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The Great Santino Fund

$4,230raised of $5,000 goal
84%

Organizer: Team Santino Beneficiary: Santino Gomez

Santino, or "Little Saint", is a sweet and precious six month old baby with an extremely rare brain malformation called Bilateral Perisylvian Polymicrogyria. Help support this amazing little fighter!

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Fundraiser Details

Thank you for visiting Santino's page. If you have a chance, please watch our two minute video which helps to share our story and thank our wonderful supporters.

Just a quick note - for those wanting to join Team Santino and pledge against E's pars, birdies, and eagles at the 2014 US Kids Golf World Championship, please scroll down to the bottom of this page. All proceeds will go towards Santino's medical expenses. Not sure what this is? Watch our two minute video to see what Team Santino is all about.
 

We all know that feeling of holding our children tight and wishing the world that all their hopes and dreams will come true. Santino Gomez was born on January 21, 2014 with an extremely rare brain malformation called Bilateral Perisylvian Polymicrogyria (BPP). There is not much research in this area, and we have found that no two cases are alike. We know that it has caused Santino to have low muscle tone throughout his body affecting his airway and digestive system. It is also the cause of a condition called Arthrogryposis Multiplex Congenita (AMC). AMC is described as multiple contractures in more than one limb due to the lack of movement in the womb.

From the get go, Santino has proven to all of us that he is a fighter as he has already defied the odds in many ways. At only six months old, he has been through enough surgeries, procedures, and needle pricks to last him a lifetime. But like any little warrior (or saint), Santino needs access to the best medical care and physical therapy possible to ensure that he can reach his full potential. Unfortunately, not all medical expenses are covered by insurance and one can only imagine the financial burden involved to ensure that Santino receives 24 hour care at home. It would be truly amazing if Santino's parents could focus on Santino's health and not worry about anything else that could impede his bright future. 

More than anything, Team Santino asks for your prayers. All who pray for Santino or share his story are directly responsible for the amazing progress that he has made thus far. With the grace of God, Santino's fighting spirit, and a community of hope, we can help Santino to continue to defy the odds.

On behalf of Team Santino (including Santino's mom and dad, Amanda and Bobby, and two older siblings, Olivia and Teyo) thank you SO much for taking the time to even read about his story. Tonight, hug your little ones a wee bit tighter, just for us. 

Read more about Santino's journey on his blog, or follow him on Facebook under The Great Santino.


Want to join Team Santino? Pledge against E's pars, birdies, and eagles at the US Kids Golf World Championship 2014!

1. Email TeamSantino2014@gmail.com and tell us what donor level you'd like to sign up for. Donor levels are listed below.
2. We'll keep you updated on E's progress at the US Kids Golf 2014 World Championship which is July 31st to August 2nd, 2014.
3. Once the World Championship is over, we'll email you with the pledge amount owed.
4. You can use this fundraising page (YouCaring.com) to pay directly. All proceeds will go towards Santino's medical expenses.

That's it ... you're not responsible for swinging the clubs but we'd love your prayers for both E and Santino when they play at Pinehurst. 

Donor Levels (based on 27 holes played, 3 day tournament, 9 holes/day):
1. Silver: $.50/par, $2/birdie, $5/eagle, $10 max pledge (optional).
2. Gold: $1/par, $5/birdie, $10/eagle, $25 max pledge (optional).

3. Platinum: $2/par, $10/birdie, $20/eagle, $50 max pledge (optional).
4. Champion: $5/par, $15/birdie, $25/eagle, $100 max pledge (optional).

***And just to keep things interesting, E's mommy and daddy are going to pledge $1,000 if he makes a hole-in-one!***







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Updates

Updates

07/15/2014
by Team Santino
Not a vortex of goodness, this fundraiser is really just a bright spot of help.

Today marks a very important day. For one, we are just a few donations away from hitting the $4,000 mark which is 80% of the way to our final fundraising goal. However, more importantly, today is a very important day because we were able to get the update from Little Santino's mom regarding his very first movement lesson at a special place called, you guessed it, "The Movement Lesson"!

So often we donate funds towards wonderful causes but we rarely get to see exactly where the money is used. We know it's used to help another person or a terrific organization but we don't actually get to see how it changes someone's life or helps a special family in need. For Team Santino, we know that every dollar is going to help Santino attend more of these amazing movement lessons and help him get to Seattle to see a neurologist who studies polymicrogyria. So every little bit helps ... your prayers, your support, everything ... and we thank you very much!



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So often we donate funds towards wonderful causes but we rarely get to see exactly where the money is used. We know it's used to help another person or a terrific organization but we don't actually get to see how it changes someone's life or helps a special family in need. For Team Santino, we know that every dollar is going to help Santino attend more of these amazing movement lessons and help him get to Seattle to see a neurologist who studies polymicrogyria. So every little bit helps ... your prayers, your support, everything ... and we thank you very much!


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07/11/2014
by Team Santino
Chuck Taylors, angels, and official countdowns . . . Oh, my!
Chuck Taylor's have nothing on Santino's new kicks because Santino's new braces are pretty stylin' and profilin'. Amanda, Santino's mom, told me that they're a bit heavier than expected but judging from the leg lifts I've seen Santino do on FB videos, by the end of the year Santino will have a six pack from lifting those legs (with braces) high up in the air! I wish I could say the same. 
Angels continue to come out of the woodwork. I just had a cousin-in-law like four times removed (slight exaggeration) ping me to inquire about making a donation. It's amazing how social media coupled with kind, generous hearts can combine into something so powerful - and all for an awesome little boy with the heart of a warrior (or saint).
I think that the official countdown clock can begin . . . because we are exactly TWENTY DAYS away from the US Kids Golf Championship in Pinehurst, North Carolina! Speaking of six packs, E continues to train as hard as any five year old would to prepare for a world championship. He remains a devoted disciple of Ab Ripper X and has stepped up his practice time at PGA Superstore and Ocotillo Golf Resort with his beloved Coach, Kay Cornelius. And before any of you think we're Tiger Parents, E watches plenty of Godzilla and consumes a tremendous amount of refined sugar in the form of Skittles on a very regular basis. 
Thank you again so much for continuing to support Team Santino. Many of you have donated and even more of you have shared Santino's story which means the world to us. Let's keep the momentum going ... this isn't over! Santino's a fighter and so are we ... let's keep marching towards our $5K goal and please help us get there! 

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07/09/2014
by Team Santino
I finally figured out how to add everyone's pledges to the site ... To see a current list of teammates on Team Santino please click on the Supporters tab.

The Eagle hasn't landed yet but it would surely be nice if it did . . .

It has been both amazingly overwhelming and moving to see how generous family, friends, and strangers have been over the past few days. When we first created this site I put a $1K target goal and then at the last minute changed it to $5K thinking that there's no such thing as failure in this effort so what the heck. And now we're barely three days into our fundraiser and we are past the halfway mark - unbelievable. 

The cool thing about the pledge system is that it certainly makes for an interesting event! Based on the current pledges in place, here are the potential dollar amounts E and Santino can bring in for EVERY par, birdie, and eagle. And there are 27 holes! $865 if E gets an eagle? Um, crazy. And for all you pledgers out there holding your breath, E has only had one chip in eagle during tournament play but you never know! You should be praying for his mommy and daddy ... We pledged $1,000 for a hole-in-one and he HAS had one of those as well!  Upside is that it goes to an awesome little boy.

 Par  $        146.50
Birdie $        492.00
Eagle $        865.00

Don't forget to visit Santino's FB page at Facebook.com/TheGreatSantino and like his site so that you will automatically receive his updates in your FB feed. He just posted pictures of getting his casts removed and he is sporting some cool braces but for now we'll pretend they're Air Jordans .... And the kind you pump up - booyah!

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 Par  $        146.50Birdie $        492.00Eagle $        865.00
Don't forget to visit Santino's FB page at Facebook.com/TheGreatSantino and like his site so that you will automatically receive his updates in your FB feed. He just posted pictures of getting his casts removed and he is sporting some cool braces but for now we'll pretend they're Air Jordans .... And the kind you pump up - booyah!
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07/08/2014
by Team Santino
We kicked off our FB and email campaign yesterday and we have already received $2,125 in pledges for Team Santino. Thank you SO much to the following team members - we are truly blown away by your generosity!

1. Li Family - Champion
2. Karroum Family - Champion
3. Matt, Beth, and Austin Butters - Champion
4. Wehner Family - Champion
5. Dave Estipona - Champion
6. Erin, Rodolfo, and Preston Estipona - Champion
7. Mike Estipona - Champion
8. Adamos Family - Gold
9. Garcia Family - Gold
10. Sue and Paul Gustafson - Champion
11. Willenbrink Family - Champion
12. Chapman Family - Champion x 3 on behalf of their three grand children (Henry, Clara, and Brooklyn)!
13. Dom and Lina Estipona - Champion
14. Daniel and Lisa Butters - Pro-Championship Sponsor :)
15. Coach Kay Cornelius
16. Sandi Keller - Platinum
17. Amy Addis - Gold
18. Devin Mullins - Platinum
19. Samantha Bero - Gold
20. Umang Jokhaker - Platinum
21. Laura Carron - Gold
22. Chris Ryan Van En - Champion
23. Mary Travis - Champion
24. Stacy Robles and Taylor Chapman - Champion
25. Queen Elsa (Kendall) Butters - Gold (straight from her pink piggy bank)

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07/07/2014
by Team Santino
We kicked off our FB and email campaign last night at 9PM and by 7:30AM we have already received $1,500 in pledges for Team Santino. Thank you SO much to the following team members - we are truly blown away by your generosity!

1. Li Family - Champion
2. Karroum Family - Champion
3. Matt, Beth, and Austin Butters - Champion
4. Wehner Family - Champion
5. Dave Estipona - Champion
6. Erin, Rodolfo, and Preston Estipona - Champion
7. Mike Estipona - Champion
8. Adamos Family - Gold
9. Garcia Family - Gold
10. Sue and Paul Gustafson - Champion
11. Willenbrink Family - Champion
12. Chapman Family - Champion
13. Dom and Lina Estipona - Champion
14. Daniel and Lisa Butters - Pro-Championship Sponsor :)
15. Coach Kay Cornelius
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