Help Dave Bryson to Continue His Narrative

For: David J. Bryson
York, PA
Organizer: Friends of Dave
Help Dave Bryson to Continue His Narrative (David J. Bryson)
$4,625
of $15,000 goal.
Raised by 62 donors
30% Complete

The Story

Dave Bryson always has been a gifted narrator of his own condition and the world that swirls around him.  He's defined by his humor and intelligence. He's demonstrated those qualities his whole life - and he continues to be Dave.

But soon, that ability will be stripped away as ALS continues its relentless advance and Dave is left without the ability to ask for the most basic needs of comfort, nutrition and hygiene from his family, friends and medical staff.

ALS has diminished Dave's gift of communication to the point that he can now only relay information by using his right thumb alone to text or upload his life on his cell phone. It’s painstaking.

There's an immediate and attainable answer in an assistive technology called EyeGaze (click here to see it in action). While its Medicare compliant, there's a daunting series of requirements (Dave being home and not in a rehab center, etc.) that's thwarted the process. Grant requests to over-burdened non-profits can be lengthy.

But Dave needs your help as soon as possible: $15,000 to permanently purchase an Eyegaze unit, software and training. That's it.

In other words, if you pledge a minimum of $20 to Dave, along with 749 other friends (Dave’s got 793 on FB, alone), it’s all attainable.

Another key – share this post.

You're on the YouCaring crowd-funding site because it avoids the 5% processing to Dave charged by similar commercial sites (although it will suggest a donation fee to you that you can change). It's legitimate, safe and reliable. This won’t be the last communication you'll see. Stay tuned for more on Facebook and #AttainableDave.

Please act in this moment. It's not all that often that something so incidental as clicking a button can have such a profound effect - but it does.

For Dave.

Fundraiser Updates

Posted on March 21, 2017

Posted on March 21, 2017

Communicating to others when you have ALS can be frustrating on several levels.

As I type this with my thumb, my ability to do so is fading rapidly. The coordination and mobility of my left arm and hand are gone. Stage props if you will.

My right arm has limited movement, and coordination is noticeably weakening faster the last few weeks.

The worst part for me is, my brain is firing on all cylinders, and is actually in hyperdrive. I've got so much to say, so communication is my last connection to the world. It's one of the last gifts I can give to anyone.

I've always been a creative person and never a big reader, but I've found writing a creative outlet. I see it as gift given to me where other abilities have been taken away.

So here goes...

While at Hopkins ALS Clinic, Speech Therapy showed us a variety of assisting communication devices. They basically were shown in the order of disease progression. Last of which was called Eye Gaze Technology. I think I first saw this on an episode of Star Trek as s youngster. Funny how a few writers of a TV show came to be a reality. Not the first, and certainly not the last.

It's basically a PC that is calibrated to my retinas, which gives me full control of all programs simply by looking at them. While there that day, I had the opportunity to test drive it and kick the tires. I gotta tell you, it's pretty cool.

My ability to stay connected on Facebook, continue to entertain, impart words of
wisdom (aka wise-ass-dom), and of course, the occasional heartfelt thoughts running through my head.

I'm writing this reluctantly.

Those of you who know me, are aware I hate asking for help. I will do everything I can to find a way to get it done. Don't get me wrong, I ask for help, but only when I've exhausted the other options. Not in a stubborn way (admittedly, maybe a little), it's more of a determination/pride thing. Divide and conquer when necessary, but work as a team in the end. It's how many of us were raised.

So many of you contributed to the GoFundMe campaign early last year which was a phenomenal success! Thanks to all that participated in giving, it really helped to offset the out of pocket expenses and was much appreciated. That said, those funds were used for a variety of things.

A couple of friends got together and wanted to ensure my continued communication was quick and attainable, so they did the research and have put together a new campaign with a very specific purpose in mind.

I'd appreciate it greatly if you would go to our YouCaring page and see how easily we can solve this challenge.

Thanks for all the love so far, and for what's still to come.

Nothing but love,

Dave


Posted on March 15, 2017

Posted on March 15, 2017

To all of David's friends -
When you see Dave, his good humor and intelligence are as evident as ever, but please note the lack of correspondence by him lately, as it gets tougher to communicate by text or Facebook. If each of his FB friends would donate $20, it would go a long way to helping Dave interact with his family, friends and medical staff with EyeGaze technology. 
Thanks to those who have donated, and thanks to those who will.

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