Help Save Alinta's Life

For: Alinta McMurdo
VIC, Australia
Organizer: Dianne Hayes
Help Save Alinta's Life (Alinta McMurdo)
$5,130
of $22,000 goal
23% Complete
Raised by 51 donors

The Story

My daughter Alinta was bitten by a tick at 10 years old, she is now 27 and severely ill. She has been diagnosed with Late Stage Neurological Lyme Disease and Bartonella infection. Both are multisystemic bacterial infections. The government in Australia won't allow treatment for these illnesses so she must go overseas. I have shed many tears at her plight and my only wish is for her to have a chance at a healthy life. Despite being so ill, she cares for death row dogs and dreams of being able to help those living in poverty, and fix the environment. I just want her to be happy and healthy. She has written the following few paragraphs:

My symptoms are severe and extensive. I don't have enough room to go into them all in detail. I need over 12 hours of sleep a day but still wake up just as tired as when I went to sleep. Daily I have to fight exhaustion until my body gives up and collapses. Any physical or emotional output takes many days to recover from. Some days I have to choose between showering or eating as I don't have the energy for both. I take numerous pain killers, but I still have constant excruciating pain all over my body. My muscles frequently spasm, shake and jerk. Joint hypermobility has caused a lot of dislocations and painful bursitis in my hips. Most days I cycle through severe sweating and shaking as I am unable to control my temperature. My heart and lungs are showing signs of infection too. At times I struggle to breathe and my heart rate is very high and blood pressure low. I have constant stomach pain and nausea, and I often vomit, leading to weight loss. I have been diagnosed with Gastritis and IBS resulting in a lot of intestinal pain and upset. I have gone through bladder biopsies and botox injections to combat bladder pain and incontinence. The specialists say that my body is attacking itself as it can't recognise the bacteria. I have been diagnosed with Grave's Disease, and I have been told to expect more autoimmune conditions if this infection isn't controlled. My immune system is weak; even a basic cold can set me back months. Along with pain and fatigue, cognitive dysfunction is one of the more debilitating symptoms. All my thoughts are obscured by a thick fog. I struggle to think, and I forget even basic words. I have a wheelchair to get around shopping centres and need help with even simple chores. I recently had an episode where I experienced bronchial spasms and couldn't breathe. I lost my hearing and vision, collapsed on the ground and experienced paralysis. I don't want to go through that again, but the only way to ensure that doesn't happen is to treat the infections.

There's a clinic in Cyprus which offers a combination of Ozone therapy and hyperbaric oxygen therapy (HBOT), to kill the bacteria and give my immune system the boost it needs to get rid of this infection for good. The results of others who have gone and returned are extremely positive, but it's long, expensive, and on the other side of the world. As someone living week to week on a disability pension, I simply can't afford the costs myself. I need to take a carer who'll look after me when I'm not at the clinic. The airfares, accommodation, and the cost for the 6 weeks of treatment all add up, and I need to raise $22,000 AUD just to cover it. This is not a holiday. I'll be spending all day Monday to Saturday in the clinic, and my Sundays will likely be spent asleep while my body recovers. When I return home, the recovery will be long and hard. I will have to go through rehabilitation to build up the muscles that have wasted away for years.

Every donation no matter how small gets me closer to Cyprus, good health and a life. So any amount you can give means the world to me. I know not everyone is able to donate, but please share my story. Prolonged severe illness means I don't have a big social network, please lend me yours, and help save my life.

Fundraiser Updates

Posted on June 2, 2018

UpdateImage

Posted on June 2, 2018

I don’t like sharing what it’s like on my sickest days because I’m still embarrassed that I can’t control my body. The one thing that is mine. I realize that to actually raise awareness, people need to know what it’s like but it’s something I think I will always struggle with.



I took a photo today so you could see a snippet of my life. It’s of me lying in the shower, with a sports drink and bonsai my shower guarder. I had to shower as I have been having constant cold sweats. The sort where you feel like your freezing and the shivers turn into bin rattling shakes, but you’re still sweating profusely. I hate being covered in sweat but a normal shower isn’t something I can do. If I were to stand up in the shower and not have the extra electrolytes, it wouldn’t take long before I lost my vision, which gives me just enough time to get out of the shower, where I end up collapsing and have paralysis. It’s such a horrible thing to go through that I avoid it at all costs. So instead, I have to lie in the shower, with the extra electrolytes on hand. It’s far from glamorous, but it’s real life for me.

Posted on May 17, 2018

Posted on May 17, 2018

Sorry about not providing an update in so long. The good news is that treatment in Cyprus is booked for October and the deposit has been paid. Flights, accommodation and travel insurance have also been booked and paid in full. So everything is ready to go!


My health however hasn’t been great, this week especially. I overdid it on the weekend with Mother’s Day which has caused a lot of symptoms to flare. I’m extremely fatigued and exhausted. I sleep for 15 hours in bed and then move to the couch the nap the rest of the day. I’ve had bouts of paralysis as well as extreme weakness where my legs can’t hold my body up. I experience body jerks and muscle convulsions when at my worst. I always have pain but it gets much worse when I overdo it. Dizziness, vertigo and weakness make walking difficult at the best of times right now. The fatigue takes a big toll on my cognitive function, I really struggle to think through the thick fog. I thankfully have Zofran wafers to help with vomiting and nausea but I can only use them when I desperately need them, because they’re an expensive medication to buy. Things like showering are a luxury at times like this. If I had told my healthy self that showering would one day feel like climbing Mount Everest, I wouldn’t have believed it. Unfortunately that’s just my reality right now. The symptoms I experience are absolutely things that would cause other people to go to hospital, but going into hospital makes me so much sicker and the doctors aren’t able to do anything to help anyway.


Knowing that Cyprus is only a few months away is a huge relief. Hope for a better future and healthier life keeps me going. I can’t thank you enough for helping to make that a possibility for me. I am supposed to be doing some pre-treatment but I have been too sick to do it and unable to afford it all. The treatment in Cyprus is however the most important thing to achieve. I still need to raise more for that so please share my fundraiser with anyone you know.


Love Alinta

Posted on January 15, 2018

Posted on January 15, 2018

I’m starting off the new year with some great news. I have used the money donated so far to pay the deposit for treatment in Cyprus. I have booked treatment for October this year. I have some amazing family members who are contributing towards the expenses for Cyprus but I need to raise more to ensure that I can pay for everything needed. I want to send out a big thank you to everyone who has donated and shared, without you, this would just be a distant dream. I have thanked everyone individually who has donated, but I can’t thank those of you who did so anonymously. Just know, I really appreciate your kindness. This is a lifesaving trip for me. The immensity of that is so hard to explain. I desperately want a life I can live, and not just suffer through. Your generosity is helping me to get the treatment that will allow me to do that. Please keep sharing my fundraiser with everyone you know, every share and every donation gets me that much closer to Cyprus and treatment that can save my life. 

Love Alinta x

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