Alerting for Alayna

For: Alayna Ogniewski
Ballston Spa, NY
Organizer: Michele Ogniewski
Alerting for Alayna (Alayna Ogniewski)
$15,441
of $15,000 goal.
Raised by 133 donors
100% Complete

The Story

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Alayna Grace is our sweet and spunky 3 year old who has a complicated medical history, most recently significant for chronic and severe hypoglycemia, or low blood sugar.  Maintaining a normal blood sugar is essential for Alayna's development; untreated hypoglycemia can result in seizures, coma or death.  Alayna suffered from 2 seizures as an infant, which is when she first became symptomatic.  Since then, she has had more hospitalizations then you can count on your two hands. Our little trooper has undergone invasive testing and extensive bloodwork. Genetic testing revealed a rare monogenic form of diabetes, but she is now going to Boston for further work up and may endure Whole Exome Sequencing, because her history has been so complicated.  She travels out of state to see doctors who continue to work hard at putting the pieces together. Because this has been going on for so long, Alayna has developed hypoglycemia unawareness, which means she is not displaying signs and symptoms that she is in danger.  We are fundraising to get a diabetic service dog trained to detect the scent of Alayna's dropping blood sugar. These dogs amazingly can be trained to alert us when her sugar is dropping, before she becomes dangerously low.  Imagine not being able to let your child play, without worrying about your child's blood sugar dropping.  Even a simple task of taking a bath can drop Alayna's blood sugar low, as temperature change has a significant impact on her blood sugar.  The activity and play that should come naturally with childhood is what actually poses the most risk to her.  Even sleeping, a part of everyday life, presents itself with dangers to Alayna.  Parents going through this with a young child are always on alert and sleep with one eye open.  A diabetes alert dog would add an extra set of eyes to protect Alayna from the dangers of low blood sugar.  We envision a service dog sleeping by Alayna's side, watching her during outdoor play, and being an extra set of eyes anytime our busy parenting eyes of 3 children are distracted. Maybe even going to school with her when she is school age! It is extremely costly to have the right dog trained as a service dog, so we are reaching out to the community with the hopes of your assistance in making this dream come true.  We are very appreciative and forever grateful for any amount you are able to contribute for our girl!

Fundraiser Updates

Posted on October 7, 2016

Posted on October 7, 2016

We're so excited to inform everyone that Daisy will be coming home tomorrow! I've been meaning to update everyone these past few weeks as we learned of Daisys readiness but life has been hectic and boom her delivery day is here!
In a world with such tragic news left and right we feel especially blessed to have this community of support for Alayna and to know how many good hearted people there are out there. We are still so amazed and so unbelievably grateful for having raised these funds (and so quickly!!) that have allowed us this unique opportunity to have a service dog for alayna. We know this will be life changing for our family and we couldn't have done it without all of you. We are forever grateful and wish we could meet each and everyone of you to thank you in person. I'll post pics of Daisys arrival, and the news will be doing a followup story so stay tuned and know that all of you are the Angels behind this dream come true.

Posted on May 6, 2016

Posted on May 6, 2016

I've kept this site up so that I can post updates that reach every kind donor that allowed us to move forward with getting a service dog for Alayna. Poor Alayna has had a rough week--she was developing a urinary tract infection, which we were obviously unaware of, and it hit her like a ton of bricks. Her blood sugar dropped dangerously into the 30s while she was in the car with me and she suffered a seizure while I was treating her and waiting for help. She is home now and seems to be on the upswing. We're looking into placing her back on preventative antibiotics so these infections that she is prone to don't put her in such danger. I keep playing back in my head what I could've done differently but the answer is nothing. Nothing other than get a service dog for her, which you all are making happen!! Alayna is so unpredictable  and there's no way of knowing when an illness is coming on, and how it will effect her. We can't wait to bring daisy home as these are the exact situations we know we'll avoid. A few more months of training until she comes home thanks to all of you Angels!  ??????

Posted on April 5, 2016

Posted on April 5, 2016

Please see new daisy pics above. She has been busy learning obedience for her public access training. She is so sweet. We are told she is very mature and calm and is doing a tremendous job. 
See also pics of Alayna collecting scents while her blood sugar is low. We had to get cotton balls saturated with her saliva to send to daisy.  We shipped out her scent collection kit today. Daisy will next do her scent training and will have alaynas scent to train on. It's a long process but we're getting there one step at a time! We are so blessed to be going through this process and eagerly await her arrival!!

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