Posted on February 27, 2018
We know this crowdfunding site will be shared beyond the circle of Julia and Aaron's friends and family. For those of you who don't personally know this amazing family...
MEET THE FAMILY
MADDOX, 18 months old, recently joined the ranks of walkers, and now spends his time toddling about, exploring, and trying to keep up with his big sister. Like most kids his age, he loves trying new foods, a good nap, and learning new words. But unlike most kids, he was diagnosed with a type of cancer called neuroblastoma at 9 weeks of age, underwent multiple rounds of anesthesia for imaging studies, biopsies, blood work, and finally surgery. Thankfully, Maddox is on the road to a full recovery.
NORA, 10, is a 5th grader, a singer in the selective All County Chorus and a dedicated member of her Odyssey of the Mind team. She is an early riser and a kind-hearted, nurturing big sister. She loves playing outside, reading great books, and standing up for what’s right.
JULIA, is Aaron’s wife and Nora and Maddox’s mother. She is nurturing, creative, and inquisitive. She is a planner, a gardener, a teacher by training, a nanny through life experience, and a fighter by nature. Before Aaron’s diagnosis, she planned to start a home cooking business to support working families.
AARON, who worked in global public health until recently, is also a builder in many ways, spending much of his free time renovating the family home. To support the family’s mission of living organically and using local resources, he built and maintained their garden and chicken coop, and started renovating their kitchen for Julia’s business plan in the two weeks just before his diagnosis. He has made some progress over the course of his illness, with the help of friends, but there are many projects left undone, and the family will have to hire help to get them completed.
Aaron and Julia enjoy being with friends, the occasional beer, and hosting get-togethers. They strive to keep their children and their chickens as free-range as possible. They have built a life together for over 15 years, and like any loving couple, had hoped to grow old together.
Since the change in Aaron’s prognosis in January, life has gotten increasingly harder. With most of their family in the Northeast, Julia has taken care of Aaron as well as their children. The family has relied on their friends and Aaron’s parents to help with driving to appointments, preparing meals, maintaining the yard, garden and chickens, keeping up with family finances, and meeting the children’s needs, with visits from out-of-state family filling in some of the gaps.
Being given a terminal prognosis is overwhelming. The family is trying to balance maintaining normalcy for their kids with grieving the loss of a future together. Aaron’s most important goal in the coming weeks and months is to spend time being a husband and dad. And our goal is to help him do that without financial stress and worry.
We are all behind Aaron, Julia, Nora and Maddox. Please share their story, and join us by helping them all we can.