Hello Dearest Family and Friends,
Sorry it has taken me a little while to finally write to you and let you know how things are going.
As some of you know, we have moved near Portland, Oregon to begin the next adventure in healing my cancer. For five years I have been attempting to control it with reasonable success, however I feel that I have run out of options that are available in California.
I am beginning a clinical trial of two immunotherapy drugs at Providence Cancer Center in Portland. Providence has decades of experience working with immunotherapy, and is doing advanced work, not currently available in California for my kind of cancer. I have been waiting six months to be accepted into a trial and three weeks ago, learned that an opening was available. Hence the quick move to Portland.
We will be living up here for a minimum of two months, but likely, significantly longer if the treatments are successful. The treatments are in 8 week cycles, with me getting an infusion once a month. At the end of 8 weeks, we, along with the doctor will determine if I will continue this treatment for another 8 week cycle. It could go on for as long as 6 cycles, or 1 year. I had my first infusion last week. It knocked me on my ass for about 12 hours. But since then, I have been pretty stable. I am needing to take opioids to keep my pain under control, which is working fairly well. I had a scare in July when a PT scan showed what might be cancer spreading to my lungs, however, my most recent test last week showed that I do NOT have cancer in my lungs! Yay!!!!
I feel very fortunate that my body has been strong enough to fight this cancer for five years, and, in many ways, my health is as good as it has ever been. While I only get the infusions once a month, I need to be at the hospital nearly every week for follow up tests. The great news is that there are some weeks with no hospital visits, allowing us to travel around for short adventures, including visiting family and friends around Thanksgiving. We are waiting to learn about our schedule for December and January, but we expect to be home for Christmas. Hopefully we will be able to see many of you on one of our journeys home.
The great news is that we have been gifted a fantastic place to live while we are here in Oregon. Lindley Morton and Corrine Oishi, the brother and sister-in-law of Mimi Buckley, have a gorgeous property along Gales Creek, in the coastal foothills, one hour from Portland and one hour from the ocean. We are living in a beautiful, small house, surrounded by the best of Oregon, riparian Nature - 30 acres of natural beauty, enhanced by the architecture and landscaping of Lindley and Corrine, who have lived here for 50 years. They are the nicest people! and so generous! Our dog Darby is with us and is stoked to go on walks with their one year old dog/friend. If you are traveling to or live in Oregon, we would welcome your visit.
Meanwhile back at the farm, Kristin and Will have the place planted with the most amount of winter crops ever. Looking awesome! Adam has been very busy growing the Felix Gillet nursery stock and getting the nursery catalog on-line, which we are hoping will be live by Thursday. The farm and Felix Gillet are in great hands! We are so blessed!
To summarize, we are in as good a situation as is possible. We are feeling very loved and blessed! We look forward to talking with and hugging you in the near future. Please write if you like. And share with your friends, if so motivated. I need all the energy I can get. I need, and am getting, a miracle!
Blessings on your path.
Amigo and Jenifer