Reunion for children with Progeria 2017

For: Children with Progeria
Oslo, Oslo, Norway
Organizer: Miss Skoom
Reunion for children with Progeria 2017 (Children with Progeria)
$25,000 goal
0% Complete

The Story

in Oslo, Norway, August 24-29


Progeria is one of the rarest disorders in the world. It’s a disease that affects less than one in eight million children. At the present moment, we know of 123 children who have Progeria – in the entire world. 24 of these kids live in Europe.

It's important for both the Progeria child, and their family members, with reunions. To be able to talk to others who understand just what you are going through, is priceless.

We arrange a week of fantastic adventures and activities for them, and do everything to make sure they forget about the illness when they come to the reunion.

Many of the families struggle financially, because having a sick child takes such a toll. When we invite them in to the reunions, we make sure everything is paid for (flights, hotel, transportation, food, events etc), so they don't have to worry about a thing - so they can do nothing but relax for a whole week. There are many kind souls who help us when we arrange reunions - and YOU could be one of them!

In order to give the kids a one-of-a-kind week, we arrange awesome events, and throw one heck of a farewell party on the last evening. The party is the most important event of the reunion, as it is the children's last chance to be together. We always know that next year at least one chair will be empty. Just since last reunion in October, we have lost 3 of the European children.. 

Now we need YOUR help to make this party an unforgettable one! We need funds for the party, hotel and transportation, still.

If we reach our goal, and then some, whatever is left we will use to buy toys and activities for the reunion, print reunion memorabilia for them to take home, shoot & print family portraits and more. 

Progeria children go through a lot of bullying and pain in their life, so it’s important for them to have something to look forward to every year. This is a very important week for them, because they meet with their best friends – who are just like they are.

Help us give these deserving children and their families a week they will NEVER forget!

Thank you!

- Miss skOOm


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