Friends of Finn

For: Finnegan Straub
Organizer: Rachel Rinoski
$16,870
of $20,000 goal
84% Complete
This fundraiser is closed. Thank you for your support!

Dear Freinds of Finn,

It is with a heavy heart that I write to you to let you all know that Finn received his angel wings last night, January 12, 2014.  Finnegan “Finn” Joseph passed away peacefully in the arms of his loving parents, Tom and Lauren.  In over his two years with us, Finn touched so many lives and was loved so very deeply by family and friends. His life was a gift to us all, joining and connecting so many wonderful people through our love and admiration for our little courageous fighter.

Finnegan was born with an extremely rare genetic disorder called
MIC-CAP Syndrome.  He is only 1/11 in the world with this diagnosis. 
Some of his Symptoms Include:

  • Uncontrolled Seizures/Infantile Spasms 24/7
  • Extreme Neurological Impairment
  • Feeding Tube/24-7 Oxygen & Suctioning
  • Urinary/Bowel/Kidney Problems
  • Reflux/Aspiration
  • Apnea
  • Vision and Hearing Impairment

I have updated this page and we have started a fund to help his family with the costs associated with his funeral and memorial in addition to all of his medical expenses.  Thank you all so much for your love and support.

Peace and Love
Rachel Rinoski - Lauren's Sister and Finn's Auntie



Updates

10/16/2013
by Rachel Rinoski
Please check out Finn's debut on our local news!! He did great!! 

http://www.wtnh.com/news/health/2-year-old-harwinton-boy-battles-rare-genetic-disorder



09/26/2013
by Rachel Rinoski
Finn's chair has been ordered and is in process!!!! Thank you for all your donations to help make this possible! Next we will be looking into a new sleep positioner/bed! 

09/12/2013
by Rachel Rinoski
The wonderful people at Prospect Designs are coming to meet with us to get the ball rolling for Finns new positioning chair on Monday! Very excited!!

09/08/2013
by Rachel Rinoski
Looking forward to bringing Finn home from this recent hospital stay for many obvious reasons. But also to call and get his new chair ordered!!! 
People say 'It takes a village' and well, we've become very grateful and fond of ours!! 

Supporters

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