Posted on August 14, 2017
I challenge you to read these profound heart-wrenching words below in honor of all the sacrifice and selfless love given by spouses who are also caregivers. Written by Jaime Agosto on her Facebook wall during ALS awareness month. I will include the original link to the full post in the comments below along with a couple of ways you can help. Please consider reaching out to them, and offer your love and support. Her loving husband, Eliud Enrique Agosto,
has ALS…“I took a vow ‘in sickness and in health’. Did I know it would mean this? Of course not. I am his personal nurse. I take care of cleaning, bathing, suctioning, changing of clothes, sheets, pillow cases, making sure all equipment is working, all supplies are here, I crush meds and give them to him, I hook up his food and make sure it's flowing, I clean his trach site and his feeding tube site, I wake up 2-4 times a night (after going to bed after 2) to help him pee or move, I adjust him when he is in pain, I feed him yogurt/pudding/ice cream whenever he asks. I check oxygen levels, pulse, blood pressure and temp. I am home 24/7 staring at the same 4 walls day in and day out. I spend 24/7 in the hospital with him if he needs to go so i can advocate for him. (I have pissed off many nurses). I have to fight with insurance, Medicare, Medicaid, and Humana Med D. I have to try and get to the doctor (without insurance, as we can't afford it). I have lost almost 30lbs since I don't eat like I should. I have had to come to terms with the fact that I can't hug my husband, he can't grab me and kiss me, he can't grab/slap my butt like he used to love doing, we can't make love, we can't cuddle. Would you be able to do this? I have been asked if I'm a nurse. I have been told people look up to me, I am special, I am strong. I don't see it. I see a wife taking her vows seriously and taking care of her husband in his time of need. My back is shot, my sciatic nerve kills me, and I wake up in pain most days. I have anxiety. I have depression. I have cried, screamed, yelled, and wanted to hide. But I still move on. I worked full time and took care of him until Aug when he got the trach. I then quit my job and became his full-time caregiver. I get NO COMPENSATION for this. The state of Florida does not recognize what I do as a need for help. It was either work and pay a nurse with whatever I made or quit and do it myself. The only income we have is his disability. We can't afford anyone to come in and help… I am looking for a part time stay at home position because we need the money. … I got a Bible and started to go to church recently. I pray every day and do devotions every day. I pray for a miracle and I have faith that one day our miracle will come through and he will walk again. Why am I telling you all this? Why am I letting you know we struggle financially? Why would I let you in my life like this? It's simple. Be blessed for what you have. Fight for what you want. Don't take anything for granted because you never know when things can change and your whole world is turned upside down. I would do this again in a heartbeat because the love I have for my husband is beyond sickness. He is one hell of a fighter and I look up to him. I admire him. I would do anything for him. Without me, he wouldn't be here and he deserves a chance just like everyone else. If you read this, thank you."Will you help me by reaching out directly to Jaime and her husband Eliudto send some love and support... and if you have the means to, please consider donating and sharing this link:www.youcaring.com/anthonycarbajal-868210Jaime and Eliud are my 16th chosen ALS grant recipients. We are attempting to send a little love to 30 ALS families that are in desperate need of our help for my 30th birthday!