Help For Dan

For: Dan Hegyi
Timi?oara, TM, Romania
Organizer: Asociatia Ceva De Spus
€9,519
of €8,500 goal.
Raised by 135 donors
100% Complete

The Story

Inside Dan’s head things happen a bit differently sometimes.

Normally, any thought, any action is controlled by neurons. Neurons send out electrical signals from one to another, forming a communication chain. One neuron receives the information and it passes it on.

Inside Dan’s head, sometimes all of the neurons send out signals, but none of them receives them.

That is how an epilepsy seizure occurs. Dan suffers from this condition since he was 3 months old, and it affects his short term memory, attention span, problem solving and anticipation skills.

Although Dan’s IQ is high, his condition affects his ability to work.

Seizures are hard to anticipate. They begin with stomach aches, nausea, followed by a loss of consciousness, which leads to him falling down and injuring himself, wherever he may be at that time. During the seizure, his muscles spasm painfully and his whole body shakes.

Once the seizure has passed, Dan has difficulties speaking, he is dizzy and his vision is blurry.

The frequency of the seizures can be fairly high, up to three per day.

In 2012, during a seizure which occurred in the staircase of the building where he lives, Dan fell, hit his head and ended up in a coma at the hospital. A brain surgery saved his life at that moment, but Dan lost a portion of his brainpan and epilepsy continues to endanger his life.

Very recently, Dan found out that all these problems could be solved by a surgery performed at a hospital in Budapest. All he needs is money and courage.

A successful surgery would give back to Dan his health, dignity, safety and capacity to work.

Things would begin to happen as they should, inside Dan’s head. 

You can also donate...

  • via paypal [email protected]
  • via direct transfer to the following bank accounts (account owner: Asociația Ceva de Spus)
EUR account: RO36 BACX 0000 0009 4543 5001
USD account: RO09 BACX 0000 0009 4543 5002

Thank you :-)



__________________


Uneori în capul lui Dan lucrurile se întâmplă diferit.

În mod normal, orice gând, orice acțiune sunt controlate de neuroni. Aceștia trimit semnale electrice de la unul la altul, ca într-o comunicare în lanț. Un neuron primește informația și o transmite mai departe.

Uneori, în capul lui Dan, toți neuronii transmit semnale, dar niciunul nu recepționează.

Așa se manifestă o criză de epilepsie. Dan se confruntă cu această boală de la vârsta de 3 luni, afectată fiindu-i memoria de scurtă durată, atenția, rezolvarea de probleme, anticiparea.

Deși IQ-ul lui Dan este ridicat, boala îi afectează capacitatea de a munci.

Crizele sunt greu de anticipat. Debutează cu durere de burtă, greață, urmate de pierderea bruscă a cunoștinței, ceea ce duce la cădere și lovire, oriunde s-ar afla. În timpul crizei, mușchii se încordează dureros, corpul tremură spasmotic.

La revenirea din criză, Dan are dificultăți de vorbire, amorțeală, vedere încețoșată.

Frecvența crizelor a fost mare, ajungând și la trei pe zi.

În 2012, în urma unei crize în scara blocului, Dan a căzut, s-a lovit la cap și a ajuns în comă la spital. O operație pe creier i-a salvat viața dar Dan și-a pierdut o parte din calota craniană, iar epilepsia continuă să îi pună viața în pericol.

Foarte recent, Dan a aflat că toate aceste probleme se pot soluționa cu o operație la Budapesta, pentru care e nevoie doar de bani și curaj.

Reușita operației îi va reda lui Dan sănătatea, demnitatea, siguranța și capacitatea de a munci.

În capul lui Dan lucrurile se vor întâmpla așa cum trebuie.

Poti sa donezi si...

  • via cont paypal [email protected]
  • într-unul din conturile deschise de Asociația Ceva de Spus:
Cont LEI: RO63 BACX 0000 0009 4543 5000 
Cont EUR: RO36 BACX 0000 0009 4543 5001 
Cont USD: RO09 BACX 0000 0009 4543 5002

Multumim :-)

Fundraiser Updates

Posted on July 19, 2017

UpdateImage

Posted on July 19, 2017

Dan’s journey to getting better

Dan started his journey to getting better!

He checked in yesterday at the National Institute of Neurosurgery (OITI - Országos Idegtudományi Intézet) in Budapest where he will have his surgery. As a first step, he will undergo a period of 8-10 days of monitoring, during which he will be under constant care by a great team of doctors while his family is by his side :-)

The success of the surgery depends also on detailed understanding of the center of seizures and unfortunately it requires Dan to go through a seizure, under medical surveillance. We hope this will be one of the last ones, for a very-very long time!

Following the monitoring phase, the surgery should be scheduled in about 3 weeks from now.

A big thank you to each and every one of you for helping us raise money for Dan! The cost of these first 8-10 days of monitoring is around 2,300 EUR and we would not have managed without your generosity!

We’re still a bit short of the total amount but grateful for the 6,300 EUR we raised so far. If you think you can help us get to our target of 8,500 EUR, here’s the details:

#HelpForDan

- Donate: www.helpfordan.info

- Join: www.facebook.com/groups/HelpForDan/

- Share - it costs nothing, it means a lot!

-----------------------------------------------------------------------------------------------------------------------

Dan e pe cale sa se faca bine

Dan e deja pe cale sa se faca bine!

Dan a fost internat ieri la Institutul National de Neurochirurgie (OITI - Országos Idegtudományi Intézet) din Budapesta unde va urma sa fie operat. La inceput, Dan va avea o perioada de monitorizare de 8-10 zile, timp in care va fi sub ingrijirea permanenta a unei echipe excelente de doctori, in timp ce familia ii este alaturi :-)

Succesul operatiei depinde de o intelegere detaliata a focarului care genereaza crizele de epilepsie la Dan si din pacate Dan va trebui sa mai treaca printr-o criza, de data asta sub supraveghere medicala. Speram din tot sufletul ca aceasta criza sa fie una din ultimele, pentru o perioada foarte lunga de acum incolo!

Dupa faza de monitorizare, ne asteptam ca operatia sa fie programata in 3 saptamani de acum incolo.

Mii de multumiri pentru fiecare dintre donator! Costul acestor 8-10 zile de monitorizare este de aproape 2.300 EUR si nu ne-am fi descurcat fara generozitatea fiecaruia dintre voi.

Mai avem putin pana ajungem la suma necesara dar totodata suntem recunoscatori pentru cei 6.300 EUR stransi pana acum. Daca credeti ca ne puteti ajuta sa ajungem la cei 8.500 EUR de care avem nevoie, detaliile sunt mai jos:

#HelpForDan

- Doneaza: www.helpfordan.info

- Liciteaza: www.facebook.com/groups/HelpForDan/

- Share – nu costa nimic, conteaza enorm!


Posted on July 15, 2017

UpdateImage

Posted on July 15, 2017

Friendship stories – Eli & Dan

Eli has many roles and lots of stories. She is co-president at Asociatia Ceva De Spus. She is also in the board of EPSA, the European Platform of Self-Advocates. In her day-to-day, she’s a close friend of Dan.

The first 23 years of Eli’s life were different from most people’s. Having been abandoned at birth, she grew up in state institutions, where day-to-day life is just different – work is tough, food is scarce, bullies win and the weak… well, they suffer.

Eli carries all these stories with her, but also beautiful friendships, a strong determination to live independently and deep empathy for people in need. It is because of her history that she is determined to help Dan raise money for his surgery by making beads bracelets and selling them for 6€ on www.facebook.com/groups/HelpForDan/.

Each of the 20 brightly-colored, handmade bracelets takes a whole day to make but Eli doesn’t shy away from this. One thing she’s learned while in institutions and she’s carried with her ever since is that she likes work – it brings her peace.

#HelpForDan

- Donate: www.youcaring.com/helpfordan

- Join: www.facebook.com/groups/HelpForDan/

- Share - it costs nothing, it means a lot!

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Povesti despre prietenie – Eli & Dan

Eli are multe roluri si multe povesti de spus. E co-presedinta Asociatiei Ceva De Spus. E si membra in echipa de conducere EPSA, Platforma Europena a Autoreprezentanților. In viata de zi cu zi, e prietena apropiata a lui Dan.

Primii 23 de ani din viata lui Eli au fost foarte diferiti de ai altor oameni. Abandonata la nastere, a crescut in institutii unde viata de zi cu zi e diferita – munca e grea, mancarea putina, cei mai tari castiga si celor mai slabi… le e greu.

Eli pastreaza toate aceste povesti in ea dar are si prietenii minunate, a vointa de fier de a fi independenta si o intelegere profunda pentru oamenii care au nevoie de ajutor. Tocmai datorita acestor experiente Eli e hotarata sa il ajute pe Dan sa stranga banii necesari operatiei, facand bratari de margele pe care le vinde pentru 6€ pe grupul www.facebook.com/groups/HelpForDan/.

Eli lucreaza o zi intreaga ca sa faca fiecare din cele 20 de bratari colorate, dar nu renunta. A invatat cand era in institutii ca ii place sa munceasca, pentru ca munca o linisteste. 

#HelpForDan

- Doneaza: www.youcaring.com/helpfordan

- Liciteaza: www.facebook.com/groups/HelpForDan/

- Share – nu costa nimic, conteaza enorm!


Posted on July 13, 2017

UpdateImage

Posted on July 13, 2017

Friendship stories – Simona & Dan

Simona knows Dan for a long time. They are colleagues at Asociatia Ceva de Spus and longtime friends.

Simona is also a true fighter. Not being able to see herself, she is actively fighting to improve the lives of visually-impaired people – not always an easy thing to do in Romania.

She is also fighting for Dan, and she is doing it with… apricot jam:-) Simona made it herself 2 days ago, 'with lots of love and no preservatives' as she says, when in Timisoara (her hometown) was an unbearable 40°C.

She posted it for sale on https://web.facebook.com/groups/HelpForDan/ - a small jar of ‘Smile for Dan’ apricot jam goes for around 3€ and a large jar is around 5€.

:-)

#HelpForDan

- Donate: www.youcaring.com/helpfordan

- Join: www.facebook.com/groups/HelpForDan/

- Share - it costs nothing, it means a lot!

-----------------------------------------------------------------------------------------------------------------------

Povesti despre prietenie – Simona & Dan

Simona si Dan se stiu de multa vreme. Sunt colegi la Asociatia Ceva De Spus si prieteni vechi.

Simona este o luptatoare adevarata. Fiind nevazatoare, Simona lupta sa imbunatateasca vietile oamenilor cu probleme de vedere – un lucru nu intotdeauna usor in Romania.

Ea lupta si pentru Dan, si a ales sa o faca cu… gem de caise :-) Facut de ea insasi “cu multa dragoste si fara conservanti”, acum 2 zile, cand in Timisoara erau 40°C.

Le-a postat pentru vanzare pe grupul https://web.facebook.com/groups/HelpForDan/ - Borcanele mici de dulceata de caise “Zambet pentru Dan” de la 15 lei și cel mare de la 25 lei.

:-)

#HelpForDan

- Doneaza: www.youcaring.com/helpfordan

- Liciteaza: www.facebook.com/groups/HelpForDan/

- Share – nu costa nimic, conteaza enorm!

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