Baby Aidan Caton's Heart of Fire

For: Baby Aidan Caton and Family
Mesa, AZ
Organizer: Monie Lea
Baby Aidan Caton's Heart of Fire (Baby Aidan Caton and Family)
$1,920
of $10,000 goal.
Raised by 27 donors
19% Complete

The Story

Almost 10 years ago, I met this awesome redheaded girl who made me laugh out loud at everything, so we immediately became great friends. Today, she is still one of my best friends, so I'm sharing this story for her and her family, who will soon have a new PERFECT baby boy. 

On April 18, 2017, Alexis and Steve were ecstatic to announce their pregnancy. 3 months later, on July 17, during their gender reveal ultrasound, they were made aware that their little one would be a bouncing baby boy, however, the news that followed, has forever changed their world. Baby Boy Caton was diagnosed with Hypoplastic Left Heart Syndrome (HLHS) - a congenital heart disease that affects the growth of the left side of the heart. (https://www.cdc.gov/ncbddd/heartdefects/hlhs.html)

As they tirelessly searched the best possible options for their little heart warrior, Alexis and Steve have chosen to deliver at the Children's Hospital of Philadelphia (CHOP - www.chop.edu/), where baby will have his first open heart surgery at 1 week old. Can you imagine? 1 week old, and this little bundle of joy will go through something most of us could never fathom. After that, he will have 2 more surgeries to correct the left side of his heart, at 3 months and 3 years old. However, I know in my heart and because I've witnessed it first hand, this little boy and mommy will have the best care by the best heart surgeons, doctors, and medical staff while they are there.

For me, this news was a heartbreak when she first told me, as I have watched another dear friend go through this disease with her now 5 year old son (who is doing extremely well), but the treatment and healing process for this disease is traumatic, to say the least, for the patient and the family. This little boy is the same age as Ryan, Alexis and Steve's oldest son, and Alexis was always there following my friend's story. She even graciously donated to his fund in need when she heard about his heart warrior journey.

Now, it is our turn to give back to this amazing little family that we all love so much. A family that has always been there for me, and I know so many others, as well. Alexis and family have been traveling back and forth to Philadelphia for the last few months, getting ready for delivery. You can imagine, with all of that travel, how bills may be stacking up for them. This doesn't even start to include any medical bills, or future travel, that they will incur, once baby is here. This time for baby will take away from mom and dad's time to work, as they will be in the hospital for up to a month after his first surgery, and they will travel back to Philadelphia several more times for evaluations, treatments, and additional surgeries in the near future.

I have seen first hand the stress, heartache, and insurmountable stack of bills this journey provides a family, and this is why I have chosen to set up this YouCaring fundraiser for them. I hope with my whole heart, that as they embark on this journey, we as friends, family, and even strangers, can help ease a little bit of stress for them. Entering the holiday season, I know pockets become tight for everyone, but please remember that every little amount helps. If unable to donate, I know the family and all of their friends will appreciate all of your positive thoughts, energy and prayers for baby and mom.

The family has chosen a name for this little heart warrior, and it is very well chosen!
Aidan: Gaelic meaning - Little Fire

AIDAN
, you are going to forever be the LITTLE FIRE in our Hearts! We cannot wait to meet you!

All my love for the Ashley & Caton Families,
Monie Sanchez

Fundraiser Updates

Posted on November 30, 2017

UpdateImage

Posted on November 30, 2017

Hello all!  I've slacked a little on updates, so wanted to share a little of the happenings in the last 2 weeks....

First and foremost, Alexis and baby Aidan are doing well, and waiting for his arrival in about 2 weeks!

On 11.20.17 Alexis had a follow-up appointment at CHOP where they were able to check on baby's measurements....Aidan was weighing in at 6lbs 11oz - a growing little boy!  Alexis met with their cardiologist, OBGYN, anesthesiologist, and had blood draws and a fetal MRI completed.  They day was full, beginning at 8am for them, and finishing up with their MRI around 4pm.  A fetal oxygen echo completed showed that baby's progesterone levels are still steady and there was no change in his heart - which is all okay!  

Alexis was so thankful to have Daddy, Steve, out for this follow-up appointment, and they were even able to celebrate his birthday over that weekend!  

This week started with another follow-up appointment on 11.29.17 - mommy has gained 2 more pounds (baby is growing strong!) , and she was able to meet with her lactation specialist and progesterone study group.  

Some not so awesome changes: Alexis had to move herself into a hotel, and has applied for the waiting list for the Ronald McDonald House near CHOP.  The living situation she had arranged, didn't quite work out as planned, but they are making the best of the situation at hand.  Although, because of this they will now have daily unplanned added expenses.  

Now more than ever, any small donation would help this family tremendously.  Thank you to all who have shared and donated to Baby Aidan's Little Heart of Fire Fund!  The family is forever grateful!!! 

CHD awareness is so important, so if unable to donate, please keep sharing Aidan's story!  

Warm Holiday Wishes to you all, 

Alexis, Steve, Ryan, and Baby Aidan (and Monie too!)


Posted on November 14, 2017

UpdateImage

Posted on November 14, 2017

The day is getting closer! With a follow-up appointment taken care of yesterday - all is going as planned. Next appointment will be Monday, November 20th, and we will get a little update after new ultrasounds! To follow Aidan's Heart Warrior journey visit his blog at https://aidansheart.blog/

For those who want to donate please visit - https://www.youcaring.com/babyaidancatonandfamily-1004586Thank you to all those who have donated already, those that will, and to all those who are sharing their story, and sending love! 

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