Burton Family - Lupus: A Wah Dat

For: Burton Family: Chris, Brianna, Coltrane and Garvey
New York
Organizer: Charisma Ross
Burton Family - Lupus: A Wah Dat (Burton Family: Chris, Brianna, Coltrane and Garvey)
$23,333
of $35,000 goal.
Raised by 256 donors
66% Complete

The Story

In 2012, Chris was diagnosed with lupus. Over the past 5 years, he has been in and out of the hospital receiving treatment for this disease. During this time, lupus has attacked his kidneys, lungs (blood clots) and skin. In spite of all the pain, doctor visits, and medication, Chris has not allowed this disease to define him. 

Chris attended Davidson College, graduating in 2008. While at Davidson, Chris was involved in many campus activities. He was President of the Student Government Association and an active member of the Alpha Phi Alpha Fraternity Inc. Upon graduation from Davidson, Chris dedicated his time, talent and resources to teaching, education and social justice in urban communities. Most recently, Chris has been a high school Special Education/English teacher in Brooklyn NY. Chris loves teaching, but his doctor has placed him on medical leave until June 2018 while he recovers from his most recent lupus flare up. Chris has had three hospital stays since October 9th, 2017 to treat recurrent pneumonia, surgery, and fight a number of infections due to his immuno-compromised state. Chris is still in the hospital receiving treatment for lupus-related kidney disease. This flare up has been his most severe since his initial diagnosis. 

Illnesses of this magnitude can put a financial and emotional strain on a family. This disease attacks healthy organs resulting in concurrent diagnoses that need care at the same time time. Funds raised will go to out-of-pocket medical costs and other expenses needed to help support a family of four (food, housing, gas/car maintenance, childcare) while Chris is on medical leave. Let us come together to bless and encourage the Burton family. #Burtonsbeatlupus

Chris and his wife Brianna (Davidson College Class of 2011) live in Brooklyn, NY with their two sons (Coltrane, 2 and Garvey, 1). 

Fundraiser Updates

Posted on December 12, 2017

UpdateImage

Posted on December 12, 2017

Thank you everyone for your gifts, prayers and acts of kindness! By God’s grace, Chris was discharged on December 11th. His kidney biopsy confirmed that he has proliferative lupus nephritis, basically kidney disease due to lupus. However, it’s not as serious as we first thought. The minimal damage that was done will be reversed once his lupus is controlled with his new medication! 

We spent the last few days in the hospital waiting for his INR level (tells how thick or thin his blood is) to become therapeutic. Chris had taken Xarelto, a blood thinner, since he had bilateral pulmonary emboli (blood clots in both lungs) in 2012. Lupus can make your blood hypercoagulate, or thicker than it’s supposed to be. This can cause blood clots. Since he had a blood clot during this most recent flare even while he was taking the blood thinner, the docs switched his medications and we had to wait for a magic number in order for him to be discharged. He reached that magic number on Monday and we were so stoked to go home!

The boys were really excited to see their daddy in person! Even though there are more steps to recovery, we are thankful that we don’t have to all of that time in the hospital. 23 days is a loooonnnngggg time to be away from home!


Next steps:

In home and outpatient physical therapy

Coumadin clinic

Follow ups/coordination of care with cardiology, rheumatology and nephrology to help get his Lupus controlled


What we are praying for:

Resolution of Atrial Fibrilation (irregular heart beat)

Resolution of kidney disease

Rebuilding of strength

No more hospital stays


What we are thankful for:

NO MORE HOSPITAL STAYS

No more middle-of-the-night blood sticks

Reunited with our boys

No dialysis/kidney transplant needed

On going contributions to the You Caring page

All of our loved ones who have helped make this scary time a little less scary!!

God is GREAT


We will try our best to keep you guys updated as we get more good news!



Posted on December 7, 2017

Posted on December 7, 2017

We have lots to be thankful for today! A) They moved Chris from the Cardiac floor back to the Medical Surgical floor early yesterday morning. B) The doctor is recommending that we have in-home rehab instead of inpatient rehab, which would have meant 8-10 additional days in the hospital. C) His rheumatologist said that he may be here for only 3 more days! The only thing we are waiting on are the results from the kidney biopsy. This will determine the intensity of the treatment of his kidney disease going forward. ALSO! We are SO thankful that we reached the goal of $20k (and counting!) on the You Caring page. WOW! We are so thankful for you all and God’s grace as we move through this season. We are hopeful that Chris will be home and reunited with our babies soon! 


Posted on December 7, 2017

Posted on December 7, 2017

We have lots to be thankful for today! A) They moved Chris from the Cardiac floor back to the Medical Surgical floor early yesterday morning. B) The doctor is recommending that we have in-home rehab instead of inpatient rehab, which would have meant 8-10 additional days in the hospital. C) His rheumatologist said that he may be here for only 3 more days! The only thing we are waiting on are the results from the kidney biopsy. This will determine the intensity of the treatment of his kidney disease going forward. ALSO! We are SO thankful that we reached the goal of $20k (and counting!) on the You Caring page. WOW! We are so thankful for you all and God’s grace as we move through this season. We are hopeful that Chris will be home and reunited with our babies soon! 

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