Can you help make MAGIC for CarCar? The Skelton Family has the opportunity to travel to the 2014 MAGIC Convention, but we need help! CarCar has had a lot of medical difficulties since birth. He has stumped Dr after Dr, and this whole journey has been very stressful for all of us. CarCar is currently 17lbs 5oz, 29" tall. Since birth, he weight has been in the 0%tile (actually less than 0%) on the charts. In May 2013 (right after his first birthday) we found out that his weight, head circumference and length all went to the 0%tile. He has been clinically diagnosed in Oklahoma with Russell Silver Syndrome (RSS), but all genetic testing has come back normal and negative for RSS. We have moved to Texas, where we can not find a Pediatrician who is willing to learn about RSS (most have not heard of it!). Most of the specialists CarCar has seen DO NOT agree with the clinical diagnosis, but have not looked for any other diagnosis. We would have some HUGE opportunities at the convention. This includes a visit with one of the top leading RSS doctors, Dr. Harbison, who can give us more of a closure on CarCar than any doctor he has ever seen! If you can not donate at this time, please share our fundraising page to others! Contact the Organizer
MAKE MAGIC FOR CARCAR! Thank You very much!
Please check out www.facebook.com/PrayersForCarsonAlistaire for his whole story & lots of adorable pictures!