanced biological treatment (called Afatanib). After 2 months of continuous progression, his oncologist decided that Dave needed chemotherapy. At the moment Dave is in the middle of whole brain radiotherapy (WBRT) and chemotherapy in order to control the rapid spread of tumors that continue to multiply.

Since beginning chemotherapy and radiation, Dave is constantly fatigued and weak. Our day to-day life is focused around Dave’s current treatment plan. Dave can’t go back to being a tour guide, the career he was once devoted to, and he is often frustrated at his inability to contribute financially to our family.

We want Dave to have the best treatment possible. There is currently no cure for this type of cancer but with careful monitoring and effective treatment, we hope to manage the disease as a chronic illness so Dave can go back living his life.

We are calling on the generosity of friends, family, neighbors, and strangers to help us #SaveDave. Your financial support will allow us to pursue the most advanced treatments possible as well as help us with constant expenses we incur surrounding Dave's treatment plan.

WHERE THE MONEY IS GOING

All donations are tax deductible and go towards the following expenses:

• Consultations with leading lung cancer specialists around the world - Ranging from $300 to $1,000 per consultation
• Housing near the hospital during daily treatment - NIS 500 per night
• Transportation to & from treatment from our home in Northern Israel - NIS 150
• Childcare for Noa during treatment - NIS 400 per day
• Translating medical documents from Hebrew to English - NIS 150 per page
• Attending lung cancer medical conferences abroad - $3,000
(There have been medical conferences in the past that could have been extremely beneficial to attend but due to financial constraints, we have not been able to participate in any. Attending conferences is essential for Dave’s treatment plan because as our knowledge broadens, we can learn more about his specific mutations and the treatments available to him.)  
• Champions Oncology Treatment -  $10,000
(We were recently given the incredible opportunity to be part of a service that helps determine which cancer treatment could effectively shrink Dave’s tumors and save his life. By using Champions Oncology, Dave’s living tumor was removed during a biopsy and was implanted into mice. If these mice survive they will allow doctors to test multiple drug combinations and find the most effective treatment for his specific cancer.
With your help, we can use the funds to test Dave’s tumor in several more mice, giving him a better chance to find which treatment  is right for his cancer. This alone can save Dave’s life. To learn more about Champions Oncology, you can click here: http://championsoncology.com/personalized-oncology-solutions/how-it-works/ )
• Future treatments not covered by Dave’s health insurance - $10,000
(So far, most of Dave’s treatment has been covered by his health insurance. However, in the very near future, we expect to use other treatment options, which are not covered by his insurance and/or is located outside of Israel. The most expensive costs we have already incurred that have not been covered by insurance are laboratory tests, located in the USA. These tests do not exist in Israel and have given us vital information about Dave’s cancer, and how to best treat it.)

STATISTICS

Each year, more people die of lung cancer than of colon, breast, and prostate cancers combined. Around 2 out of 3 people diagnosed with lung cancer are 65 or older, while less than 2% are younger than 45.

Lung cancer is by far the leading cause of cancer death among both men and women; about 1 out of 4 cancer deaths are from lung cancer.

HOW YOU CAN HELP TODAY

1. Donate what you can, no amount is too small and donations are tax deductible
2. Share this campaign with your network and on social media with hashtag #SaveDave
3. Donate to or visit the website, Israel’s Lung Cancer Association (in Hebrew), or your home country’s lung cancer organization.

Fundraiser Updates

Posted on August 11, 2017

UpdateImage

Posted on August 11, 2017

Update 2: Friday August 11th

This week I finished my 10th round of radiotherapy. Its been a tough 10 days of fatigue and some strange leg cramps but my friends and family have been really supportive which has helped me through. Hopefully there wont be a return to the radiotherapy room for a long time.

Next week I have chemotherapy, an ultrasound on my leg and a PET CT to get an update on the tumours.

My doctor has decided to continue to do a 3rd and 4th round of chemotherapy and then I will be returning to Biological treatment.

He has decided, based on my biopsies and consultation with other physicians, on a combination of Crizotinib and Tagrisso. Our health insurance doesn't believe in reverting to biological treatment while chemotherapy is working which means we have to buy to pills privately, which is where your donations have been a huge help. We wouldn't be able to go back to biological treatment without your help, so thank you all again, this is my best chance of getting tumours under control and it's only possible because of your donations.

Hope you have all had a good week. Ive included a photo from a week ago of Noa, Emly and her 94 year old great grandmother Tzipi.


Posted on August 4, 2017

UpdateImage

Posted on August 4, 2017

Thank you all for the incredible response.

Special mentions need to go to Tracy our talented film maker, Yoni who handled any press and official enquiries and Emly my wife who was patient and courteous with every message, request and email. It wasn't a decision we took lightly to take our story public but so far we have no regrets.

In terms of treatments I wanted to give you a full update.

There are 4 main types of treatments that I have on offer to me. Chemotherapy, Radiotherapy, Biological therapy and Immunotherapy. Right now I am doing a combination of Chemotherapy and Radiotherapy. The most advanced choice of treatment with my cancer, biological therapy, stopped working in January. We are currently doing 3/4 rounds of chemotherapy and then hopefully return to Biological treatment.

After doing an MRI a few weeks ago we were shocked to see that I had lost control of the tumors in my brain. The doctor recommended me to do 10 rounds of whole brain radiotherapy. I am currently 6 rounds through the treatment that I will finish next week. The Treatment's main side effected is fatigue and headaches. Next week I will finish the radiotherapy and then have my 3rd, and hopefully final, round of chemotherapy. 

The big aim at the moment is to get back to biological treatment. Biological treatment tries to target to proteins feeding the tumours and tries to block them. It consists of taking a pill each day and doesn't require that I need to be sat in a hospital bed. This type of treatment was working between July '16 and January '17 and was excellent, unfortunately it stopped working but we are hoping after a few doses of chemotherapy, and a detailed biopsy we will be able to go back to some form of it. 

A short mention to immunotherapy. Often touted as the most promising form of cancer treatment, with my particular cancer mutations its not entirely clear when and why it works - which is risky. We are not ruling it out for the future but for the moment we are keeping it as a backup plan.

So currently we are staying in Tel Aviv, my mum is here to help with Noa and I am going in each weekday for radiotherapy. In a week we will be past this and gearing up for the next set of tests and a change of treatments.

Thank you all for donating, sharing and believing in me. I will try not to let you down - this is certainly an aggressive form of cancer but I have plenty of fight left in me.

Please send any questions into the facebook page. Love you all for the support, it gives me strength. (PS. the photo is me and Emly after completing a Tel Aviv half marathon a few years ago)

David

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