Help Save Alinta's Life

For: Alinta McMurdo
VIC, Australia
Organizer: Dianne Hayes
Help Save Alinta's Life (Alinta McMurdo)
$2,670
of $22,000 goal.
Raised by 24 donors
12% Complete

The Story

My daughter Alinta was bitten by a tick at 10 years old, she is now 27 and severely ill. She has been diagnosed with Late Stage Neurological Lyme Disease and Bartonella infection. Both are multisystemic bacterial infections. The government in Australia won't allow treatment for these illnesses so she must go overseas. I have shed many tears at her plight and my only wish is for her to have a chance at a healthy life. Despite being so ill, she cares for death row dogs and dreams of being able to help those living in poverty, and fix the environment. I just want her to be happy and healthy. She has written the following few paragraphs:

My symptoms are severe and extensive. I don't have enough room to go into them all in detail. I need over 12 hours of sleep a day but still wake up just as tired as when I went to sleep. Daily I have to fight exhaustion until my body gives up and collapses. Any physical or emotional output takes many days to recover from. Some days I have to choose between showering or eating as I don't have the energy for both. I take numerous pain killers, but I still have constant excruciating pain all over my body. My muscles frequently spasm, shake and jerk. Joint hypermobility has caused a lot of dislocations and painful bursitis in my hips. Most days I cycle through severe sweating and shaking as I am unable to control my temperature. My heart and lungs are showing signs of infection too. At times I struggle to breathe and my heart rate is very high and blood pressure low. I have constant stomach pain and nausea, and I often vomit, leading to weight loss. I have been diagnosed with Gastritis and IBS resulting in a lot of intestinal pain and upset. I have gone through bladder biopsies and botox injections to combat bladder pain and incontinence. The specialists say that my body is attacking itself as it can't recognise the bacteria. I have been diagnosed with Grave's Disease, and I have been told to expect more autoimmune conditions if this infection isn't controlled. My immune system is weak; even a basic cold can set me back months. Along with pain and fatigue, cognitive dysfunction is one of the more debilitating symptoms. All my thoughts are obscured by a thick fog. I struggle to think, and I forget even basic words. I have a wheelchair to get around shopping centres and need help with even simple chores. I recently had an episode where I experienced bronchial spasms and couldn't breathe. I lost my hearing and vision, collapsed on the ground and experienced paralysis. I don't want to go through that again, but the only way to ensure that doesn't happen is to treat the infections.

There's a clinic in Cyprus which offers a combination of Ozone therapy and hyperbaric oxygen therapy (HBOT), to kill the bacteria and give my immune system the boost it needs to get rid of this infection for good. The results of others who have gone and returned are extremely positive, but it's long, expensive, and on the other side of the world. As someone living week to week on a disability pension, I simply can't afford the costs myself. I need to take a carer who'll look after me when I'm not at the clinic. The airfares, accommodation, and the cost for the 6 weeks of treatment all add up, and I need to raise $22,000 AUD just to cover it. This is not a holiday. I'll be spending all day Monday to Saturday in the clinic, and my Sundays will likely be spent asleep while my body recovers. When I return home, the recovery will be long and hard. I will have to go through rehabilitation to build up the muscles that have wasted away for years.

Every donation no matter how small gets me closer to Cyprus, good health and a life. So any amount you can give means the world to me. I know not everyone is able to donate, but please share my story. Prolonged severe illness means I don't have a big social network, please lend me yours, and help save my life.

Fundraiser Updates

Posted on July 31, 2017

Posted on July 31, 2017

I had my 28th birthday on the second of July. That marks the 11th birthday of being sick. I was able to celebrate my first sick birthday (my 18th), but as my health has declined, so have my birthday celebrations. This year I was able to sit on the couch with two family members, the dogs and a hand made cake. That exhausted me but I am still thankful that I got to do at least something on the day.

Life hasn't been easy recently. My car was broken into and enough damage done that it is no longer drive-able. My mum was in hospital. I was in hospital. And now I've been told that I need to move out of my rental as the landlords are selling. I have no idea how I am going to do it. I'm physically and emotionally exhausted but I have to find the energy from somewhere, to pack and move. I don't even want to think about the immense rebound pain and fatigue I will go through after it is done. Visiting properties on Saturday meant that I suffered the consequences on Sunday and couldn't even have a short shower without vomiting.

It's times like this when I really remember how limiting this illness is. I don't have the luxury of having an energy reserve like a healthy person does to get through any sort of big life event, let alone multiples of them. I really do need to get to Cyprus and soon. My life is mainly suffering at the moment and it's no way to live. Please share my fundraiser with your social network, I really need more people to see it.

Love Alinta x


Posted on May 21, 2017

Posted on May 21, 2017

Thank you so much for the support so far. The fundraiser is currently over 10% of the way there. Please keep sharing it.

I've had a tough few days health-wise, and my pain and nausea have been debilitating. I have lots of painkillers and nausea wafers but when my symptoms get as bad as they have been, the medications just don't work. It is hard to keep it together emotionally when my physical suffering is so bad, but it is much easier than it has previously been as I now have hope - there's light at the end of the tunnel - all thanks to you, my donors. 


Posted on May 12, 2017

Posted on May 12, 2017

Thank you so much for the support you have given me, it means more than you know. I don't feel worthy of the outpouring of kindness, but I also know that this is my only option. I so desperately want to live a healthy life and have a chance to fulfill all my dreams. 

I wasn't able to write out the history of my illness or all the symptoms within the character limit for the description, but I wrote it all on my blog so you can read about my story more in depth over at polishandpaws.com.au/2017/05/tick-borne-illness-story.html

For those of you who have donated, thank you so, so much. For those who have shared my story, thank you also, please continue to share so that I may have a chance at recovery.

Thank you all,
Alinta

PS: If anyone has other ideas for how I can fundraise from my bed, please let me know.

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