Posted on April 8, 2018
Hi everyone, we have raised 50% of the goal thanks to your generosity. Please share this fundraiser with your family and friends to help us reach our goal.
It's been over a month since my last update, and I apologize for that. Life since the stroke has been a challenge. I cannot properly express how much your thoughts, prayers, and support have meant to us. The stroke simply set our world spinning wildly out of control.
Ashley is doing well. At this point she has just over 30 days left before she graduates from high school. After her diagnosis, there were serious questions about if this day would ever come. She's worked hard to get here, going to school when I wasn't sure she should, struggled through incredible pain and seizures, and kept going with determination that amazes me. Her "bad days" are popping up more frequently in the past month, likely because of stress. We knew to expect it, but it doesn't make dealing with it any easier. There have been issues with her meds, insurance, and the doctor not all communicating, making life more stressful than it needs to be. There have been days she falls apart over how this syndrome has impacted and changed her life. She has been trying not to buckle under the stress of school and looming deadlines, taking both English III and English IV at the same time has been especially challenging. And along with the joy of impending graduation has come the reality that her dreams of leaving home to go to college will not be coming true. With such heavy neuro involvement, things are complicated. This is all new and we are learning to work with her condition, to handle things, but as of right now all the doctors seem to agree living on her own is not a safe option. Still, she keeps going and most of the time accepts all this with incredible grace.
As a parent, these days I feel like a failure. There are all these things a senior should be doing, should have, and I can't provide them. A dear friend took her senior pictures, something I am so incredibly thankful for. We were blessed with help on her dress, as well as her cap and gown. Things like a yearbook, graduation invitations, anything celebratory really, prom tickets... I can't provide any of that. The stroke has left me struggling physically, mentally, financially. I am not able to do all the things I once could do, work as I have for years. Recovery is not going as fast as I would like, but I know things could have been so much worse. The truth is, I can't pay the rent or all of the bills, we are terrifyingly on the edge of disaster, and I don't know what to do about that. As such, extra expenses are impossible. I've sold so much in an effort to keep afloat, there's really nothing left. Of three prescribed meds, I am only taking one, and even that one a family member purchased for me. And I'm sitting here crying because I hate asking for help of any kind. The thing is, I want to give Ashley the world, but in the past month or so, I've failed at even giving her the basics.
Any help at all really does so much and I thank you all for everything you've done for us. Your prayers and kindness touch us deeply. We are blessed and I know things will get better, one day at a time.