Posted on October 3, 2017
Hi everyone. It's been a few days since I've posted anything. To be honest these past few days have been nerve wracking. Waiting for Ryleigh's MRI was pure torture. But, the wait is over.
I am SO happy to announce that the MRI shows: "NO sign of reoccurence of pelvic mass" It's real this time. Our Ryleigh, our bunny, our baby has kicked cancers Ass!! No more chemo, no more blood transfusions, no more neutropenia!
We go to the USS Hope Clinic on Thursday to further discuss the plan going forward in regards to what scans she will need and how often, but for now she's done with cancer!!
Now that she is done with Neuroblastoma, our main focus will be IVIG and treating the Opsoclonus-myoclonus syndrome that the cancer caused. She had her first infusion when admitted last time, and it's honestly been amazing. She has better balance (although still a little wobbly), she's sitting up without falling, crawling and pulling herself up to standing. And it's been since the hospital admission that I've seen her eyes bounce. This is amazing!!
She's rocked the first beast, and now she tackles the next. I don't know if their is a cure for the OMS. So, IVIG may be a lifelong thing for her, but that's okay because she's ALIVE and here to live her life!!
Thank you everyone for the prayers, love, support and donations. You've all helped us tremendously through all of this so far. Sending you all our love and thanks!
#RyleighStrong #FightLikeAGirl #OurGirlKickedCancersAss #StayGoneCancer #ItsGONE