Alan Gustafson - Living with ALS

For: Alan Gustafson
Ottawa, ON, Canada
Organizer: Peter Joynt
of $200,000 goal
92% Complete
Raised by 994 donors

The Story

This is for Alan Gustafson. He is one of the finest people you will ever meet. He is kind, caring, and generous in every sense of the word. He would stop at nothing to help a friend or person in need. He already has, having made a huge impact on all those around him.  Now it’s our turn to help Al.

Al has been diagnosed with ALS. He shares this struggle with his wife, Jess and their newborn baby, Harvey. Harvey was born just one month after Al’s diagnosis. It has been a tough reality for their family, but Al insists he’s going to give this everything he’s got.

Al is a welder by trade and operated his own metal fabrication shop. He was forced to close his business after losing the mobility in his hands and arms. He doesn’t have occupational insurance, leaving their family in a tough spot financially. We invite you to join us in helping Al and his family. Any donation amount is appreciated and will help Al with his medical needs and everyday living.

OFFLINE & EMAIL DONATIONS: You can now make a deposit directly into Al's donation account in person at a BMO branch. Contact [email protected] to get the bank account number, which is required for deposits. You can also send an email money trasnfer to [email protected], which will be deposited in the account. Both of these forms of deposits will be reflected on this page in the total amount raised.

CONTACT: If you have any questions about Al or this fundraising effort, please contact [email protected] 

DONATION ISSUES: Several people have been having technical issues with the donation payment site (PayPal). Firstly the site pushes towards a PayPal payment for those who have PayPal accounts. But a credit card payment is possible. The fields are just really picky. You have to make sure they're all filled out properly. If all else fails, you can send an email money transfer or even cheques for deposit. Thank you for your patience in working through the donation process.

Fundraiser Updates

Posted on December 4, 2016

Posted on December 4, 2016

Farewell to our friend – After a year-and-a-half battle with ALS, Alan Gustafson passed away peacefully on December 3, 2016. He will be missed dearly by friends and family. An amazing man, Al will always be remembered for his kind heart and love for life. A memorial will take place on December 10 at 10:30 AM at the Museum of Nature in Ottawa.

Posted on October 27, 2016

Posted on October 27, 2016

WELDED HEARTS – NOVEMBER 5 IN OTTAWA - A massive fundraising event will be held in Ottawa on Saturday, November 5 for the Gustafsons and ALS Canada. Welded Hearts will take place at Arlington 5 and Wild & Ada’s from 5:30 p.m. to 11:00 p.m. and will feature everything from music and food, to raffles and a silent auction.

The number of people and places contributing to this event is truly remarkable. Dozens and dozens of people, artists, restaurants, and breweries etc. are stepping up to help our dear friends Alan, Jess, and Harvey.

There’s truly too much to list. So visit the Welded Hearts Facebook page to learn more -

Big thanks to all those who have contributed and continue to support this fundraiser. The tally climbs every day, and the love keeps pouring in. Thank you!

Hope to see you November 5th!


Posted on August 16, 2016

Posted on August 16, 2016

A YEAR WITH ALS - It’s been over a year since Al was diagnosed with ALS. To help put it in context, I’ve filmed a new video and posted it on this page. Please check it out and share it with your friends and family. Al’s health has progressed even further from when the video was shot. It’s becoming difficult to understand his speech and even harder to fathom the road ahead for this family.   

We have done an amazing job helping Al and his family. But the truth is, they need more help. ALS is a costly disease. Even after government subsidies, the average cost of living with ALS is estimated to be between $200K and $400K. That goes towards everything from equipment, to home modifications, to numerous medications. The Gustafsons have had to learn just how expensive these things can be.

As Al’s condition progresses, they need more home care to accommodate Al’s needs. He requires assistance with everything from eating to preparing for bed. We want to do everything we can to keep Al at home with his family.

I know everyone receiving this message has already donated to this fundraiser, but if you can find a few more dollars to spare, it would be huge. It’s a hard reality for this family that we’re having to crowd-source their livelihood. But we are a family, so this request comes with love.

Either way, thank you for helping Al, Jess and Harvey and for providing much needed assistance for this family.

On behalf of the Gustafsons, thank you and big hugs,


p.s. here’s the link to the video:

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Alan Gustafson - Living with ALS

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