Posted on November 17, 2017
Posted on November 17, 2017My beautiful supporters, I really thank you for all your support❣
20% off all NOVEMBER!! (Birthday month)
Sorry I have not updated in a while been going through a lot! I'm just taking it a day at a time. I'm really hoping through sharing and word of mouth maybe I'll be able to sell a little bit of jewelry for the holiday season. They will not let me get a lung transplant if my mom has a job so I'll be free waiting for appointments and just doing the testing for a while so I'm trying to get some orders and it's my hobby so I love when I get a order❣😄
My mother and I got to Chicago. I was a little nervous because I could tell that I had gotten worse. On Monday 11/06 my first test that they did was a CT of the lungs and then all the other testings they do. The next day I meant with the GI doctor and we set up an appointment to go in the hospital on Thursday to do a scope. On Thursday and I'm getting ready to go to the hospital and I get a call an hour before telling me not to go to the hospital that my lungs have gotten drastically worse and dr. Burt wants me to see the lung transplant doctor here and then we will meet up tomorrow.
I was sent a new schedule with the lung transplant doctor then the next day the cardiologist then dr. Burt. And what used to show my that I would go into the hospital November 10th, 20th (my birthday😄) and back for the treatment December 6th was gone so I knew it was bad and prepared myself for tomorrow.
I talk to the lung transplant doctor there and he put me more at ease with lung transplantation. He told me that someone my age has a chance of living around 8 to 10 years and the 5 year 50% chance is for everyone including the older people that have gotten lung transplants and if it were done with just my age they would be around 8 to 10 years.
Then I saw the cardiologist. He told me that there's no way I'll survive the stem cell transplant and I completely trust his judgement. Then I went and saw dr. Bert and I knew what was going to happen. He told me that my lungs are just too bad and if he did this treatment he know he would have to pull the plug and lie next to my dead body and he would have to live with that for the rest of his life. It looked like he had tears in his eyes he really wanted to save me. He is the sweetestdoctor I have ever met. Author of the only doctor that has ever gotten me to cry just by the look in his eyes. I just completely trusted his judgement and they're still going to keep in touch with the lung transplant team and he wants me to keep in touch with them.
Pheonix: St Joseph's lung Institute
We have no reason to be in Chicago anymore and my insurance coordinator calls us while we're out at dinner at about 6 p.m. 11/14 and says we will just get you the flights right now and room without an appointment for tomorrow 11/15 so we packed up all her stuff and we were on the plane in the morning. My mom just dropped off all my test at St Joseph and they're working on getting my appointment as soon as possible. Then I will start the evaluations for the lung transplant and see if I also need a heart transplant.
I am staying positive just taking it one day at a time!
I do miss my fur baby's and my little brother, family, a home but I am coping very well. I have been having a hard time trying to sell my jewelry so if you could please share my jewelry Facebook page above I would greatly appreciate it❣
I am going to try and be on here a lot more and definitely will be sharing information on my Facebook page:
Thank you all so much even. Even just a share could mean the world❣
Hopefully my story can help others going through the same situation💜
Posted on September 12, 2017
Posted on September 12, 2017❣Hello Wonderful People❣
Sorry, I have not posted in a while I have been fighting the insurance.
I just got back from the insurance panel determination. It was a little heartbreaking. I know how bad I am and how close to death but I always try to stay optimistic.
I said I would be luck to last another year if I don't get the treatment then the doctor said I don't want to say this with the patient in the room but she wont even come close to another year without the treatment. When I go to the lower elevation, finally, I will be able to live longer and breathe better than if I were to stay here but I have already beaten the odds so I'm not going to stop now. It broke my heart when I saw my mom after they said that. That's why I usually take care of everything myself. I am at peace with what I have been given. It just hurts that there is a chance that I could live longer but I need $125,000 or the insurance to approve.
I wont qualify for the treatment very much longer. I had to beg them to accept me in April and it took them over a month to decide. I'm just praying now that I have not progressed and I will still be able to get it done. I have to get this done as soon as possible if I have any chance.
The pannel seemed to be just some heartless doctors. I don't even know if they were really listening. They were over they phone so that didn't help. The two people in room who have no say in the decision had a heart and were so nice. At the end I said it's not fair if you're going to deny me because it's a study when it's been studied for decades it has proven to work and I hope you're actually listening!
The lady there seemed pretty optimistic hoping that there just going to approve but I really think they weren't even listening and they already have their decision. Just preparing myself for the worst so I am ready but if I do get approved it'll be the best day of my life. Then I have to worry about making it there by the beginning of this November when I turn 26! I could get approved and not even make it there in time.
I and surprisingly optimistic that I will make it to get the treatment on time.
Let's just hope and pray I get accepted!! Then make it there by november!!🦄
I most likely will need the full $125,000. That is how much you need upfront to get in. It's really not that much money for a life but it's just something that we don't have. There is a small chance it can happen if somehow we were able to get enough people to see the fundraiser. It's worth a shot!
I just need any help I can get. I have said many times just to share means the world to me and I really mean that.
Thank you so much to everyone that has supported me and helps me get through all of this I seriously couldn't have done it without you all.
Posted on June 18, 2017
Posted on June 18, 2017Hello everyone!!
Ladys and gentlmen (for you wife, gf, or children) you need new clothes please check out this link:
It's a group on Facebook and today is the last day for the fundraiser. I will get a good portion of the sales to go towards my treatment. I figured if anyone is going to be buying clothes anyways might as well buy them through her so it could also help for good couse!
It's very good quality clothing that's so cute! You first have to join the group LuLaRoe Tracy Pingel then find the clothes you like in the pictures then when you find one you love you comment below SOLD!!
It ends at 6:00pm my time in NM 7:00pm CST (I think)
Then once you get a outfit go to www.facebook.com/saveannasbeads to get cute matching earrings necklaces and/or bracelets. 100% of proceeds will go towards the treatment.
I am extremely grateful for all my supporters and without all of you I would have never been able to make it to Chicago and get APPROVED!!! Now I'm pretty much starting over, you wouldn't believe the bills just from the evaluations so now I need to fundraise even harder! The evaluation has put a toll on my breathing so it's been pretty hard but I'm going to get it done!!
Thank you all so much for your support and every penny counts!! With all your help I have that actual chance at living a longer life💜
I can not thank you all enough!!