Help Jaxon Diaz kick leukemia's butt!

For: Cynthia and Joe Diaz
Plant City, FL
Organizer: Mary Buitrago
$15,831
of $50,000 goal.
Raised by 163 donors
31% Complete
Donate Now

The Story

On Monday, July 12, Jaxon was admitted into St. Joseph's children's hospital for a blood transfusion. Since then he has been diagnosed with Leukemia.  With treatment his prognosis is good, and we have no doubt that he will kick this!  He will be in the hosptial, getting treatment for at least the next 5 months. 
Cynthia and Joe will have a lot of extra expenses in the coming months.  Not just medical expenses, but food, gas and other needs for the family.  They appreciate any amount you can donate.  They could also use some gift cards.  If you want to contribute a gift card, they would appreciate Visa, as well as:
Whole Foods
Target
Shell gas station 
Carraba's 
These are all close to the hosptial and will be convenient.  Thank you!
please email Maritza at ritzbitz18@hotmail.com and she will pass on mailing info for checks or gift cards.  
Cynthia and Joe appreciate your support, prayers and positive thoughts as they begin this journey!  
Please share this with family and friends!

Fundraiser Updates

Posted on August 28, 2016

Posted on August 28, 2016

Heres a recap of the last month since Jaxon's visit to ICU:

Broad spectrum antibiotics helped fight off a variety of infections including CDIFF.  His Buela and Beulo came to visit from DC to help with Joe Thunder returning to school. This has been challenging to JT especially with returning to school, although he has a great support system with the administration and his school mates. WE THANK YOU!
Once Jax got through the quarantine of CDIFF, he was on the road to recovering from the chemo. He bounced back rather quickly (because he's tough as nails)! He seriously blows our minds with his stamina and cheerfulness.
I don't know if you all have noticed, but he just can't seem to wipe the smile from his face, even after pulling out his port access!!?  Holy guacamole that was a real mess! His poor sensitive skin has really taken a toll from the pachyderm tape that covers the access needle and he can't stop picking and pulling at it. 
Luckily while Buelo and Buela were in town Jax's levels (ANC, hemoglobin, and platelets) went up high enough that he got a surprise discharge. We got a 7 day reprieve to spend some time together out and about! 
On August 10th he had a bone marrow biopsy, and the results were astounding.  The chemo was super effective in fighting the Leukemia, giving us all an immense amount of hope for the rounds to come. 
August 15th Jax was admitted for his second round of Chemo. All was looking good, until his port was "infiltrated".  This means the needle dislodged inside his port, and the chemo was misrouted, creating a large bulbous lump under his skin at the port site.  Rapid de-accessing and draining of the bulb was the fix, and the chemo started over again.  Needless to say, accessing and de-accessing that port is anxiety-inducing, and Jaxon just really hates it.  Poor guy, they've even started preceding this with adivan, which doesn't really do much at all.
That round ended on Friday Aug 20th, and since then he's been doing great.  His port needle came out again, though, so the fluids from his IV created another boob/bulb followed by the dreaded de-access and re-access of the port.  Jaxie threw a wondrous fit, crying so hard that he woke up covered in petechiae.  He also has a slightly elevated heart rate, so an EKG has been scheduled to check that there isn't fluid build-up around his ticker.  Aside from this, his rebound this time has been quick and strong, and his blood levels are all looking really really good.  If the EKG turns out ok, there's a chance he'll be discharged again until his 3rd round of chemo starts, so we'll cross our fingers and our toes!

Cynthia has been posted up at the hospital with Jaxon every night, keeping our tiny champ company and making sure he doesn't fall out of the bed or feel alone or scared.  She's a trooper, even though the cabin fever is getting intense!  Big Joe and Joe Thunder have spent loads of time there, too.  Sleepovers and dance parties, snack time and toy-room visits abound.

The support of friends, family, coworkers, nurses, doctors, customers, heck even strangers, has been an incredible driving force.  It's kept all of our spirits high and has given us immense amount of strength.  Again, words cannot begin to describe our gratitude.  FIST BUMPS ALL AROUND!

Posted on August 1, 2016

Posted on August 1, 2016

Jaxon had a rough and scary night, but he just woke up in the ICU and fist bumped the nurse!
If you thought it wasn't possible for Jaxon to get any cuter, you were wrong!  Check out his newest photos.  Also, follow Jax Trax on Facebook for updates from Joe and Cynthia.
Thanks for the ongoing support and prayers for Jaxon! 

Posted on July 27, 2016

Posted on July 27, 2016

Hello Jaxon Diaz supporters! It has been two weeks since Jaxon's initial Leukemia diagnosis. I think it would be an understatement to say these two weeks have been a challenge for the Diaz family. However, Jaxon and his family are feeling our outpouring of love, support, and prayers. They are so grateful. Thank you for donating and for sharing this page. Remember that the more we share Jaxon's story, the better! Every donation and every share helps, and shows the Diaz family they are not in this alone. So far this page has been shared 700 times! Jaxon has received donations from 99 supporters and has received donations of all sizes, from $5-$500. Every dollar helps and is appreciated.
Thanks to the generosity of friends, family, and even friends of friends and family, we have nearly reached our initial goal of $10,000. That is amazing! We are increasing the goal, as the family continues to navigate through this uncertain time. As you can imagine, Jaxon's treatment, specialists, and long hospital stay, is extremely expensive. The Diaz family is facing 10's of thousands of dollars in medical expenses alone. In addition to those expenses, the family has had to make other numerous, costly changes to their lifestyle. Since diagnosis, Jaxon hasn't left the hospital, and mama Cynthia has only left for an hour at a time, at the urging of Joe. Then, last week, Joe and Cynthia learned they have to move out of their 100+ year old apartment, as Jaxon is at risk of fungus and mold. This was totally unexpected and is going to be one more challenge for the family to overcome. Their faith and positive energy is remarkable. They know the will get through this, one day at a time. Sometimes one hour at a time. I spoke to Joe on Sunday, and they are so grateful for all the amazing support. They are already brainstorming ways to give back- from donating to pediatric cancer research, to helping other cancer families who are less fortunate. Anyone who knows Cynthia and Joe, would not be surprised that they are already thinking of how to give back, and help others.
Please read Joe's honest, and humble words in a previous update.

Here is an update on Jaxon and the whole Diaz family:
Jaxon has ALM, M7 Leukemia. This is usually the worst type to have unless you have Down's Syndrome. Then it's considered one of the "best" types to have. There is some component of Down's that makes these individuals respond extremely well to treatment. What a blessing!
So far Jaxon (and his parents) have endured:
*placement of an IV line
*Multiple blood and platelet transfusions
*latest platelet transfusion was 7/25, Jaxon is getting another blood transfusion as I write
*2 rounds of antibiotics, just heard from Cynthia that he is getting another round today, due to fever
*2 blood cultures
*2 echo cardiograms
*2 chest X-rays
*bone marrow biopsy
*spinal chemotherapy
The chemotherapy is 24 hours for 5 days straight. Jaxon is off chemo this week, but the side effects are setting in. Jaxon is losing his gorgeous baby hair, but rocking some fun bandannas. The chemo is expected to make him sick, then by the time he feels better, it will be time for the next round of chemo.
Jaxon's next bone marrow biopsy is scheduled for August 10th. The results of that biopsy will determine his next round of chemo. Please say a prayer that he is responding to chemo! Jaxon's older brother, Joe Thunder, starts school that same day. Please continue to remember him in your prayers!
Jaxon's ANC score determines his risk for infection. Anything under 500 is considered high risk. Jaxon's current ANC is at zero. As I write this, Jaxon is receiving another blood transfusion, and getting IV antibiotics, because of his 102 fever.
The Diaz family feels incredibly blessed to have a team of talented, knowledgeable, and caring doctors and nurses, working together to create and implement a successful treatment plan for Jaxon. He will beat this!
Please continue praying for Jaxon and the entire Diaz family. Keep sharing this page via social media and email. Thank you!

About the Organizer

Report Fundraiser

Report Fundraiser

Please report potential fraud and Terms of Service violations only. Personal disputes will not be reviewed.

We require this in case we need to contact you for further details.*

* YouCaring will not distribute your phone number to any third parties or use it for marketing purposes.

Comments

Supporters

Add Our Donation Widget to Your Site
Grab Our Widget

Help Jaxon Diaz kick leukemia's butt!

Grab Our Widget
Donate Now