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Inflammatory Breast Cancer Research and Awareness

$13,359raised of $30,000 goal
44%

Organizer: Helen Levine Lipkin Family Beneficiary: Inflammatory Breast Cancer Research at Dana Farber in Boston

"Some days you will be the light for others, and some days you will need some light from them. As long as there is light, there is hope, and there is a way." ~Jennifer Gayle

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Fundraiser Details

If I showed you a light pink ribbon, you'd probably think of breast cancer. We see it everywhere, from socks to sweatshirts. But have you ever heard of Inflammatory Breast Cancer?

You're not the only one. This type of breast cancer is pretty darn nasty (not that any cancers are nice). By the time you find out that it is cancer...specifically Inflammatory Breast Cancer...you are already at Stage 3 diagnosis. 


I was first diagnosed with Inflammatory Breast Cancer (IBC) three years ago.  I started with a very aggressive treatment of chemotherapy, a double mastectomy, and radiation. I thought I was all set to go…but a year later the cancer returned.  I have been on several treatments since the reoccurrence. Every time a treatment seems to work…a few weeks later it is ineffective. I am at one of those points again and need a focus to keep my thoughts and feelings positive and to be able to be active in the eradication of this disease. I don’t have control over the cancer, but I do have control over how I respond to the way it affects my life…and hopefully improve the quality of life for other patients affected by this cancer.

This fundraiser is to help build awareness and raise needed funds for research to help find a cure for Inflammatory Breast Cancer.  

100% of the money that you donate will go towards Inflammatory Breast Cancer Research at Dana Farber Cancer Institute in Boston.

We appreciate any amount you are able to donate. Every little bit helps us get closer to our goal. Please help us spread the word to people who would like to support this endeavor and life-changing journey for so many people affected by Inflammatory Breast Cancer.

Links:

Dana Farber
Inflammatory Breast Cancer Research Foundation
American Cancer Society
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Updates

Updates

06/30/2014
by Helen Levine Lipkin Family
Just got back from Dana Farber...the scans were great!  Most of the tumors were the same or a little bit smaller. There was an additional one found in my right lung, but not really of concern at this time....so I am thrilled that cancer is staying put and so am I!!!  Thank you again for all your prayers and words of encouragement...Helen
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06/29/2014
by Helen Levine Lipkin Family
Hey Everyone...had my scans on Wednesday last week and head out to Dana Farber tomorrow to get the results....I am expecting a positive report...it can't go any other way!  I will post tomorrow with an update...thanks again for all of your donations, support, love, and prayers!!
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06/09/2014
by Helen Levine Lipkin Family
Hello Everyone...I had my checkup at Dana Farber in Boston today....things look good...no new growths and feeling pretty healthy....I am staying on the Cabozantinib Clinical Trial but my dose will be going back up to 40mg again...just need this nasty cancer to behave itself and stay put!  Thanks again for all of your support and encouragement....and especially the love!
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05/17/2014
by Helen Levine Lipkin Family
THANK YOU....to all the fans who came out to see our band, FoxForce5....and donated throughout the night....we raised a total of $533!!!!  This puts us over the $12,000 mark!  You all rock!
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05/10/2014
by Helen Levine Lipkin Family
Hey Everybody....back on the medication at a lower dose...feeling good!  I go back for another set of scan in 6 weeks...looking forward to hearing good news again...thank you again for all your support...please keep passing it around!
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04/28/2014
by Helen Levine Lipkin Family
Great day at Dana Farber...the tumors have reduced in size by about 30% and there are no new tumors!!  Side effects are a little too much so Dr. Overmoyer is keeping me off the anti-cancer medication for about a week and then I will begin taking it at a lower dose...I am so grateful for this good news and for all the love and support from everyone!!!  With love,  Helen
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04/22/2014
by Helen Levine Lipkin Family
It's been six weeks since I have been on this new drug...it seems to still be working...bothersome side effects...but it's worth it!  Tomorrow I go to Dana Farber for my scans...a CAT scan (neck, chest, and abdomen) and a bone scan.  I get the results on Monday, so I'll keep everyone updated.

"Nothing is permanent in this wicked world, not even our troubles." ~Charlie Chaplin
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04/15/2014
by Helen Levine Lipkin Family
Hello everyone...the medicine is still working and looking forward to a good scan next week!  The donations from everyone has been incredible...from all over the country!  We have a little under 60 days to get to our goal...keep passing it along.... with love...Helen <3
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04/07/2014
by Helen Levine Lipkin Family
Hey everybody...just got back from my check up at Dana Farber...the new medication is still working...I have developed some side effects but not too bothersome.  They have some other medications to help eleviate some of those.  Even though the cancer is subsiding, it will never be gone.  I will be on this medication until it stops working or the side effects are too much. There is no cure....so that is why your donations are so needed to find a cure to this nasty disease....thank you to all who have donated so far...please keep passing this link around and spread the word....with love....Helen
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03/30/2014
by Helen Levine Lipkin Family
Thank you for all the contributions and positive prayers!!!  Keep passing it around and let's hit the $11,000 mark to end the month of March!
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03/24/2014
by Helen Levine Lipkin Family
We are officially at $10,000....1/3 of the way there....THANK YOU!!!!! <3
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03/24/2014
by Helen Levine Lipkin Family
Good News...I had a follow-up appointment at Dana Farber this morning.  All week long I have been noticing changes in the cancer on the surface of my skin since taking the new medication...It has been shrinking and looks like its healing!  Dr. Overmoyer was so pleased and said she hasn't results happen in such a short amount of time!  Some side effects have been emerging but we are working on managing them...keep praying and keep passing around the fundraiser information we almost 1/3 of the way to our goal...with love...Helen
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03/22/2014
by Helen Levine Lipkin Family
Wow...incredible generousity from so many people...we are almost to the $10,000 mark which will be 1/3 of the way towards our goal...keep passing in on and encouraging people to donate...Thank You!
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03/18/2014
by Helen Levine Lipkin Family
I had my appointment at Dana Farber today...there is more of the cancer but it has not spread to anywhere else so that is good.  We expected it to grow because I have not had any treatment for about four weeks.  Today I took the first pill for the new treatment - XL184 (cabozantinib)...I have a good feeling....this is going to be the one to knock this cancer to the curb...thanks again for all the love and support from all of you...Helen
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03/18/2014
by Helen Levine Lipkin Family
I had my appointment at Dana Farber today...there is more of the cancer but it has not spread to anywhere else so that is good.  We expected it to grow because I have not had any treatment for about four weeks.  Today I took the first pill for the new treatment - XL184 (cabozantinib)...I have a good feeling....this is going to be the one to knock this cancer to the curb...thanks again for all the love and support from all of you...Helen
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03/18/2014
by Helen Levine Lipkin Family
I had my appointment at Dana Farber today...there is more of the cancer but it has not spread to anywhere else so that is good.  We expected it to grow because I have not had any treatment for about four weeks.  Today I took the first pill for the new treatment - XL184 (cabozantinib)...I have a good feeling....this is going to be the one to knock this cancer to the curb...thanks again for all the love and support from all of you...Helen
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03/11/2014
by Helen Levine Lipkin Family
Well today is my birthday and also had an appointment at Dana Farber in Boston.  We got the updates on the cancer from the biopsy they did last week.  The cancer has mutated or changed and is now Triple Negative....not very good. It means that it will be more difficult to treat...I will be beginning a targeted therapy next week...it is a Phase II Trial with a drug call XL184 or Cabozantinib. The upside is it is not chemo so I do not have to go in each week for treatment but rather take a pill each day at home with check-ins every three weeks at Dana Farber.  They have had some good results with people with triple negative cancers....I will keep you all posted on the progress...Helen
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03/07/2014
by Helen Levine Lipkin Family
Going to Dana Farber on Tuesday, March 11th....my birthday....to see what the plan is for treatment and to begin my new therapy...It has to be a good day to go because it is my birthday...I will let everyone know results...thanks again for all of your love and support.....Helen
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02/26/2014
by Helen Levine Lipkin Family
Today was a liver biospy...all went well...it will be about a week to get results which will determine the next course of treatment...Thank You for all the love and support!!
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