We are overwhelmed by the outpouring of support shown to us at yesterdays benefit golf outing, dinner and silent auction!! So many folks worked so hard planning it and the turn out was amazing. Weather could not have been more perfect! Which for memorial day in northern Michigan is a blessing! We are forever grateful for not only the financial support but the many cards and beautiful notes written.. this is a wonderful community and we are blessed to live here and have such incredible friends..
on may 3rd, we found out that the drug tom has been taking since 7/12 (sutent) had stopped working. the latest ct scan showed growth of the existing tumors and a new tumor developing in his left lung. he had also lost some weight dut to the loss of appetite from the drug side effects. because of all this, he had to stop taking the drug and has now been off of it for 2 weeks. his appetite has returned and he has gained some weight back already since may 3rd and he is feeling better without the drug running through his system but it is time to take the next step.
today, we met with the oncologist who had conferred with the RCC expert at UM hospital who we saw last summer. there is another drug tom will be trying in hopes to stop the growth of new tumors. it is called "afinitor" and once we hear from the insurance company and pharmacy as to whether or not it will be coverd and how much, tom will start taking it....but first he will be finishing the huge spring planting of annuals for all his clients and mulching those who need that. he wants to get this work done before he starts a new drug, as he is feeling pretty good now and has no idea what will happen once he starts something new.
the doctor did tell us that he will let us know when he feels we have reached that 'line in the sand' so to speak, when we should just stop and let nature take it's course, but NOW is NOT the time!
so, we are on hold for a bit but reassured that waiting 10 days to 2 weeks is not a problem.
it has been a tough 10 days but now we have a plan for the next step.
thank you again for your thoughts, prayers and donations as tom continues down this uncertain and scary road.
and thanks to anyone and everyone who is participating in the fundraising benefit on may 27th!!
tom and marianne
SPRING IS HERE!! FINALLY!!!
Tom has begun working this week..he and Michael are happy that the weather has finally begun to show signs of spring.
because tom tires easily now, he and michael are starting slowly and will work up to a FULL day. tom is pretty tired when he is done with the day and comes home to rest awhile but he is SO happy to be outside again, doing what he loves..
we thank god for michael's willingness to stay here and help with the work so tom can continue. we owe him so much! he should be off finishing school somewhere or working in something he loves, but for now he has decided that this is where he needs to be, helping his dad as long as he can.
may 3rd will be our next appointment at the oncologist's to compare the most recent CT scan (last week) with the ones previous. as you know, this is always a scary appt. but tom is confident that all will be well and stable. i will post results as we receive them.
we want to thank everyone for thoughts, prayers, donations...we also want to thank all those wonderful folks working on the benefit for tom on may 2th..you are terrific friends..
tom and marianne
After 3 phone calls to the oncologist, we finally got through to them that Tom needed help with the ongoing, almost constant cough, brought on by the 'chemo drug' he has to take. There is obviously no real way of knowing what to do for it but the doctor agreed to try an inhaler and see if that might give him some relief. Sad that the patient has to investigate and come up with suggestions for the doctor! grrrrr. but, all that aside, we picked up the inhaler and Tom has used it this evening. I don't want to get too excited too quickly BUT, it seems that it has helped already. Fingers crossed that it really will help!!
Our huge thanks to all those who have recently contributed to our fund raising efforts. We can never thank ALL of you enough for your kind words and generosity!!
love and blessings,
Marianne and Tom, John and Michael
We continue to be touched by the kindness of so many people.
As a winter storm blows around us tonight, we are warmed by your generosity
Tom is fatigued by the afternoon after doing snow removal and spending a few hours
in his shop, keeping the woodstove stoked but he has yet to start working in his clay.
I still hope he will find the strength to do it one day soon.
Thanks again to everyone for your generosity!
~~marianne and tom
We are humbled and overwhelmed with the kindness of friends and strangers over the past 36 hours.
Your generous donations to our medical fund have touched us deeply and we will put every penny to good use.
Many thanks to all who have contributed thus far. We know times are hard for everyone and we can never repay your kindness.
I have sent out numerous prints and books today and have more to send tomorrow!
~~marianne and tom