Deany Strong

For: Ashley Bandavanis
Pickerington, OH
Organizer: Kristian Miller
Deany Strong (Ashley Bandavanis)
of $120,000 goal
63% Complete
Raised by 1449 donors

The Story

Hello my is Kristian, on the behalf of Longhorn Steakhouse in Pickerington, Ohio I come to tell you a story of a family who is very dear to our hearts. On Thursday March 16th our dear friend and Co-Worker Ashley Bandavanis and her Husband Dean received devestating news that their 6 year old son Deany had been diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma) a very aggressive, rare and hard to treat brain tumor. It is located in the bottom part of the brain stem called the PONS. The PONS controls all of your involuntary motor functions like your heartbeat and your breathing. Because of this it is not operable. Nothing to date has been shown to successfully penetrate this area of the brain stem. The only form of treatment that we can do is radiation. This is not to get rid of the tumor this is just to slow it. Buying us more time per say. It will slow the aggression of the tumor for approx 4-6 months buying us time to go have fun. After that time the tumor will start growing again even more aggressive then first time, and it could/will take his life shortly there after. There is no cure for DIPG. This type only effects approx 300 children in the US. He is being cared for by the oncology team at Nationwide Children's hospital with Dr. Diana Osorio (neuro oncologist) leading the team. His radiation treatments will be held at the James at OSU being lead by Dr. Palmer. Deany is loved by his family including his older brother Keller who is 8 years old and the entire Family of Longhorn Steakhouse, we appreciate any donation! God Bless! Deany has been accepted into a Clinical Trial in Mexico and the cost of treatment isn't covered by insurance, all donations are going towards this treatment. #deanystrong

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