Posted on January 6, 2018
January 5th Evening Update
Today Caleb had another great… busy… but great day! He had his first “official” follow up appointment with his primary care provider, and boy is it great to be home!! We were all warmly welcomed by his entire doctor’s office staff wearing “Team Caleb” shirts! This is part of the reason we love our “small town” community so much! Caleb checked out okay with his follow up (and so did his brother for his 9 month checkup) and away we went to the store to get prescriptions filled. While I was inside the store getting all of that done, Annie worked on spelling with Caleb (he’s doing great by the way!). When we got home, Caleb was pretty persistent on wanting to go downstairs to play with his toys, so I took him down, we played a while, then when it was time to go up, Caleb wanted to climb the stairs by himself, so I ensured I was right with him while he grabbed the rails on both sides and walked up himself! After being home for a bit, we went to our church for my side of the family’s Christmas. Caleb did really well with all of the kids, but suddenly got overwhelmed and unbuckled himself, took a few steps (on his own) before I grabbed him; he was headed to the door outside to the van (he was ready to go!). Before that though, Caleb had me in tears, he wheeled up to me and looked up at me with a frown, almost crying, and in his little voice asked “are you my daddy?” it’s almost as if he had a spark of memory hit. I don’t know if it was all the kids playing and he wanted to be normal again, if it was him being tired or what. But it was as if he had a moment. Well, tomorrow is going to be our “official poop day” Caleb’s urologist wanted us one day this week, give Caleb a triple dose of miralax and spend the day by the toilet to get his big backup cleaned out, and then do one dose a week to maintain. Something I thought about today was, with us doing the catheter plug and empting his bladder every 2 hours to stretch his bladder out, in theory, that should help prevent the spasms, since it’s being used and not empty all of the time. Please continue to pray for a smooth day for all of Caleb’s follow ups on Monday and another great week of therapy. Also, I have let my boss at work know, that I will return to work on the 15th of this month, so please say a prayer for Annie, as she will be taking Caleb to therapy and be at home with him while I’m gone during the day. One thing I have not mentioned during this time was a huge thank you to my boss at work for taking the stress off my shoulders and allowing me to take all of this time off of work to be by Caleb’s side. He has allowed me to do this and not once made us feel like I had to be there, he has a heart of gold and I thank God for placing him into my life. Our praises tonight are, for the little glimpse of Caleb’s memory coming back for a little bit, being able to come home and have our doctor’s office show their support for Caleb, by wearing his team shirt, and of course for the huge progress Caleb is showing us every day!