Posted on March 6, 2018
Ryleigh will receive a dose of high dose steroids tonight and tomorrow night, then one more time on Thursday morning.
After she receives them on Thursday, we will be discharged home! She will get IVIG every 2 weeks and on her off weeks from IVIG she will receive high dose steroids. We're hoping that this will help her continue to improve.
Her myoclonus is still apparent, but not nearly as bad as when she was admitted on Friday. So things are going in the right direction, we just hope it continues going that way. As of right now, chemo is put on the back burner. We would only go forward with chemo if this new plan were to not help her improve.
She's been eating every day, and spending a lot more time awake during the day! Which is huge considering at home she wouldn't eat and did nothing but sleep.
Please continue to pray this new plan works, and sharing the youcaring if you would. Thank you for your continued support through Ryleigh's journey. Please also keep Williams family in your prayers as well because they need them even more so now. 💜
#RyleighStrong #NeuroblastomaSurvivor #OpsoclonusMyoclonusSyndrome #ILoveA1in10MillionKindOfKid