Whether you know her as Colleen, 'Tour Mum' or Mrs O, our beautiful mama Colleen has touched the lives of many people across the world.
Her greatest joy has been in the role of "tour mum", becoming a second mum to many people along the way.
Mum has always had a way of attracting the most vibrant, colourful and creative special souls in life, and quickly making them family.
After 4 years of misdiagnosis, September 2017 our beautiful Colleen was diagnosed with a rare degenerative disease called 'Progressive supranuclear palsy'.
"PSP" is a rare neurological condition affecting parts of the brain that control walking, eye movements, balance, speech and swallowing. The disorder results from deterioration of cells in areas of your brain that control body movement and thinking.
There are currently only 1300 Australians diagnosed with PSP, which makes it an incredibly rare, and severely under researched disease.
There is currently no cure.
We have set up a funding page in lieu of gifts for Colleen's 70th birthday.
Around the clock care is rapidly becoming vital, and the lack of research means financial assistance from the Australian government medical system is completely absent. As a family it has become increasingly difficult to manage alone.
We have invested mama in to a wonderful apartment within a care Village, where we have the opportunity to access carer's packages, and medical facilities. Your generous donations will help to contribute towards around the clock carer fee's, including overseeing medicine 3 times daily, cleaning, food prep and grocery shopping, medical visits, specialist visits, specialist equipment and more.
Every contribution counts while we continue to push for greater research and support into this heartbreaking disease. Thank you for your love, friendship and generosity.
If you wish to learn more about this rare disease, please visit these links for a greater understanding :
Jessica & Lisa, Joseph and Julian