Posted on May 18, 2018
Hey Everyone! I wanted to give you an update about my health. This month is EDS Awareness Month, (Ehlers-Danlos Syndrome) and I am happy to announce that I have been cane-free since October 2017! Thanks to Dr Gundry’s book, The Plant Paradox, I removed lectins from my diet, which changed my life!
Many of you know how much I credit Dr Gundry for my recovery, and with the help of some folks, I was put in touch with him and he agreed to take me on as a patient! I met with him a few weeks ago, and I was blown away. He is so kind, so smart, compassionate and SO SMART. He changed my protocol of what I was doing based on test results, and told me I have Lupus. He told me we could manage it through diet without a problem and I believe him. But, yea… I have Lupus too. Great. I am just going to do whatever he says, because he is a genius and has figured out things about me that no one else could.
He is also the world expert on the nutritional treatment of Alzheimers, and I have the APOe4 gene. After my last NeuroQuant brain scan it was discovered that I have brain atrophy and the gray matter volume of someone with Alzheimers. Two months ago, I had a conference call with two other doctors to decide if I had inhalation-based Alzheimers worsened by head trauma. It was decided that I have areas of severe atrophy which have not yet turned into Alzheimers. They believe the gray matter volume can be increased by hyperbaric oxygen chamber treatments, because they have seen it happen. So, there is hope for my brain and my memory improving, but I have to do a bunch, (25-75), of hyperbaric oxygen chamber treatments, which of course, is not free. Yay!!!!! So far, I have done two treatments. One in a canvas unit, one in a steel unit.
One of the brain doctors wanted me to get checked for scoptic sensitivity syndrome, also known as Irlen Syndrome, and of course I have that too. Of course I do. You can read more at Irlen.com. The cool thing is, is that I had no idea how much my reading was screwed up because of it, as well as my depth perception and agitation levels. I was exhausted all the time because so many of my internal resources were being used just trying to decipher information. Through testing, it is discovered which exact colors in the spectrum are offensive to your brain, and they use special glasses catered to your preferred tint to filter those colors out and calm your nervous system. They are even able to reverse dyslexia through the use of color filters and overlays since color affects the way the brain stem interprets information. Your nervous system starts to heal and your tint changes. It is really cool, and it really works. Wearing these lenses is GREAT FOR PTSD.
I am currently in Los Angeles working on the record, but I got pretty sick from stress, so I am waiting to record my vocals. My sinuses are done and I am super congested. I am a walking auto-immune condition and the toxicity of the Los Angeles air is not helping me. I had to replace the producer of the record myself, and the stress was a bit too much. He had not successfully managed the budget properly as well as other things and now we are back to fundraising to make up the difference. We are looking for a few folks who can fill the financial contribution role of Executive Producer to help finish off the record. Respond here if interested. The record sounds AMAZING and everyone I play the rough mixes for freaks out!
That is the long and the short of it. My apologies for not doing more updates, but it is exhausting talking about myself. My whole life revolves around just trying to feel better. I work so hard on myself all the time and I am tired of it. I have made serious breakthroughs but it is not over yet. I really cannot wait for that day when I wake up and say, “Hey, I feel pretty good.”
Thank you everyone for your support and contributions, for I would not have made it this far without you! *and special thanks to all the new fans who just discovered Devil Doll...
Love, Colleen xo