Help David beat his Multiple Sclerosis

For: David Karczewski
North Carolina
Organizer: David Karczewski
$1,345
of $15,000 goal.
Raised by 20 donors
8% Complete
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The Story

was diagnosed with Multiple Sclerosis in 1998.  During this time my family has had to accommodate me and my illness. My children grew up not knowing if Daddy would ever feel good enough to play from day to day. My wife has had to work double duty to keep our household together and taking care of me. One thing this disease has taught me is that there are things you must except and if an opportunity arises that can give you hope for your future you must jump at it.I have done my research, I have been through hell and I need to make a change. I am sick and tired of being sick and tired. I am hoping this will be the blessing my family and I have been looking for. The only problem is that Insurance companies will not cover this procedure.
Family and friends of David Karczewski are raising money to pay for uninsured medical expenses associated with Stem Cell transplantation for his MS .

Fundraiser Updates

Posted on November 29, 2016

Posted on November 29, 2016

Today is Giving Tuesday if you are looking to help someone in need please help me get a new lease on life. I am just three months away from my cut-off date and I am only one quarter from my goal. I am pleading with you to not pass me up. If you can not give please share this with people who you think could help me get a life changing treatment. Time is running short and my options are shorter. I thank you for your consideration. And for those who have donated in the past I am forever grateful to you. #Giving Tuesday

Posted on September 1, 2016

Posted on September 1, 2016

An update and to let everyone know how much this disease effects and controls our life.

David is currently having a mild exacerbation (flair) of his MS.

On Friday I noticed a slight drooping of David's left eye, I chalked it up to him being tired. He's been sleeping in in the mornings, taking more naps, falling asleep earlier at night, etc. When he's tired, the symptoms are more pronounced. On Tuesday, he went to the Dr. to get his monthly infusion of Tysabri and mentioned it to his nurse. She immediately called in the Neurologist and he did his standard tests that we can do in our sleep. He suggested we start the low dose steroid taper that was at home for just this occasion. (The idea is to hopefully catch it early so that he doesn't have to be hospitalized and given high IV doses of steroids)
Tuesday, he felt sick which is normal from his infusion, then on Wednesday morning, he started the steroids. By Wednesday lunch time, just a few short hours he was miserable. Sick to his stomach, tired, weak, etc. By this morning, Thursday after just 24 hours on the steroid, he is so weak he can't walk unassisted, just taking a shower took all the energy he had, confusion, inability to concentrate, stumbles on his words, etc. Tuesday he left the house fine (or mostly fine) and today, he didn't have enough energy to take a shower, come to the store with me, or even do the laundry.
The goal is for this to pass quickly (hahahaha) and return to our lives to what we consider normal. The steroids are a 12 day course that slowly declines in amount, so we shall see. I'd be surprised to see him better by the end of those 12 days. Something will never be the same when this flair is over. That's the bad of it, he never fully recovers. Something is always worse then prior to the flair. The good would be if it's minimal and most people don't notice. Right now he's relying on his cane to get him through the house, but that can change at a moment's notice and he may be using the wheelchair.

This flair, this week, this uncertainty, is why he wants the stem cell therapy. He wants a normal life. He doesn't want to be sick or face the daily uncertainty of this horrible disease. He wants to be able to keep his word when he tells the kids or me he will do something for us. Today he was going to watch my store so I could take our daughter Dominique to her internship and back to school afterwards. He didn't have the energy to even just sit in the store, let alone drive, so he stayed home, the store stayed closed, and I continued about our day. If I had a regular job, I wouldn't have been able to miss it (at least not for long before it became a problem). Dominique would have had to drop out of her internship since at this time she can't drive. This disease has been wrecking havoc on all of our lives for 18 years. We all want something better. We all deserve something better. I don't want to have to have my daughter text me all day long asking how daddy is. No child deserves to worry about that. I don't want to have to wonder how to change all our events, errands, and life to accommodate this disease once again. I'm tired of watching my husband decline and be miserable and not be able to do a damn thing about it. It sucks!!

Posted on August 3, 2016

Posted on August 3, 2016

This is an open letter from My wife Jennifer. I love this woman very much and want to spend many more Good years with her. And she writes.

MS is a family disease. My husband is the one who experiences the symptoms, but our daughters and myself also are greatly effected. Day to day, minute to minute, things can change without notice. The girls grew up wondering if daddy was going to be able to join us at the park, or having to wait or reschedule things they wanted to do because daddy didn't feel good. They spent a lot of time in hospitals and dealing with things no little child should. I was left to comfort and pick up the pieces, as well as play both roles on many occasions while also balancing a job, cleaning and cooking, and taking care of my sick husband, visiting doctors and hospitals. Jobs suffered, friendships suffered, family suffered, our marriage suffered.

MS attacks the central nervous system. It impairs speech, thought, mobility. It causes nerve pain, dizziness, nausea, confusion, fatigue. These are daily; during a "flair up" these symptoms progress rapidly. Numbness, confusion, inability to control motor function, slurred speech. David's symptoms often look and present similar to those of a stroke. Often times it can take weeks or months for him to return mostly to normal, however the MS always takes something from him each time.

Now he has a chance to get some control over an uncontrollable disease/situation. This procedure will not be easy. He will spend 3 months in a hospital, with a great deal of time in isolation. His immune system will be completely wiped away and he will be at great risk. He'll be sick and miserable, but in the end David is looking for some relief. He's hoping for a halt to the progression of disease and hopefully some reversal of symptoms. He wants a normal life, one that would allow him to work a real job again.

We appreciate everyone who donates or has already. If you are unable, we understand, could you instead help by sharing. David's goal is to get healthy so our grandchildren don't have to experience the same childhood our daughters did. He'd also like to be able to walk his girls down the aisle and dance with them when they get married. Thank you all!

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