Danica Jane (22 months) was diagnosed with a rare brain cancer called Atypical Teraroid Rhabdoid Tumor (ATRT), Grade IV. It is a very aggressive, very deadly cancer. Only about 150 to 200 people are diagnosed with this kind of cancer annually. The tumor was discovered unexpectedly on November 24, 2017, after Danica had been inconsolably crying for several weeks off and on, pointing to her head and ear and saying "owie." She had displayed no neurological symptoms, so the MRI was just precautionary, but as it turned out, it was the right call--thanks to her mama's persistence and a very kind pediatrician who believed her. The tumor was surgically removed the following Tuesday at Seattle Children's Hospital; however, removing the remaining microscopic cancer cells surgically would be like scraping sand out of angel hair.
Danica has started a very aggressive chemo regimen that will require a "stem cell rescue." The treatment began with a spinal tap, a central line IV in her heart, and a stem cell harvest. The chemo will last six to nine months and will likely end with proton radiation. We were told survival rate with children that have this cancer is about 50%.
Danica is under the care of some of the best doctors in the world. She has a team of roughly 50 neurologists, oncologists and pathologists actively monitoring, treating and consulting on her case. As far as hospitals go, Seattle Children’s is the Disneyland of hospitals. In addition to some of the best doctors in the world, there are play areas, family areas, Starbucks, massages for parents, people who come to play and entertain the kids, people who leave gifts for kids, and just generally an amazing staff who love and care about their patients.
Funds raised on this site will go to help cover the Danica's medical costs not covered by insurance, and the Taylor family's travel and living expenses, as they will need to remain in the Seattle area for several months away from their home in Skagway, Alaska.
Please share far and wide. Think of Danica, her mama Audrey, her daddy Matt, and her big brother Gus, who desperately misses his little sissy. We covet your prayers and support. You can contact me (Amber) with any logistical questions.