Posted on August 16, 2016
A YEAR WITH ALS - It’s been over a year since Al was diagnosed with ALS. To help put it in context, I’ve filmed a new video and posted it on this page. Please check it out and share it with your friends and family. Al’s health has progressed even further from when the video was shot. It’s becoming difficult to understand his speech and even harder to fathom the road ahead for this family.
We have done an amazing job helping Al and his family. But the truth is, they need more help. ALS is a costly disease. Even after government subsidies, the average cost of living with ALS is estimated to be between $200K and $400K. That goes towards everything from equipment, to home modifications, to numerous medications. The Gustafsons have had to learn just how expensive these things can be.
As Al’s condition progresses, they need more home care to accommodate Al’s needs. He requires assistance with everything from eating to preparing for bed. We want to do everything we can to keep Al at home with his family.
I know everyone receiving this message has already donated to this fundraiser, but if you can find a few more dollars to spare, it would be huge. It’s a hard reality for this family that we’re having to crowd-source their livelihood. But we are a family, so this request comes with love.
Either way, thank you for helping Al, Jess and Harvey and for providing much needed assistance for this family.
On behalf of the Gustafsons, thank you and big hugs,
p.s. here’s the link to the video: https://youtu.be/D5uppTWCND8