Posted on August 20, 2017
Here is your longer update on Ryleigh and how everything is going.
Yesterday, (Friday) around 5:15pm the 1st chemo drug was started. It ran for 1 hour and was finished. She then had the next chemo drug over 1 hour along with post hydration that was done over 2 hours, to protect her kidneys. During the 2nd chemo drug they have to take her blood pressure every 10 minutes to make sure she doesn't have a reaction.
Overall, she did extremely well considering. During chemo we are restricted to her room. Which she does NOT enjoy because she likes to be on the move.
Last night, well at some time after midnight, Daddy was finally able to get her to sleep. She does not sleep well in the hospital, and I don't blame her one bit. Thanks to my amazing husband his cuddles and the magic in his voice when he sings to her each night, she was able to get a few hours sleep until the nurse came in for vitals and woke her up.
Today she was a little more cranky. Daddy fed her breakfast, I got to feed her lunch, and she seemed to be in a much better mood for a little bit.
Tonight chemo started again around 5:15pm. This time it was just one chemo drug that ran for 1 hour with post hydration again to protect the kidneys. She also had to have her blood pressure checked every 10 minutes. She screamed the entire hour. She does NOT like anything being hooked up to her port or the BP cuff. She also doesn't really like the nurses or doctors if she knows they are going to be doing something. But going through the halls, she will smile at them.
Again, our girl made it through like a champ. Daddy then fed her dinner, and she was all smiles for a while. I'll post some pictures of her being adorable. :)
Unfortunately, that didn't last long. I left the hospital for the night to bring the big girls home, when Daddy text me and said Ryleigh had puked everywhere. :( She has gotten nausea meds since before even starting chemo, and around the clock and up until this point, they have helped tremendously. Currently, Daddy is washing her blankets so that she (and He) will hopefully be able to get some rest tonight.
Tomorrow, she is due to have the final chemo drug in this cycle and then be discharged. BUT, she will only be coming home IF she's not throwing up.
So, PLEASE pray that her nausea/throwing up calms down or we're looking at our girl being miserable and a longer hospital stay. Keep sharing the youcaring please, because just with her throwing up we are looking at several trips to the ER to be evaluated, and possibly admitted. Basically, we will repeat this the entire 3 weeks she has "off" from chemo until the next cycle.
#FuckCancer #Neuroblastoma #RyleighStrong #FightLikeAGirl #OurGirlKickedCancersAss #StayGoneCancer