Give Aya the last hope #AyaTheMiracle

For: Aya Azzawi
New Jersey
Organizer: Noor Alsouhaji
$47,426
of $290,000 goal.
Raised by 330 donors
16% Complete

The Story

January 22, 2016: A day to remember for the rest of our lives. Everybody was preparing to fight the snow storm that put New Jersey in a state of emergency. Meanwhile, my family and I were having our own battle to fight. Our beloved daughter Aya Azzawi, born September 28, 2012, was diagnosed with a rare and fatal brain cancer, called DIPG that left us in shock till now. At that day, our life turned upside down, the heaviness of the bad news left us helpless and numb. Because of the storm, all what we were able to do was researching for clarifications, answers and more answers to the frustrations we were left with. Unfortunately, all our findings were against what we wished for. After we met her oncologist, our fears became true. He confirmed that there is a zero survival chance for her type of cancer, with a 9-12 month lifespan. We were discharged with only one option for us, radiation to expand her quality of life for short time. We felt it was as a way to say the last goodbye to our daughter. However, we refused to give up.  We agreed to do radiation and our journey in research began since then. She underwent radiation; failed virus based clinical trial, failed intra-arterial immunotherapy trial and lastly another radiation to buy more time. We exhausted all the sources that they can offer for us. Aya now is in progression, the tumor started to effect her slowly and we lost hope to find anything to help her in the USA. However, we came across a treatment that they operate in Monterrey, Mexico. We discussed our options with so many families that undergoing the same situation that we do. We found our last hope, a lot of children are showing positive results and they are responding very well to the procedure they operate there in Mexico. However, the procedure will be expensive and everything is out of pocket. As parents who work full time jobs and having other kids to take care of - we are facing a financial hardship in saving our daughter's life. We are kindly asking you to help us save Aya's life. Your generosity and love to help innocent children will make a change in a young girl's life. Any contribution will be mostly appreciated by all of us and we promise that we will be forever thankful to each one of you. Give Aya a chance to stay among us; she has been fighting this monster for 19 months by now. She has the will to fight and survive. Allow her to live up to her name, which means “Miracle”. Help us turn our daughter into this miracle that defeats this terminal and incurable cancer.

#AyaTheMiracle

Fundraiser Updates

Posted on September 6, 2017

Posted on September 6, 2017

Sept 1, 2017. The first day of childhood cancer awareness month, I chose this day to update everyone about Aya's second intra-arterial and first immunotherapy in Mexico. The good news that I mentioned in the earlier post, turned out to be even better than we expected!! Aya's first treatment was a great success and we witnessed both significant shrinkage in her tumor and deactivated cancer cells in latest MRI. The doctors in Mexico delivered these great news with smile on her neurosurgeon's face (my Monterrey family knows what that smile means since we don't see it much!). These news confirmed what her neuro-oncologist and radiologist in the USA told us about her recent MRI's (before and after) first treatment. They, in USA, were very thrilled to see these changes with no radiation done and they attributed this improvement to treatment in Mexico.

I cannot explain to everyone how happy we were to receive such news, tears of joy streamed my face when her doctors told me about these improvements, it felt like she was reborn again, the same feelings I had when I held her in my arms for the first time; knowing that I can plan for her birthday in September and talking to her doctors about her getting back to school, gave me goosebumps. Couple of months ago, before Mexico, I wasn't sure that she will make it to her birthday, I threw her a party along with her brother last June thinking that she may not make it, but even with the darkest moments, we never gave up hope! with tears in my eyes, I want to thank each one of you who prayed and supported us to get this far, I cannot thank you enough for your generosity, love, and support to our decision to take her to Mexico. We are at the right track, hopefully, soon enough Aya and all her friends back there in Mexico will make history by defeating this monster called DIPG.Please continue praying for complete healing and keep all of us in your positive thoughts. Thank you for supporting us, every penny you contributed has given this little girl a chance to advance in her healing journey. To you who contributed and prayed, Aya will live up to her name which means MIRACLE.Ps. Aya now is calling me Mama Pig, every time I ask her to do something, she tells me "Yes mamma pig" meanwhile, I'm calling her Peppa!! Is that normal?! 


#AyaTheMiracle


Posted on September 6, 2017

Posted on September 6, 2017

Sept 1, 2017. The first day of childhood cancer awareness month, I chose this day to update everyone about Aya's second intra-arterial and first immunotherapy in Mexico. The good news that I mentioned in the earlier post, turned out to be even better than we expected!! Aya's first treatment was a great success and we witnessed both significant shrinkage in her tumor and deactivated cancer cells in latest MRI. The doctors in Mexico delivered these great news with smile on her neurosurgeon's face (my Monterrey family knows what that smile means since we don't see it much!). These news confirmed what her neuro-oncologist and radiologist in the USA told us about her recent MRI's (before and after) first treatment. They, in USA, were very thrilled to see these changes with no radiation done and they attributed this improvement to treatment in Mexico.

I cannot explain to everyone how happy we were to receive such news, tears of joy streamed my face when her doctors told me about these improvements, it felt like she was reborn again, the same feelings I had when I held her in my arms for the first time; knowing that I can plan for her birthday in September and talking to her doctors about her getting back to school, gave me goosebumps. Couple of months ago, before Mexico, I wasn't sure that she will make it to her birthday, I threw her a party along with her brother last June thinking that she may not make it, but even with the darkest moments, we never gave up hope! with tears in my eyes, I want to thank each one of you who prayed and supported us to get this far, I cannot thank you enough for your generosity, love, and support to our decision to take her to Mexico. We are at the right track, hopefully, soon enough Aya and all her friends back there in Mexico will make history by defeating this monster called DIPG.Please continue praying for complete healing and keep all of us in your positive thoughts. Thank you for supporting us, every penny you contributed has given this little girl a chance to advance in her healing journey. To you who contributed and prayed, Aya will live up to her name which means MIRACLE.Ps. Aya now is calling me Mama Pig, every time I ask her to do something, she tells me "Yes mamma pig" meanwhile, I'm calling her Peppa!! Is that normal?! 


#AyaTheMiracle


Posted on September 6, 2017

Posted on September 6, 2017

Sept 1, 2017. The first day of childhood cancer awareness month, I chose this day to update everyone about Aya's second intra-arterial and first immunotherapy in Mexico. The good news that I mentioned in the earlier post, turned out to be even better than we expected!! Aya's first treatment was a great success and we witnessed both significant shrinkage in her tumor and deactivated cancer cells in latest MRI. The doctors in Mexico delivered these great news with smile on her neurosurgeon's face (my Monterrey family knows what that smile means since we don't see it much!). These news confirmed what her neuro-oncologist and radiologist in the USA told us about her recent MRI's (before and after) first treatment. They, in USA, were very thrilled to see these changes with no radiation done and they attributed this improvement to treatment in Mexico.

I cannot explain to everyone how happy we were to receive such news, tears of joy streamed my face when her doctors told me about these improvements, it felt like she was reborn again, the same feelings I had when I held her in my arms for the first time; knowing that I can plan for her birthday in September and talking to her doctors about her getting back to school, gave me goosebumps. Couple of months ago, before Mexico, I wasn't sure that she will make it to her birthday, I threw her a party along with her brother last June thinking that she may not make it, but even with the darkest moments, we never gave up hope! with tears in my eyes, I want to thank each one of you who prayed and supported us to get this far, I cannot thank you enough for your generosity, love, and support to our decision to take her to Mexico. We are at the right track, hopefully, soon enough Aya and all her friends back there in Mexico will make history by defeating this monster called DIPG.Please continue praying for complete healing and keep all of us in your positive thoughts. Thank you for supporting us, every penny you contributed has given this little girl a chance to advance in her healing journey. To you who contributed and prayed, Aya will live up to her name which means MIRACLE.Ps. Aya now is calling me Mama Pig, every time I ask her to do something, she tells me "Yes mamma pig" meanwhile, I'm calling her Peppa!! Is that normal?! 


#AyaTheMiracle

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