Save Dave

For: Dave Kay
Ginosar, North District, Israel
Organizer: Emly Kay
$124,627
of $150,000 goal.
Raised by 1580 donors
83% Complete

The Story

UPDATE: October 20th 2017
Thank you all for donating to #SaveDave. We regularly check this page and appreciate every kind word of support and donation made. We are still fighting to have my treatment paid for by health insurance, and until then we still have to pay for it out of pocket. We also have regular advanced tests we have to pay to be done in America (they are not done anywhere else) and we are still trying to get to as many conferences as we can. Because of these ongoing costs we have raised the goal to $150,000, every dollar counts to us!

A special mention needs to go to all those running 10km around Tel Aviv in my honour on 31st October. I really hope to be joining you all... 10km used to be a walk in the park for me but maybe i'll make it once again. Im signing up, and we'll see what will happen! Thanks to all those running with my cause on their shirt, and those sponsoring the runners. From the bottom of my heart Icannot thank you guys enough. I never expected to be a reason for people to run, but it means so much to me that so many of you care.

UPDATE: August 6th, 2017
All we can say is THANK YOU. In less than a week we have managed to reach our goal and you have given us a chance to #SaveDave. 

The YouCaring page will remain active and all additional donations will continue to go towards Dave's treatment plan. 

We will be posting updates regularly. We hope you will continue to follow our story. 
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Hi - We are the Kay Family.  


In June 2016, Dave was diagnosed with a rare form of cancer, Stage IV Non-Small Cell Lung Carcinoma (NSCLC) EGFR+ with multiple Brain, Liver, and Bones Metastasis.
Dave is 32 years old, never smoked, and has always lived a healthy lifestyle.
This news was and continues to be devastating for us and our young family, including our 2-year-old daughter, Noa.

As Dave’s treatment progresses, we are realizing how much we need extra support. We are surrounded by loving friends in our home in Israel, but our families are located in different countries and the intense medical treatment that Dave requires is taking its toll not only emotionally but financially. Dave has only been able to work occasionally since his diagnosis. 
Often times, due to chemotherapy, radiation, and a variety of pills that make up Dave’s treatment, we find ourselves not only with one household income but the responsibilities of taking care of Dave, our daughter, and daily tasks. Although we have immense support from our friends, we often find ourselves alone on this crazy journey.

This is why we have decided to create a fundraising page: to help ease the financial burden that Dave’s medical situation has put on our family. 


Thank you for reading so far. We will go into more details below, as we know that many of you are interested in hearing Dave’s current diagnosis and treatment updates. In the meantime, thank you for your financial contribution and for keeping Dave in your hearts during this difficult time.

TREATMENT HISTORY

When Dave was diagnosed last summer, his oncologist (who we love) put him on a trial biological breakthrough pill called Tagrisso. Thankfully the treatment had few side effects and it slowly took some of the cancer out of his body. However, 7 months later, the treatment stopped working and Dave changed pills to a less advanced biological treatment (called Afatanib). After 2 months of continuous progression, his oncologist decided that Dave needed chemotherapy. At the moment Dave is in the middle of whole brain radiotherapy (WBRT) and chemotherapy in order to control the rapid spread of tumors that continue to multiply.

Since beginning chemotherapy and radiation, Dave is constantly fatigued and weak. Our day to-day life is focused around Dave’s current treatment plan. Dave can’t go back to being a tour guide, the career he was once devoted to, and he is often frustrated at his inability to contribute financially to our family.

We want Dave to have the best treatment possible. There is currently no cure for this type of cancer but with careful monitoring and effective treatment, we hope to manage the disease as a chronic illness so Dave can go back living his life.

We are calling on the generosity of friends, family, neighbors, and strangers to help us #SaveDave. Your financial support will allow us to pursue the most advanced treatments possible as well as help us with constant expenses we incur surrounding Dave's treatment plan.

WHERE THE MONEY IS GOING

All donations are tax deductible and go towards the following expenses:

• Consultations with leading lung cancer specialists around the world - Ranging from $300 to $1,000 per consultation
• Housing near the hospital during daily treatment - NIS 500 per night
• Transportation to & from treatment from our home in Northern Israel - NIS 150
• Childcare for Noa during treatment - NIS 400 per day
• Translating medical documents from Hebrew to English - NIS 150 per page
• Attending lung cancer medical conferences abroad - $3,000
(There have been medical conferences in the past that could have been extremely beneficial to attend but due to financial constraints, we have not been able to participate in any. Attending conferences is essential for Dave’s treatment plan because as our knowledge broadens, we can learn more about his specific mutations and the treatments available to him.)  
• Champions Oncology Treatment -  $10,000
(We were recently given the incredible opportunity to be part of a service that helps determine which cancer treatment could effectively shrink Dave’s tumors and save his life. By using Champions Oncology, Dave’s living tumor was removed during a biopsy and was implanted into mice. If these mice survive they will allow doctors to test multiple drug combinations and find the most effective treatment for his specific cancer.
With your help, we can use the funds to test Dave’s tumor in several more mice, giving him a better chance to find which treatment  is right for his cancer. This alone can save Dave’s life. To learn more about Champions Oncology, you can click here: http://championsoncology.com/personalized-oncology-solutions/how-it-works/ )
• Future treatments not covered by Dave’s health insurance - $10,000
(So far, most of Dave’s treatment has been covered by his health insurance. However, in the very near future, we expect to use other treatment options, which are not covered by his insurance and/or is located outside of Israel. The most expensive costs we have already incurred that have not been covered by insurance are laboratory tests, located in the USA. These tests do not exist in Israel and have given us vital information about Dave’s cancer, and how to best treat it.)

STATISTICS

Each year, more people die of lung cancer than of colon, breast, and prostate cancers combined. Around 2 out of 3 people diagnosed with lung cancer are 65 or older, while less than 2% are younger than 45.

Lung cancer is by far the leading cause of cancer death among both men and women; about 1 out of 4 cancer deaths are from lung cancer.

HOW YOU CAN HELP TODAY

1. Donate what you can, no amount is too small and donations are tax deductible
2. Share this campaign with your network and on social media with hashtag #SaveDave
3. Donate to or visit the website, Israel’s Lung Cancer Association (in Hebrew), or your home country’s lung cancer organization.

Fundraiser Updates

Posted on December 25, 2017

UpdateImage

Posted on December 25, 2017

25th December 2017 (Christmas Update!):

Hi and Merry Christmas to those who celebrate. 

Last week I had a tissue biopsy which we will get some results from probably in the next month. The the day after I started on my new treatment which is a combination between biological and immunotherapy. The biological treatment is taking a pill each morning, and the immunotherapy is an infusion every 3 weeks.

Side effects have been difficult lately. My cough has gotten worse, and Ive got some serious back pain, which we now think is caused by some tumors in my back. I may be doing radiotherapy shortly to treat it. Im also experiencing nausea, which hopefully will get better now I've changed my treatments.

Thanks to my family who have really been there for me. My sister met me in Geneva for a conference, my Mum is currently staying with us to help with the post biopsy/changing treatments and of course thanks to my wonderful wife who helps me every day in hundreds of ways.

Please keep donating....The biopsy tests we are doing in the USA are not covered by insurance and neither is biological treatment that I currently take each day. I really appreciate every shekel/dollar/pound you can spare to keep me on a treatment.

This is my first time taking immunotherapy and I'm really hopeful its going to work.

Anyway I hope you have a fantastic Christmas and New Years. Im wishing you all a wonderful 2018, full of life and of course health. 

Posted on December 1, 2017

UpdateImage

Posted on December 1, 2017

Update 1st December 2017:

Theres good news and bad news.

The best news is that Im feeling really good, the last few weeks I’ve felt better and better every day. I even felt ready to go back to work…but its going to be a little while longer.

I have 2 scans to consider when checking to see if a treatment is working. The MRI checks my brain and the PET CT checks my body. The MRI we think told us that the treatment is working in my brain which is really good news. 

However the PET CT wasn’t such good news. It appears that the tumours in my body have been growing so that probably means that the Xalkori isn’t working.

We have two options in front of us. First is to switch to a different biological treatment instead of Xalkori. The second option is to move to another type of treatment called immunotherapy. Our doctor is unsure about the correct path.

We have a phone conference with another great doctor next week to get a second opinion. We are also scheduling another tissue biopsy to try and give us more answers about what is the best course of treatment.

We were really hoping the treatment I am on was working, but I was probably feeling better because I am dealing with the side effects better. 

Anyway will keep you all updated, it looks like theres going to be a lot of changes in the coming month. Don’t worry we are not giving up, the fight goes on. Thank you to my wife for being my rock and keeping me motivated, and thank you to this grinning monkey in the picture who is excellent at keeping our spirits up. And finally thank you to all of you, for your continued support. 


Posted on November 5, 2017

UpdateImage

Posted on November 5, 2017

5th November Update:

Last week around 20 people wore a Tshirt with “SaveDave” printed on it and ran 10km in Tel Aviv to try to raise awareness and money for my cause. I can’t thank these people enough for their time and effort. The money they raised is invaluable and it will be used to buy medications over the next couple of months. 

Specials mentions go to Josh and Hezza who organised the group, you guys did a great job. Thank you both.

Other than that, I feel my treatment is going well and i have most of the side effects under control at the moment. 


I wanted to dispel some slightly inaccurate information about my illness that has been floating around the interwebs. Often my type of cancer has been referred to as “incredibly rare”. Actually Non-Small Cell Lung Cancer is very common. 1 in 15 Americans get diagnosed with lung cancer and 60%-65% of them never smoked or are former smokers. Lung Cancer is actually more common than Breast and Prostate cancer. However what is unusual about my case is my age. Its very rare to be diagnosed at 31. 


Anyway, will keep you all updated on the coming weeks. We have more scans coming up and a doctors appointment at the end of the month. Thank you all for your continued support.

David 

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