Help Jaxon Diaz kick leukemia's butt!

For: Cynthia and Joe Diaz
Plant City, FL
Organizer: Mary Buitrago
Help Jaxon Diaz kick leukemia's butt! (Cynthia and Joe Diaz)
$18,511
of $50,000 goal.
Raised by 174 donors
37% Complete

The Story

On Monday, July 12, Jaxon was admitted into St. Joseph's children's hospital for a blood transfusion. Since then he has been diagnosed with Leukemia.  With treatment his prognosis is good, and we have no doubt that he will kick this!  He will be in the hosptial, getting treatment for at least the next 5 months. 
Cynthia and Joe will have a lot of extra expenses in the coming months.  Not just medical expenses, but food, gas and other needs for the family.  They appreciate any amount you can donate.  They could also use some gift cards.  If you want to contribute a gift card, they would appreciate Visa, as well as:
Whole Foods
Target
Shell gas station 
Carraba's 
These are all close to the hosptial and will be convenient.  Thank you!
please email Maritza at [email protected] and she will pass on mailing info for checks or gift cards.  
Cynthia and Joe appreciate your support, prayers and positive thoughts as they begin this journey!  
Please share this with family and friends!

Fundraiser Updates

Posted on August 15, 2017

Posted on August 15, 2017

Hello, friends! Thank you for checking in and for your continued support of Jaxon and the entire Diaz family. Joe, Cynthia, Joe Thunder and Jaxon are incredibly strong, positive, and so very appreciative of their blessings; but they are also in need of our continued support!

In early June, Joe and Cynthia learned that Jaxon's leukemia had returned. They were admitted back to the hospital for treatment. The next day, Jaxon started his new battle against leukemia. He underwent surgery at St. Joseph's Children's Hospital of Tampaand so far has had two rough rounds of chemo.  On July 11th Jaxon's biopsy results showed that he is in remission and that the chemo is doing its job!!! Thank you Jesus!!! All his doctors were amazed at how quickly he recovered and how great all his labs look!   Jaxon's next (and 8th) round of chemo is scheduled for August 23rd.

Right after the chemo on the 23rd, Jaxon will undergo his Bone Marrow Transplant.   That chemo round, and his BMT will happen at Johns Hopkins All Children's Hospital in St. Petersburg, a town about 50 miles west of Plant City (the current home of the Diaz family).   After the transplant, Jaxon has to stay in the hospital for a minimum of 100 days, while he recovers and gets observed and checked daily. Eventually, Jaxon will be checked twice per week, and the schedule will slowly be spaced out as he recovers. He has to stay in the St. Petersburg area for a minimum of a year after the transplant.

To keep the family together, Joe and Cynthia have decided to relocate to Tampa for at least the next year. While this move will help them stay together, it still means there will be a ton of commuting for Joe and Thunder. Their new home in Tampa is still a 45 minute drive from the hospital. Joe Thunder is attending a magnet school in Tampa and Joe will be commuting (about an hour and a half!) to Lakeland for work. The boys will be spending a lot of time in the car and using a lot of gas, and they will be in need of easy meals (they frequently use UberEATS). In addition to relocating, commuting, and a long hospital stay, the family needs to replace most of their wood furniture. Once he is released from the hospital, Jaxon will need a sterile environment during his crucial first year of recovery, and wood holds risk for mold and termites.   These are just some of the extra expenses the family is facing during this already stressful time.

The Diaz family feels and appreciates all of our prayers and support!   It was 13 months ago that Jaxon was first diagnosed with Leukemia. It has cost a lot of time, money, and resources to come this far; and there is a light at the end of the tunnel! Please continue to support Jaxon, Joe, Cynthia and Joe Thunder. Whatever you are able to give, please know that it is received with love and appreciation. Please continue to share Jaxon's story and keep the Diaz family in your prayers. Thank you!

Posted on August 28, 2016

Posted on August 28, 2016

Heres a recap of the last month since Jaxon's visit to ICU:

Broad spectrum antibiotics helped fight off a variety of infections including CDIFF.  His Buela and Beulo came to visit from DC to help with Joe Thunder returning to school. This has been challenging to JT especially with returning to school, although he has a great support system with the administration and his school mates. WE THANK YOU!
Once Jax got through the quarantine of CDIFF, he was on the road to recovering from the chemo. He bounced back rather quickly (because he's tough as nails)! He seriously blows our minds with his stamina and cheerfulness.
I don't know if you all have noticed, but he just can't seem to wipe the smile from his face, even after pulling out his port access!!?  Holy guacamole that was a real mess! His poor sensitive skin has really taken a toll from the pachyderm tape that covers the access needle and he can't stop picking and pulling at it. 
Luckily while Buelo and Buela were in town Jax's levels (ANC, hemoglobin, and platelets) went up high enough that he got a surprise discharge. We got a 7 day reprieve to spend some time together out and about! 
On August 10th he had a bone marrow biopsy, and the results were astounding.  The chemo was super effective in fighting the Leukemia, giving us all an immense amount of hope for the rounds to come. 
August 15th Jax was admitted for his second round of Chemo. All was looking good, until his port was "infiltrated".  This means the needle dislodged inside his port, and the chemo was misrouted, creating a large bulbous lump under his skin at the port site.  Rapid de-accessing and draining of the bulb was the fix, and the chemo started over again.  Needless to say, accessing and de-accessing that port is anxiety-inducing, and Jaxon just really hates it.  Poor guy, they've even started preceding this with adivan, which doesn't really do much at all.
That round ended on Friday Aug 20th, and since then he's been doing great.  His port needle came out again, though, so the fluids from his IV created another boob/bulb followed by the dreaded de-access and re-access of the port.  Jaxie threw a wondrous fit, crying so hard that he woke up covered in petechiae.  He also has a slightly elevated heart rate, so an EKG has been scheduled to check that there isn't fluid build-up around his ticker.  Aside from this, his rebound this time has been quick and strong, and his blood levels are all looking really really good.  If the EKG turns out ok, there's a chance he'll be discharged again until his 3rd round of chemo starts, so we'll cross our fingers and our toes!

Cynthia has been posted up at the hospital with Jaxon every night, keeping our tiny champ company and making sure he doesn't fall out of the bed or feel alone or scared.  She's a trooper, even though the cabin fever is getting intense!  Big Joe and Joe Thunder have spent loads of time there, too.  Sleepovers and dance parties, snack time and toy-room visits abound.

The support of friends, family, coworkers, nurses, doctors, customers, heck even strangers, has been an incredible driving force.  It's kept all of our spirits high and has given us immense amount of strength.  Again, words cannot begin to describe our gratitude.  FIST BUMPS ALL AROUND!

Posted on August 1, 2016

Posted on August 1, 2016

Jaxon had a rough and scary night, but he just woke up in the ICU and fist bumped the nurse!
If you thought it wasn't possible for Jaxon to get any cuter, you were wrong!  Check out his newest photos.  Also, follow Jax Trax on Facebook for updates from Joe and Cynthia.
Thanks for the ongoing support and prayers for Jaxon! 

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