Alaina Shelsta is the eleven year old daughter of Paul and Chris Shelsta. The family live in Richfield, WI.
She has been diagnosed with a rare genetic disorder that can be life-threatening known as Glucose Transporter Type-1 Deficiency Syndrome (GLUT1 DS). This disease is known as severely debilitating and is characterized by seizures, developmental delay and movement disorder. Although there is no cure for this condition, last year Alaina did try one of the two treatments available, the ketogenic diet. Unfortunately, this didn’t work for her body. She is currently on the modified Atkins diet and taking medications, and being closely monitored by her doctors. In spite of all of this, the family were recently told that her condition is worsening and the only known treatments are not working for her. Alaina’s doctor, Dr. Kurt Hecox, from Children’s Hospital in Wisconsin, reached out to Dr. Darryl DeVivo in New York City. Dr. Darryl DeVivo is the well known “top of the world” neurologist doctor who discovered GLUT1 DS (this disease is also known as the DeVivo Disease) in 1991. Alaina is very fortunate that Dr. Darryl DeVivo has agreed to help find a treatment that might help Alaina.
There are a lot of unknowns and uncertainties with Alaina right now, but through this all her spirit remain positive. She continues to be a cheerful and loving little girl. She loves her family, her stuffed animals, reading books, and playing softball and basketball. She gives the best hugs!
Alaina needs your help. Your support will help fund the search for a treatment that will help her live a more normal life. A treatment that will give her hope and the potential to be able to fulfill her dreams of becoming a nurse and helping other people, the way that they now help her.