Caring for Ciara and her fight against Prader Willi Syndrome

For: Ciara Elise Kerrigan
Red Bank, NJ
Organizer: Middletown South Football Alumni Association
Caring for Ciara and her fight against Prader Willi Syndrome (Ciara Elise Kerrigan)
$10,075
of $10,000 goal.
Raised by 177 donors
100% Complete
This fundraiser is not active at this time.

The Story

Ciara Kerrigan was born with a rare life threatening genetic disorder known as Prader-Willi Syndrome (PWS). Individuals with PWS have Hyperhaglia (excessive appetite), decreased calorie utilization due to low muscle mass and hypotonia. The urge to eat is physiological and overwhelming; even with constant vigilance and behavioral intervention it can be difficult to control. The inability to control food intake is often the biggest obstacle keeping those with PWS from living independently. Individuals with PWS must be supervised at all times in all settings where food is accessible. Strict environmental control and constant supervision are the only ways to prevent life-threatening overeating and extreme obesity at present.

Additional challenges in PWS include sleep disorders, hormone abnormalities, scoliosis, dental issues, and skin picking. The management and treatment of the psychiatric and behavioral therapy, environmental control, and medication may be needed. Due to the severity of this condition, as well as her developmental issues, Ciara will require medical treatment, supervision and care for the rest of her life. THERE IS NO CURE.

Ciara's father and former Middletown South Football player, Brian Kerrigan (Class of 1992), has had sole custody of Ciara and her sister Kayla since August of 2016, caring for both of them on his own while working as a Sergeant with the NJ State Police. The financial burden caused by his daughters disorder has severely impacted his family. THEY NEED YOUR HELP.

Advisors Mortgage Group, LLC will be sponsoring a fund raiser hosted by The Middletown South Football Alumni Association on Sunday, May 21st, 2017 at the Dublin House located at 30 Monmouth Street, Red Bank, NJ to support Ciara from 4 to 8pm. To purchase a ticket, for every $40 donation you make, your name will automatically be added to the guest list. Be sure to include your name when donating! Tickets include special drink prices (please note it is a cash bar) and free appetizers. Entertainment will be provided by Brian's band, Suspended Justice.

All donations will be forwarded to support the Prader Willi Syndrome Association NJ Chapter and to assist with providing life saving research, crisis and family support, medical and new parent support.

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