Baby Aidan Caton's Heart of Fire

For: Baby Aidan Caton and Family
Mesa, AZ
Organizer: Monie Lea
Baby Aidan Caton's Heart of Fire (Baby Aidan Caton and Family)
$4,535
of $10,000 goal
45% Complete
Raised by 69 donors

The Story

Almost 10 years ago, I met this awesome redheaded girl who made me laugh out loud at everything, so we immediately became great friends. Today, she is still one of my best friends, so I'm sharing this story for her and her family, who will soon have a new PERFECT baby boy. 

On April 18, 2017, Alexis and Steve were ecstatic to announce their pregnancy. 3 months later, on July 17, during their gender reveal ultrasound, they were made aware that their little one would be a bouncing baby boy, however, the news that followed, has forever changed their world. Baby Boy Caton was diagnosed with Hypoplastic Left Heart Syndrome (HLHS) - a congenital heart disease that affects the growth of the left side of the heart. (https://www.cdc.gov/ncbddd/heartdefects/hlhs.html)

As they tirelessly searched the best possible options for their little heart warrior, Alexis and Steve have chosen to deliver at the Children's Hospital of Philadelphia (CHOP - www.chop.edu/), where baby will have his first open heart surgery at 1 week old. Can you imagine? 1 week old, and this little bundle of joy will go through something most of us could never fathom. After that, he will have 2 more surgeries to correct the left side of his heart, at 3 months and 3 years old. However, I know in my heart and because I've witnessed it first hand, this little boy and mommy will have the best care by the best heart surgeons, doctors, and medical staff while they are there.

For me, this news was a heartbreak when she first told me, as I have watched another dear friend go through this disease with her now 5 year old son (who is doing extremely well), but the treatment and healing process for this disease is traumatic, to say the least, for the patient and the family. This little boy is the same age as Ryan, Alexis and Steve's oldest son, and Alexis was always there following my friend's story. She even graciously donated to his fund in need when she heard about his heart warrior journey.

Now, it is our turn to give back to this amazing little family that we all love so much. A family that has always been there for me, and I know so many others, as well. Alexis and family have been traveling back and forth to Philadelphia for the last few months, getting ready for delivery. You can imagine, with all of that travel, how bills may be stacking up for them. This doesn't even start to include any medical bills, or future travel, that they will incur, once baby is here. This time for baby will take away from mom and dad's time to work, as they will be in the hospital for up to a month after his first surgery, and they will travel back to Philadelphia several more times for evaluations, treatments, and additional surgeries in the near future.

I have seen first hand the stress, heartache, and insurmountable stack of bills this journey provides a family, and this is why I have chosen to set up this YouCaring fundraiser for them. I hope with my whole heart, that as they embark on this journey, we as friends, family, and even strangers, can help ease a little bit of stress for them. Entering the holiday season, I know pockets become tight for everyone, but please remember that every little amount helps. If unable to donate, I know the family and all of their friends will appreciate all of your positive thoughts, energy and prayers for baby and mom.

The family has chosen a name for this little heart warrior, and it is very well chosen!
Aidan: Gaelic meaning - Little Fire

AIDAN
, you are going to forever be the LITTLE FIRE in our Hearts! We cannot wait to meet you!

All my love for the Ashley & Caton Families,
Monie Sanchez

Fundraiser Updates

Posted on May 2, 2018

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Posted on May 2, 2018

Well it  has  been one week since Aidan's second open heart surgery. We are  getting ready to move to lower unit from the ICU. We would have gone sooner, but Aidan has had a fever the few days. Hopefully we will be discharged soon. Thank you for all donations. Every little bit helps tremendously! 💙


Posted on March 21, 2018

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Posted on March 21, 2018

Well Aidan has been doing so well, that he get's to have his second surgery at 4 months of age instead of 6 months. He is gaining weight and growing. The family is planning on heading back to Philadelphia April 19th, and Aidan's surgery will be on the 25th. The family is having to pay for the hotel cost this trip due to the Ronald McDonald House still being at max capacity. As I am sure some of you know, the costs of surgeries, hospital stays, plane tickets, and hotels can all add up. The family truly appreciates everything that has been donated and but they could use our help. Please remember every little bit helps in the times like these. Thank you! 


Posted on December 20, 2017

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Posted on December 20, 2017

SURGERY UPDATE:

Aidan was scheduled for his first surgery today - The Norwood Procedure, but prior to surgery, an MRI revealed that he has bleeding on the brain - this is not uncommon with HLHS, but of course this is a small setback for him.  Right now, the plan is to proceed with surgery next Tuesday, December 26th.  This will allow Aidan to have a little rest and healing time.  

Most children born with HLHS will have surgery within the first 2 weeks of their life - so Aidan is just taking his time with his journey, and that's okay!

Please continue to keep Aidan and his family in your thoughts and prayers, as  they have a long and difficult road to travel, and they need all the encouragement and love we can spare.  

And remember.......share, share share!  #chdawareness #aidanslittleheartoffire #heartwarrior #chd # aidancaton #heartoffire 







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