26.2 Miles for Amyloidosis

$12,050raised of $5,000 goal
100%

Organizer: Julie Hansell Beneficiary: The Amyloidosis Center at Boston University Medical Center

This fundraiser is closed

My father, James Hansell, was recently diagnosed with Amyloidosis, a rare but serious blood disorder.  In honor of my dad,I will be running the Kentucky Derby Festival Marathon on April 27th, 2013, in Louisville, KY. I would like to raise $5,000 before the day of the race to donate to Boston Medical Center's Amyloidosis Research Fund. Over the last ten years, this research has led to new treatments which have significantly increased life expectancy and improved quality of life for those diagnosed with Amyloidosis. My family and I would be incredibly grateful for any contribution that you would be willing to donate towards this cause! Please leave a donation here!

Love, 
    Julie
Updates

Updates

04/22/2013
by Julie Hansell
Dear Friends and Family,
     My dad, Jim, passed away peacefully on Saturday, April 20th at 9:45am.  He was in no pain, and was surrounded by his family.  His funeral will be this Wednesday, at 11:00am. at Temple Beth Emeth in Ann Arbor, followed by the burial and a luncheon.  

    I wanted to thank each and every one of you for your incredible support and generosity in supporting my dad and donating to my fundraiser.  I will still be running the marathon this Saturday in dad's honor and memory, and I am so greatful for all of your support and encouragement in this endeavor.  It is absolutely incredible that we were not only able to reach our fundraising goal, but surpass it.  My dad was, and would be, so proud of such outpourings of generosity in his honor.  My mother, brother, and I are so blessed to have such wonderful friends and family.  Again, thank you so much for your generous donations.  Together, we can stop this horrible disease from taking any more precious lives.  Rest in peace, dad.  You will forever be in our hearts, our minds, and our lives.  
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03/12/2013
by Julie Hansell
Hello!
     
     Dad just finished his first round of treatment!  He's been reporting minimal side effects, and was feeling well enough to travel to Michigan for a little Hansell family reunion this weekend.  Adam is already in Ann Arbor, and I will be meeting them on Thursday.  My parents will move into their Boston apartment next week, and dad will begin his second, more aggressive, round of treatment.  

    Thank you for your continued love and support!  We will continue to keep you all updated as dad's treatment plan continues to move forward!

Love,
    Julie
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02/28/2013
by Julie Hansell
Hi everyone!

    Mom and dad just returned from another successful round of Chemotherapy in Boston (round 6).  Aside from a little fatigue, dad says that he is feeling well!  Donations are still coming in, which is incredible!  I will be leaving on Saturday to lead a college Spring Break trip to Cumberland Island, GA, for a week, so I will not have internet and likely no phone service as well.  So, if you get in touch with me and don't get a response, that's why!  And, of course, thank you all so much for everything that you are doing for my family!  Sending love your way!

Love,
    Julie
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02/25/2013
by Julie Hansell

Mom and dad just came back from another successful trip to Boston.  Here's the latest update from my mom:

     Hello all.  We made it to Boston with no problems yesterday despite a bit of snow, which has already melted today.   This morning Jim had labs drawn, met with the doctors, and began round two of chemotherapy.  They are pleased with how he is doing.  So far he has only a few "nuisance" side effects like itchy skin and puffy eyes, nothing at all to worry about.  We are now in the airport heading back to Rockville.  We will return to Boston on Wednesday/Thursday for another infusion, have the weekend back at home, and then will be in Boston most of next week to to complete this cycle of chemo and begin some preparation for the March stem cell transplant. 

      Thank you so much to everyone who has donated to amyloidosis research in support of Julie's April marathon.  The Boston medical team is very grateful for the funding this will provide for research.  They have linked to Julie's fundraiser on their site.  Go to http://www.bu.edu/amyloid/research/ and look at the link in red on the right site for the Derby Marathon Fundraiser.  It features a photo of Jim in his wetsuit and swim cap at the triathlon he did last September with Julie on Detroit's Belle Isle. 

      For those who have been asking about visiting us in Boston, we did inquire about this today.  We were told that Jim should really not have any visitors until his immune function has stabilized, which will probably be towards the end of April at the soonest.  We will be in touch, but unless you hear otherwise, you can assume things are going OK.             Love Andy and Jim

Thank you all for your continued donations and support!  

Love,
    Julie


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02/20/2013
by Julie Hansell
We have been so ovewhelmed by the incredible amount of support and number of donations that we have received since the site went up!  Thank you to each and every one of you for your generous contributions; it means the world to me and and my family.  We could not ask for a more amazing and inspiring group of family and friends.  Thank you thank you thank you!!!

Love,
   Julie
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02/19/2013
by Julie Hansell
If you'd like to donate via check, please make the check out to Boston University Amyloidosis Research Program.  Then you can mail it to my home address so that I can add it to the fundraising total!  My address is:

Julie Hansell
318 North Calvert St. Apt #4
Muncie, IN, 47303

Thank you!
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02/19/2013
by Julie Hansell
Preliminary chemo treatments have been going well so far, and dad is reporting no side effects!  Dad, mom, Adam and I have all planned to reconvene in our cute little apartment in Ann Arbor for St. Patrick's Day weekend.  It will be the first time that Adam and I get to spend some time with dad since his treatment started.  I can't wait for all four of us to be able to spend some much needed time together, even if I will be sleeping on the couch!  Much love to all of you from all of us, and thank you so much for your unwavering support!

Love,
    Julie
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