Team Delaney

For: Delaney Newton
Organizer: Travis Newton - Uncle
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TEAM DELANEY Quote:  "And though she be but Little, she is FIERCE!"  Shakespeare

On September 10th 2013 Delaney Newton was diagnosed with a brain tumor.  Just two days later on September 12th she endured a 12 hour brain surgery by a team of 12 doctors and nurses at Oakland's Kaiser Hospital.  The doctors were able to remove the entire tumor mass in the lower back part of her brain.  The subsequent pathology report revealed that tumor is indeed cancerous.  In just a few short days around Oct 1st she will start chemotherapy that is expected to last at least 1 year.   

Delaney and her parents have been living in the hospital for over three weeks now.  This fundraiser is to help Delaney and her parents manage the unexpected expenses that they will incur while she is undergoing chemotherapy, physical therapy and rehabilitation as she goes between Kaiser Oakland Hospital and UCSF. 

We apprecaite any support you can give to help us with our sweet little Delaney!  No amount is too small or too big, and everything will be put to extrememly good use.  

Uncle Travis Newton - Organizer

Delaney's Family:

Delaney is a Livermore, CA resident just like her parents who grew up there, call Livermore their home, community, and workplace.  She has a younger brother Merlin who just turned 1 that day she was admitted to the hospital...we call him Mini Merlin.  Merlin the father is firefighter for LPFD, which has been offering so much support during this time for their family.  Janice the mother will be taking a leave of absence from her work this next year or more to help with the ongoing care and treatment for Delaney.  There is nothing like a mothers love for a little girl going though so much.  Both Merlin and Janice continue to be by her side 24 hours a day as we fight this battle.        

Also Like TEAM DELANEY - Home Page on FB


by Travis Newton - Uncle
1 year ago today and a new birthday ....
The picture is painful to view, and brings back a flood of bad memories. However, the picture also shows a Fierce Fighter, and tells a story of pain, struggle, strength, determination, and love. Exactly 1 year ago today, Delaney received her first autologous bone marrow transplant. On this day Delaney received her own stem cells back that were taken from her by a apheresis machine, and preserved. After each bone marrow transplant those very stem cells were given back to Delaney, to "rescue" herself, earning another birthday. The chemotherapy she received was too much for the body of a child. And with the tradition of a bone marrow transplant, Mommy and Daddy softly sang happy birthday to Delaney while she lay in the hospital bed. Delaney has come so far in just one year, and again the most recent picture speaks for it's self. We are thankful beyond words. Thank you for all the prayers, love, and support. As always...... GO TEAM DELANEY!!!

Happy Birthday Delaney, we love you.

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
Delaney is doing wonderful.  

No matter what challenges Delaney faces daily, she continues to make progress in all areas of her young life. Yesterday, Delaney had a doctors appointment with her pediatrician, for a thorough exam and to receive her 2nd flu shot. Thankfully her T-Cells are functioning well enough for her to receive her 1st flu shot 30 days ago, and the 2nd yesterday. Delaney's immune system is very fragile and must be treated as though she is a newborn. Delaney's weight is on track and has leveled at around 30 1/2 lbs. range, she is in the 50th percentile for her weight. She in trying more foods and had 1/2 of a hot dog the other day, a big step for her. As for Delaney's motor skills, she, for the most part is walking unassisted through out the house, playing with her brothers, but Mommy and Daddy can see the pride beaming from her face when she gets things out of the refrigerator, or throws trash away, it is the independence she feels, having been dependent for so long. Delaney is making brief trips out of the house, going to the pumpkin patch, walking downtown, and visiting Daddy at work. Most importantly we are able to spend time as a family, doing little things together. We can not be thankful enough for everyone's support, that being said, thank you, for all of the continued support, love, and prayers for our daughter Delaney, they are truly appreciated. As always..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
It has been been a solid 2 weeks since Mommy and Daddy have been able to do a complete and thorough update on Delaney. First off Mommy and Daddy are thrilled to say that Delaney is happy, laughing, full of love and over all, is doing great! A full 8 weeks have passed since Delaney's feeding tube was removed, (after being placed for a year) and now is starting to become a bad memory for all of us. Delaney's last weight check was on Friday, September 26th. She weighs 30lbs. 9oz. Up 3oz from her lowest weight (30lbs. 6oz.). We are optimistic, hoping, and praying that her weight has stabilized and will now finally begin trending upward, gaining weight. She will be weighed again on Friday. This last week Delaney has reached 1000 calories per day, her primary source of nutrition remains puréed foods, milk, and a few solid foods. Physically, Delaney is making progress after she lost the ability to walk over a year ago, Mommy and Daddy are able to watch Delaney walk small distances through out the house unassisted, such a beautiful thing to watch. As a family we try to regain or adapt to our "new normal" but there are many challenges still faced each day due to Delaney's brain operation, chemotherapy and radiation. As hard and challenging as the days are, we are blessed and thankful for Delaney's prognosis, progress, and the ability to regain her physical abilities and health. It is what she gave up during treatment, in order to become healthy again. We as a family are grateful to each and every one of you, beyond words, for the support and love you have given Delaney. Thank you for all the prayers, love, and support. As always ..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
365 Days of Fierce, and Counting!

Exactly 1 year ago today Delaney was admitted to the hospital and her FIERCE Fight began. Just a few days later Delaney would endure a 12 hour successful brain surgery followed by an aggressive treatment plan that included 6 rounds of chemotherapy, 28 days of focal radiation, MRIs, blood transfusions, stem cells, and so much more that no child should ever have to experience. As challenging and hard as it was for Delaney, she is now, as of today, 98 days Cancer Free!

We could not have done it without the support of family, friends, strangers now friends, communities around the country, businesses, nonprofits, co-workers, fundraisers, doctors, nurses, 4,500 plus Fierce Friday shirts, and of course the countless prayers and support we continue to see for Delaney. We are truly blessed to have our daughter surrounded by so many loving and caring people. 

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
Enjoying Life.....

Delaney has been enjoying the simple things in life. Little things she has not been able to enjoy for the past 10 months and 23 days. Delaney has been able to take a handful of baths which she loves doing, at the same time Mommy and Daddy can see the look on her face, and it is as though she is playing in water for the first time again. All week long, little miss fierce, Mommy, and Daddy have been working hard on her feeding therapy, removing some of her formula through out the day in order to make her hungry. Then begins the work to try and get Delaney to eat or drink food on her own. She is doing well, Mommy and Daddy have been able to remove 1 formula push each day, replacing it with chocolate milk or milk. And tomorrow, Sunday, Delaney's feeding tube will be removed once again, to give her a break, allow her to have the sensation of eating without the hindrance of a feeding tube, and to continue to work on her feeding therapy. This week Delaney will have a speech evaluation to see if she has any set backs from the brain operation, chemotherapy, and or radiation. Delaney has ventured out of the house a few times for couple hours for walks, playing with the water hose, and recently to see just one of the many events people have come together to support her in her fight. Thank you. Thank you for all the prayers, love and support. As always..... GO TEAM DELANEY!!

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
Cancer Free....
Delaney wanted to share some exciting news. Last Tuesday on 6/3/14, one day after her MRI, at her follow up appointment and seeing the results of the MRI we received wonderful news. Delaney, Mommy, and Daddy were told that Delaney was cancer free! Although we must remember she has a very long road ahead of her, that page in Delaney's story we will put a bookmark. Thank you for all the prayers, love, and support! As always ... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle

I wanted to share a video of the past 7 Months and 20 Days of Delaney's journey. Tomorrow, Delaney will complete her last day of focal radiation and start the long journey ahead of recovery and therapy. It seems like yesterday when I look back on that Monday September 9th 2013. The family should have been celebrating Mini Merlin's 1st birthday but instead there were tears, frustrations, lack of understanding, and confusion as I could see the look on Janice's and Merlin's faces when we knew something was just not right. As we waited for Delaney's ambulance transfer from Walnut Creek to Oakland more family showed up and little did we know what a hard and tireless journey this was going to be and what Delaney would end up enduring, which no child should ever have to experience. 

As Delaney diagnosis came in on September 10th as a brain tumor, which later was determined to be cancerous the world seemed to stop. We prepared for brain surgery and the treatment ahead. Around this same in this journey we call life, that didn't make sense, TEAM DELANEY was born and a quote posted by Daddy and Mommy above Delaney's bed would become the inspiration for her fight, "And though she be but LITTLE, she is FIERCE!" The blog was created, followed by Team Delaney Facebook page and the support and prayers for our little fighter started grow. Still to today we are still left speechless and humbled by the support that the community close and across the world has given Delaney and her family. I wish I could list everyone that has touched Delaney's life and given the family the ability to be by her side every step of the way but it would be impossible. The support from both parents work, the 9,000 plus FB followers, the over 3900 Team Delaney shirts sold, our infamous FIERCE FRIDAYS, the meals, the donations, blood drives, and the fundraisers that friends organized was nothing we were expecting. We have been blessed by the support during these past 7 moths and 20 days as the Team has stood by Delaney's side for her treatment and have shown to continue to stay by her side as her recovery and therapy start. 

This journey has forever changed our lives and the family lives as we are grateful to have everyone by our side. Someday when Delaney is able to leave the home with the family she will be able to thank many of you with her bright smile and know that you have forever touched her life. We hope and know that in the near future under Team Delaney we too will be able to give back and help other children and their families like ours in the community, that has given us so much.

" And though she be but LITTLE, she is FIERCE!" 
Love Uncle Travis

This list below is what Delaney has endured the past 7 months and 20 days. She has gone through more these past months then most of us will ever in our entire lives but she continues to fight on like she has done everyday! 

September 9th missed little Merlin's 1st birthday (Delaney was admitted to hospital)
September 10th Diagnosed with brain tumor
September 12 brain operation to remove tumor
64 total admitted overnight stays at the hospital (22 days of that was in the Pediatric Intensive Care Unit) 
6 1/2 months of at least 1 vomit a day
2 operations (1 for brain tumor resection, 1 central line placement)
21 days of Chemotherapy
28 days of brain radiation
1 stem cell harvesting, a 5 hour harvest
3 stem cell bone marrow transplants
35 sedations ( 2 for operations, 4 for MRI, 1 EVD removal,1 stitches removal, 2 lumbar puncture, 28 for radiation)
1 Biopsy of tumor
4 MRI scans
31 CT scans
1 EVD placement for CSF drainage
16 X-rays chest/abdominal 
1 complete blood transfusion (during brain operation)
18 Platelet transfusions
14 Blood transfusions 
51 at home Blood draws
2 lumbar punctures
6 IV placements (4 at one time)
1 arterial line placement
1 foley catheter 
4 EKGs
4 echocardiogram
4 renograms for kidney function
15 NG tube (feeding tube) placements
2 surgical dressing changes
1 wheelchair for mobility challenges
4 transports by ambulance

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
21 paper chains down 7 to go.....
Delaney remains as fierce as ever going through her treatment with such beautiful innocence, grace, and a infectious loving smile. Just this past Saturday morning on April 19th Delaney, and her brother Merlin III welcomed baby brother, as Mommy gave birth to a baby boy, Valen Lee Newton at 7:59 am. He came in at 7lbs 9oz 20 inches. Mommy and baby are doing well and at home now. Delaney and Merlin III could not be more proud, happy, and loving to their younger brother. With the newest Team Delaney member. As if things things could not become more complex, stressful, and extremely busy, Mommy and Daddy are at capacity. Call it what you may, coincidence, representation; but in a season that brings new life, warm sunny days, bright colors, and rebirth. It is only proper that Delaney end her treatment at such a beautiful time of year for a fresh start. Although Delaney will have many years of physical therapy, tests, and daily challenges, this is it, the home stretch, 7 days left and the big countdown next week with her last thee radiation treatments. Thank you for all the prayers, love and support. As always.... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
7 paper chains down, 21 more to go.......
The week started off rough for Delaney. Sunday night, 15 minutes before her formula was to be shut off for the night Delaney vomited, and it was such a large vomit her feeding tube came out through her mouth immediately, and Daddy had to pull the tube out through her nose. Mommy and Grandma were quickly by Delaney's side. It was an anxious night since Delaney is not eating or drinking on her own and she lost most of her nutrients and hydration that night. That morning, Monday, Week 2 of focal radiation began. Since Delaney vomited and lost hydration Mommy and Daddy asked for an IV bolus of fluid while she was sedated to keep her well hydrated until she could have her feeding tube placed again. Delaney's home health nurse was by that morning and placed the Feeding tube back in again. Delaney continues to do very well through radiation treatment, her radio oncologist said that her CAT scans that are taken before each treatment are overlaying perfect with last MRI she had, as this is the mapping for the delivery of the radiation. Delaney is very happy and active at home but does take longer naps. Today Delaney had a follow up appointment with pediatric physical therapy to assess her progress of her motor functions. Since the brain operation Delaney has had to re-learn all of her basic motor functions that we use everyday, without realizing it. The physical therapist said Delaney has improved immensely, one step at a time she is taking back what once was hers. The days and nights are long, slow and grinding, but Delaney surprised Mommy and Daddy today by smiling, pointing and even did a little dance as she showed us to her treatment room where she receives radiation. She is very determined and pushes thorough each treatment, making it look so easy. Thank you for all of the prayers, love and support. As always..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle

Delaney's neuro oncologist called Mommy and Daddy to give us beautiful news that Delaney's full brain and spine MRI scan is all clear with no changes!!! Bringing tears to our eyes. Delaney, Mommy and Daddy have been waiting on pins and needles all day, at times the weight of stress, unbearable. Delaney was sedated at 8am and her MRI was underway and it took 2 hours to complete. Delaney is in great spirits, happy, full of life and love!! Thank you for all the prayers, love and support. As always.... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
Delaney, Mommy and Daddy met with her neurologist today and discussed many things at length. Delaney has fought fiercely through 6 rounds of chemotherapy and come out on top. She completed it in full, no chemotherapy doses were adjusted, she was not late for any cycle and most important she finished all the cycles. However Delaney's FIERCE FIGHT will continue.

As young parents we have been thrown into unimaginable circumstances, and decisions that no parent should have to make or experience, ever. Agree, or disagree with her treatment, there are strict protocols for a complete treatment, time must not be wasted in these circumstances, remember this is Delaney's story. This is a reality we live with each day. Mommy and Daddy fight fiercely at her side, with Team Delaney at her back, to achieve cure. That said, one effective tool that has not been used yet, that is part of the protocol for her diagnosis is focal radiation. That treatment will start in a month or so, just as Delaney is about to be an older sister for the 2nd time. Delaney was diagnosed when Mommy was 9 weeks pregnant with our 3rd child. Mommy and Daddy planned the kids close together. Treatment will be for 5 1/2 weeks, sedation and then radiation, 5 days a week over 15 minutes. Mommy and Daddy will be stretched thin, 3 children under the age of 3 one in a fierce fight. What wouldn't we do for our child.

As Team Delaney has walked with her through her story, we ask that you continue to walk with her, steadfast, keeping her in your prayers, thoughts, heart and with positive energy. It is truly felt. Thank you. Let's witness as Delaney she fiercely gives cancer both barrels. Thank you for all the prayers, love and support. As always.... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
Feb 16th,
In Delaney's story today she finished writing the chapter on her chemotherapy treatment. Although she reached a huge milestone today and is done with chemotherapy, her story is not yet over. In the next few weeks Delaney will still need blood and platelet transfusions. We will have to watch out for fevers and signs of infection. And then there will be the follow up MRI and lumbar punctures to determine if her tumor is still 100% gone and if any follow up treatment is necessary. We appreciate the continued prayers, love, support and positive energy. Our family cannot thank you enough! As always.....GO TEAM DELANEY!!

"And though she be but LITTLE she is FIERCE!"

by Travis Newton - Uncle
Round 5 Begins....
It was busy getting Delaney settled in her room yesterday, it is tough, only a hour into admission at UCSF Delaney is asking and wanting to go home. Mommy and Daddy have a difficult time explaining to Delaney why we are here, and what is being done. We just reassure her that Mommy and Daddy will be right by her side, we are not going anywhere, we came here together and we leave together. Everything that comes in to the room must be wiped down, with sani-wipes, everything. We packed 4 bins, everything that is in the bins were wiped down prior to packing. All clothes must be washed in hot water and dried on high heat prior to Delaney's admission. Mommy and Daddy, each day must do a 2 minute scrub down up to our elbows, and if we leave the hospital we must do it again upon returning to Delaney's room. This is to do everything we can to keep Delaney's room as clean as possible, during chemotherapy and her stem cell transplant. Delaney herself received a bath once in her room, and changed into clean clothes. Next we met and discussed with the BMT doctor, nurse practitioner, and nurses how Delaney did with her last treatment, what the plan will be this admission, we went through her plan for anti-emetics, got her height, weight, and base line vitals. Following that we did all we could to make Delaney happy and relaxed as possible. Delaney's plan is as follows; Friday pre-hydration and medication, Saturday and Sunday chemotherapy over 4 hours each day, Monday a day of rest, Tuesday she will receive her stem cell transplant or also known as her stem cell rescue, and finally if everything goes well possible discharge on Wednesday. From Saturday onward for about 2-3 weeks it will be extremely tough for Delaney as her stem cells find their way back to her bone marrow and graft themselves back in an produce new cells for her body. Thank you for all the prayers, love, and support. As always ......GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
New Years Update..Great Start but Busy!!

Last night and today has gone very well. Delaney finally had a day where she did not vomit. This makes everyone happy, she was able to get formula and liquids and keep them down so her body could absorb them. It is a big deal when the only formula and liquids she gets adds up to about half of her daily caloric intake, which is around 1200. But Delaney has had a great day full of rest and playing with brother, Mommy, Grandma, and Daddy. This is a day she needed to break the cycle of nausea, vomiting, and just being sick. We hope and we know Delaney will work hard to keep this good momentum going forward. Tomorrow Daddy will do a blood draw early in the morning, so we can get Delaney's blood counts and see if she will need a transfusion. Then Delaney has a hearing appointment to make sure there is no damage done to her hearing from the chemotherapy she is receiving. Depending on the results from the blood draw it will determine weather she will need a transfusion. UCSF has an appointment already scheduled just in case she does need blood or platelets or both. It will be a busy day tomorrow. The pace has not let up for one brief second, but just as Delaney does, she keeps her head down and fiercely pushes on one day at a time. Thank you for all the prayers, love and support. As always.....GO TEAM DELANEY!

"And though she be but LITTLE she is FIERCE!"

by Travis Newton - Uncle
Sunday Update....

Today, is day minus 1. Delaney has received all of her chemotherapy for this round. Tomorrow will be day zero, when she receives her stem cells back. Last night was very rough, Delaney went to bed early, and was restless all night and she was up at 330 am. Mommy and Daddy are exhausted to say the least. She was nauseas this morning and did vomit at 8am. She them napped for a couple of hours. Today is a rest day, her body has been through so much and will now receive stem cells back and will have to work hard to graft them back in to place to produce more cells for the body. Delaney finished her regiment of baths this afternoon, this was done because one if the chemotherapy drugs Thiotepa is excreted through the skin and can cause redness and sores in the skin folds, up to 24 hours after the chemotherapy is given. Thankfully Delaney did not have that problem. The day went by slow, but Mommy and Daddy came with activities for Delaney to do while she is in bed. 
Her favorites were a book of silly animal faces and her light brite. She had another Broviac dressing change today along with both caps being changed. Delaney does so well with these changes the nurses were impressed. Delaney went to sleep at a somewhat normal time tonight, 8:45pm. We are hoping she sleeps well, she will need some good rest for the big day tomorrow. Mommy and Daddy are very anxious for tomorrow. We don't really know what to expect. 
Thank you for all of the love, prayers and support! GO TEAM DELANEY! 

"And though she be but LITTLE, she is FIERCE!"

by Travis Newton - Uncle
Fierce Friday Update...

As Delaney ends her busy week full of tests and procedures on Fierce Friday, Mommy and Daddy cannot help but to look back at this week and see how well Delaney has handled all that was thrown her way. Delaney had an appointment every single day. Delaney this week had an MRI with sedation, renogram, hearing test, echo cardio gram, lumbar puncture with sedation, 3 blood draws, and an appointment with the bone marrow transplant doctor. She has handled each appointment with smiles and confidence, she did fuss from time to time but always kept fierce. All of the tests on her vital organs look good and have not been damaged from the big aggressive doses of chemotherapy she has received. We have yet to receive the results from the lumbar puncture yesterday, there is much anxiety and stress, and it is heavy on the minds of Mommy and Daddy. Grandpa was able to come to UCSF with Delaney today and she loved it, she liked to have him in the room with her and hold her. As we met with the bone marrow transplant doctor today at UCSF we were able to have many questions answered. Delaney will have 3 more rounds of chemotherapy at UCSF, doses big enough that will wipe out her bone marrow, from there she will be given back her own stem cells harvested last month, back into her blood stream. From there the stem cells will find their way back to the bone marrow and graft themselves back into place and start to produce all of the cells her body needs over again. This process can take up to 4 weeks for each cycle. She can also be expected to be at UCSF 2 times per week receiving a transfusion of blood and or platelets. Delaney as of now is to be admitted on Monday. From the blood draw UCSF did today Delaney's counts dropped again, possibly moving her admission day back later next week, Delaney will have the weekend to hopefully get her counts back up and daddy will have to do a blood draw early Monday, so we can see her counts and if they will be high enough for her to be admitted later that day. As with keeping to our tradition of pizza and cookie night on Fridays, we were able to do so, but Delaney has been asleep since 5 pm. We hope she will be up soon to try and eat, but we know her body needs rest. We know Delaney is looking forward to a couple of uninterrupted days at home playing with brother, and simply trying to enjoy her time as a happy 2 1/2 year old. Thank you for all of your prayers, love and support. As always...... GO TEAM DELANEY!!!!!

"And though she be but LITTLE she is FIERCE!"

by Travis Newton - Uncle
Delaney continues to write down another day to her story, no day is ever the same. Yesterday Delaney was up at 4 am happy and energetic. She made it through the night without vomiting. Yesterday morning Delaney asked for some food to our surprise, it is difficult to get her to eat anything, she more or less tastes things. So Daddy got her some cereal, she sipped the milk and then said she was done. Took her out of her high chair and then she said she wanted some banana, and she actually ate 1/3 of a banana and kept it down, and she actually had a craving for chocolate milk again, she lost her craving for chocolate milk because she had been vomiting so much at the hospital and home while drinking it she no longer wanted it. So it is nice to see her want to have more. After breakfast Delaney played with brother and Mommy and Daddy had to get things ready for another out patient chemotherapy treatment for Delaney in Oakland. The appointment today consisted of going over the plan for the next 2 weeks, for appointments and tests. The way it looks now Delaney will have to get admitted for a blood and platelet transfusion later this week, her last out patient chemotherapy in Oakland next week, and the following week Delaney will have a appointment almost everyday a lumbar puncture and brain/spine MRI both requiring sedation, renogram, and hearing test. Delaney's chemotherapy appointment went ok, she was hungry again, Mommy packed some food, pudding, apple sauce, and juice. All food easy to eat. So Delaney wanted some pudding while waiting for the chemotherapy to finish and did a great job eating. Both of her lumens in her Broviac again, are very sluggish and hard to flush, so we decided to have the lines TPA, to remove any clot. Especially since the holidays are a couple days away and we don't want any issues to have to go to the hospital. Once the nurse put the anti coagulate in the lines they must sit for an hour, during that wait Delaney watched Toy Story, was in good spirits, and vomited all that she had just eaten. Just another very frustrating up and down in the day. We were happy to see her eat, have an appetite, but then have it all come back up is difficult. As a parent it is very difficult, and sad to see Delaney get to a point where vomiting is just another routine part of her day, and see her accept it. But then we remind ourselves that is the fierce that Delaney has, and we love it. She can vomit and does not effect her mood or attitude. Delaney need a full clothes change, the nurse removed the TPA, and it was time to head home. Once home, it was back to catching Delaney up on fluids and feeds through her feeding tube. Tonight we double her GCSF doses for her injection into her thigh, to help ramp up production of her white blood cells. It is a lot to inject without her moving. Delaney looks and is doing great, her attitude is inspiring, her motivation to walk and crawl is motivating and her love drives us. Thank you for all the prayers, love and support. As always .... GO TEAM DELANEY!

"And though she be but LITTLE she is FIERCE!"

by Travis Newton - Uncle
Wednesday Update

As you last heard Daddy fell asleep while writing another page of Delaney's story because he was so tired. That sleep Mommy and Daddy were hoping for we did not get, we only got 3 hours of sleep. Delaney vomited again last night and was very restless, and medications still had to be given. She was uncomfortable due to the chemotherapy still, and the fact that her blood counts are so low. Mommy, Daddy and Delaney rested on the couch, where we could look outside, and waited for the sun to rise. It has become Delaney's "new thing" to point out when it is light outside and says "sun come out". Why you may ask, well, because we are up almost everyday before the sun comes up and we try to use it as leverage to not get up until the sun gets up. But it makes us laugh because all of a sudden she realizes it is not dark anymore and is so excited to point it out to us. This morning it was time for another blood draw, and drive to Walnut Creek to process the blood. The counts today are important. They will decide if she will need a blood transfusion, and how many white cells there are to see if harvesting can begin tomorrow. The results came back quick almost by the time Daddy got home, the results arrive via email and we can look at the numbers and try to anticipate what the oncologist will say. The oncologist called us and said in fact she does need a blood transfusion, and her white counts are not up high enough for harvesting. The doctor also said we will have to wait for a call to come in for the blood transfusion because their beds are all full. In the mean time, Delaney's home health muse came by to assess her. Delaney is doing ok today, she is extremely tired (due to low blood cell count), has a low grade fever that we hope does not spike, and we can just see that she does not feel well. We gave Delany all the opportunity to rest and not use her energy, she slept a lot today. It is now almost 4pm and we are still waiting to be called to go to Oakland blood. We are packing our bags, just in case. Finally a call at 530 they have a bed for us to be admitted to, Delaney needs a room to her self, she can have no contact with any other patients, because she is neutropenic. It is now 7pm we are in her room planning out what medications she still needs, and waiting for the blood to come. Once the blood gets here, it is a 4-5 hour transfusion. We must also do 2 cap changes in her Broviac before we go home. We will not expect to be discharged between 12 am and 1 am tonight to head back home, we will have been up for almost 24 hours, with only a 20-30 min nap here or there. It will be a long night. It is safer for Delaney to be at home when she is neutropenic rather than at the hospital with a higher potential for infection. Theses are the long days, these are the days were you have run out of fuel, you run out of fumes to burn, you have nothing left, except for the love of your child, and then you realize just how far you can go. Delaney has held her own today, she remains fierce, that is one thing chemotherapy cannot kill. Thank you for all the prayers, love and support. As always .... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!

by Travis Newton - Uncle
Sunday Update / Day 1 of Round 2

Last night was a little rough getting settled in, but Delaney woke up in a good mood. She still continues not to have much of an appetite or want to drink. This will continue to be a work in progress. Today Uncle Travis and Aunt Lacey came to cheer Delaney on, also not to forget the nurses and doctors on floor 10. Uncle Travis and aunt Lacey brought a few things to help Delaney get through the day, especially a cool, black, Team Delaney pumpkin. The plan for the day was to begin with anti-nausea medications at 930AM, and allow time for the medicine to take effect. Followed by starting chemotherapy around 1030AM. Chemotherapy will consist of Delaney receiving 3 different chemotherapy drugs and 1 rescue drug, MESNA, this will protect her bladder from aggressive chemotherapy. Today her chemotherapy treatment concluded around 2pm. After that she will be on her MESNA IV drip for twenty hours. Over the course of the chemotherapy Delaney did very well. As the afternoon and night went on the affects of chemotherapy were present. She began to have less energy, and seemed to become nauseated. Later this evening Delaney did vomit a little. Even though it is a little, it is something we try to manage. Fortunately Delaney's oncologist does not like for his patients to be sick, so he has several antiemetics on her file to help prevent the nausea. It looks like an early night for all of us tonight. Second day of round 2 will start tomorrow around the same time. Delaney will get 2 chemotherapy drugs along with the MESNA again. We are hoping for an uneventful night and a good day tomorrow. Looks like Delaney will fall asleep on Daddy again and Daddy will follow shortly after. In fact Daddy is drifting off as I finish this update. Thank you for the continued prayers and support. We are still in awe of the number of supporters our baby girl has and the flood of positive thoughts we continue to receive. Thank you all! 

"And though she be but LITTLE, she is FIERCE!!!"

by Travis Newton - Uncle
Monday Morning Update....

Mommy and Daddy are ecstatic to post that yesterday was a great day. There were no issues that arose, we were all able to spend much needed quality time as a family. Delaney woke up in a good mood and made us smile more than we have in a long time. Delaney was up before little brother, and her face lit up with smiles once she heard brother come trampling down the hall. The morning was spent nibbling on food here and there, we are still working on her having an appetite. Delaney wanted to go outside for a little while, it was such a nice day for her to be outside. As the 2 1/2 year old she is, she was back to picking flowers, looking for birds and butterflies. One of Delaney's eyes drifts inward, this was caused by the pressure in her head, now that the pressure is relieved her eye muscles need to build up strength to correct this and bring the eye back to center. And one of the ways to correct this is for her to wear and eye patch, so Grandpa and Grandma picked up some eye patches. To our surprise Grandpa was able to get Delaney to wear an eye patch, but he had to as well, this was a good first step, but it will take some time. 
Auntie Bebo and Uncle Daniel came over for a little visit. She enjoyed sticker time with them. Delaney's home health nurse also came over and thinks Delaney is doing great. She comes by to check in on Delaney, makes sure we are all doing ok with her care, answers questions, and checks on our supplies. They are a good additional resource for us. Each day Delaney is building more strength through out her body, we are seeing good improvements. She has continued to keep a fever away, she still is taking lots of medication around the clock, we try not to bother her too much with everything. We are doing our best to keep things as simple, fun, and relaxing at home. Thank you for the continued prayers, love, and support! As always GO TEAM DELANEY!

"And though she be but LITTLE she is FIERCE!"

by Travis Newton - Uncle
This morning Delaney awoke happy. But by then mommy had already given her meds at 430 am, and daddy was up organizing paper work, and going through medical supplies. Next it was time to pack for an appointment and get thin
gs ready for the day, pack her medications, load up the wheel chair, food, and snacks, because we sometimes don't know how long things will go. We had an appointment for out patient chemotherapy at 10:30 AM and an appointment with Delaney's oncologist. The appointment went well. The Oncologist doctor says Delaney looks good and is improving. Some of her medication doses are being adjusted. Delaney's blood counts for the most part look good but her hemoglobin and platelets are still dropping. They are likely dropping to a range where she will need a blood and or platelets transfusion on Friday, so we are mentally trying to prepare for that. That will be a long day. Thursdays blood draw will indicate what we will need to do. The chemotherapy treatment was relatively quick, daddy held Delaney during the treatment, and mommy was off getting more medications refilled for this week. Toward the end of the chemotherapy treatment Sadie the therapy dog, who some of you may have heard of already, came by. Delaney enjoyed this and held Sadie's leash and fed her 2 treats. We got a smile there! Once back at home Delaney was able to get a well deserved nap. However, when she woke up she had some pretty good mood swings, this is very stressful, and frustrating trying to figure out if it is, nausea, recovering from the operation, posterior fossa syndrome, medications, all of the above, or the terrible 2's. But we are working at it, and it is a grind. Later this evening Delaney had a request for mommy, and that was to go and get her some french fries. And so that is what we did, anything to try to get the hunger and thirst drive back. Today we have done a better job at keeping her nausea under control. Like everything we are trying to create the best routine possible. It is almost time for her nightly injection of GCSF. The movie for the night is Toy Story 3, Delaney is getting sleepy, mommy and daddy are still right by her side, along with the rest of you from Team Delaney. Thank you for all the prayers, love and support. As always........GO TEAM DELANEY!!

by Travis Newton - Uncle
First 24 Hours At Home:

Last night was great. It was somewhat stressful trying to remember what medications to give and at what time. There were no nurses here to help out!! Delaney slept about 10 hours. She woke up a happy girl, looking at birdies and squirrels outside the windows. Of course she had her daily dose of chocolate milk. About 9am we were attempting to do our first at home Heprin lock on Delaney's Broviac and of course neither of the 2 lines would flush. After calling the pediatric unit at Kaiser Oakland they advised us to go to the ER and have them put TPA in the line to break up any clots or blood stuck in her lines. This is the same medication they give stroke victims to break up a clot. We sort of took our time since none of us were anxious to go back to Oakland. Luckily we waited because Delaney had her second episode of vomiting. Shortly after we cleaned her up we made our way to Kaiser Oakland. The Broviac care is so specialized that we were on edge, so luckily a few of the PICU nurses came down to help us out! (Go Victoria and Laura! :-)) Luckily they were able to put some TPA in her lines and within an hour of doing so Delaney's lines both flushed. We spent about 5 hours in the ER. We are hoping for an easier day tomorrow. We got home around 6pm and of course Brother was here waiting. Delaney and brother shared a few snacks and watched Brave. She is still suffering from the posterior fossa syndrome, and on top of that is still receiving meds which cause her mood to change throughout the day. One minute she is happy and laughing and the next minute she is crying and upset. We are hoping that once we have a few good days at home she will start to feel better again. 

Thank you all for your love and support. GO TEAM DELANEY!!

"And though she be but LITTLE, she is FIERCE!"

Dont forget to show Delaney, what TEAM DELANEY is all about, show her your FIERCE!, wearing your shirts. Send pics to 925-337-3371 or so we can share.

by Travis Newton - Uncle
Day 3 of Treatment

One of the toughest, and most stressful days we have had in a while since we have been admitted. Today was hard. Last night we were up and down changing diapers and sheets due to the the fact Delaney was on another 20 hour MESNA drip. Again this was given to protect her bladder form the chemotherapy treatment. Also during the night Delaney's heart rate began an upward trend. Then by morning 7 am Delaney was up restless, and a little fatigued. Then again we noticed her heart was still elevated. The medical staff here has been aware that Delaney's heart rate is fast, as were we. But today it continued to trend up and be tachycardic at 180-200 bpm. This was sustained for over 12 hours. There were many conversations surrounding her heart rate. By the end if the night, we believe that the tachycardia is medically induced due to the strict anti-nausea medications that she needs to counteract chemotherapy. There was debate about weather or not we should go back to the PICU for closer evaluation. That is still an option for tonight, should the heart rate continue to trend up. She will be watched close by all tonight in the pediatric ward. That along with the chemotherapy which lasted for over 8 hours today has made this day emotionally and physically exhausting. With all that is going on so fast, Delaney still finds a way to stop, freeze time, smile and make us smile and listen to her show off her new nail polish (from yesterday), her beads of courage necklace, and point out her favorite parts of the movie that she is watching. Delaney is doing good considering, she is fierce, and holding her own. Mom and Dad are so proud of her, they lover her so much. As they tell Delaney every day, mommy and daddy are right by her side. Tonight is a big night and we hope things go well. Thank you for all the prayers, support, and love. 

Quote of the day
"I am not afraid of storms, for I'm learning to sail my ship."

by Travis Newton - Uncle
Day 1 of Treatment

This morning was rough to say the least. We both had our separate moments where all or some of our emotions had to be released.  Delaney was in a great mood, but we were very anxious, stressed, and nervous for the chemotherapy to start.  The nurses began to pre-hydrated Delaney around mid-night last night.  She received around 90ml of normal saline an hour. She peed all night long! They gave her all of this fluid to make sure her specific gravity was within a certain range in order to begin chemo.  They were able to attain this number by us placing cotton balls in her diaper at each change. She reached the specific gravity at about 10 am this morning.    Prior to the scheduled chemotherapy start time Delaney had to have 3 different anti nausea medicine administered over an hour.  That started around 12:30pm. Chemo started shortly after that, at about 1:30pm. The first chemo dose was Vincristine which was pushed over 15 minutes, followed by Etoposide which was pushed over 1 hour, followed by MESNA which is a "rescue drug" for her bladder because the next drug, Cytoxan, is know to damage the Bladder. The Cytoxan was pushed over 1 hour as well, then on to another MESNA mixture for the next 20 hours. Tomorrow it all starts again minus the Vincristine.  Delaney did very well. She slept for most of the treatment thanks to the Benadryl she was given. When she woke up she had quite the appetite. Grandpa even had her laughing pretty hard.  We are still on edge, waiting and watching for any side effects.  She will be getting her anti nausea medicine around the clock and other stronger ones as need.  When we change Delaney's diapers, or if/when she throws up we must wear gloves, and the diapers need to be disposed of properly.  These precautions are being taken because she is now excreting the chemo she was given back out with the potential of us coming in contact with it.  We hoping for restful night, and preparing for another day of chemotherapy tomorrow.  It pulls on our heart strings to know that Delaney is loved by so many.  A few of the nurses we have had said in all of their years of experience that they have never seen a room decorated with so many cards.  Thank you for all the prayers, love, and support!  


Quote of the day
"Let us not pray to be sheltered from difficulties, but to be fearless when facing them."

by Travis Newton - Uncle

To be honest we debated about doing an update today. Chemo starts today. It is extremely tough as parents to cope with what is going on at times but we know so many people are fighting this battle with us. 

Delaney gives us the strength and re-focuses us to look at things a day at a time. Even though we maybe confined to the walls and halls of the pedi ward in the hospital, our hearts are not. Delaney reminded us of that today. She smiled, giggled, and had more life to her than she has had since August 25th when she became sick. We need to be reminded that to be sick, is temporary. Delaney displayed that by playing with her brother, coloring, riding around in her chair listening to Luke Bryan, picking her favorite stickers, watching movies and being with her family, and there is no time for a 28 month old to be sick in her book. We try to understand that she must get sick, to get better, and to be cured. Today was great, we loved it. She loved today. We spent time as a family, healing each other, preparing each other of the days, weeks and months to come. Delaney is resting well and she will have her game face on in the morning ready to take anything on... "And though she be but little, she is FIERCE!" That is her, fierce, strong, enduring, and loving! She is prepared, she is ready to close the chapter on the pre and post-op days and begin a new chapter. We love you all, thank you is simply not enough for all of the outpouring support, prayers, thoughts and love. As always, GO TEAM DELANEY!!! 

Quote of the day "When we long for life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure." 

by Travis Newton - Uncle
Day 21 Post Op

Today was a better day. As you know, Delaney got her stitches out! Of course the day was consumed with rides. She even got to take a therapy dog named Lassie for a walk!! Brother came by again today for a visit. Delaney really lights up when she sees him! He tried to push her in her wheel chair! Her heart rate seemed to be normal today. High 160's for the most part. We were relieved to see it lower than yesterday. It may have been due to a little dehydration, which we are working closely with the oncologist to monitor. The doctor is hoping for a pretty uneventful weekend. Just some PT, rest and hydration. Grandma came and read Delaney a bed time story, which she loved. One of Delaney's favorite nurses even came by for a visit on her day off! We plan on trying to get some rest tonight! We are both pretty anxious for chemo to start. Delaney is a tough girl and will do great. We just have to keep reminding ourselves that she will be cured! 
Thank you all for your love and support through this difficult time! 


Quote of the day: "Life's challenges- you can't go over them, under them, or around them, you just have to go through them one day at a time."

Some funny facts about Delaney:
Mommy is the only one who can put blankie on her feet. In fact, she purposely pulls her feet out of the blankie at night so I have to get out of bed to put them back.
Daddy is the only one who can get her chocolate milk, but mommy is the only one who can feed her chocolate milk.
She will watch the same movie over and over again all day, but mommy is the only one who can use the remote to start the movie.
The nurses have given up on taking Delaneys BP and temp. Mommy is the only one who can do it! 
She's just too funny! Thought we would share!

by Travis Newton - Uncle
Team Delaney,
I am speechless at everyones support on this fundraiser.  You have no idea how much this is going to help our sweet Delaney fight this battle in the years to come.   We have received donations, prayers, and support from family, friends, and complete strangers who have been touched by Delaneys battle.  

You all have a special place in my heart and when this is over Delaney and our families will continue to fight for others and show support like everyone has shown us.

With Love,  Travis

by Travis Newton - Uncle
Day 20 Post Op
LONG day today or so it felt like you may have seen on an earlier post Delany woke up at 5 am asking for Cheerios and that was the start of 4 bowls throughout the day. The Neuro team came by, like they do every morning and looked at Delany and her progress. They said that she is progressing well and that after 22 days in the PICU it was time to be transferred to the Pediatric Ward across the hall. Physical Therapy was able to get us a wheelchair for Delaney. We believe this was a little freedom that she needed to lift her spirit even more, she went in to the wheelchair 3 separate times today by herself, and she sure enjoyed it! This helps her gain more strength in her core and beck muscles. Just by chance she came across Sadie the therapy dog and Delaney was able to feed Sadie a doggie treat. That made her smile... Then Sadie tickled her feet with her tail. We all look forward to more rides in the wheelchair for the days and weeks to come to spend less time in bed. Again Grandma, Grandpa and baby Brother Merlin came to Delaney's bedside. Grandpa took Delaney's "Blankey" (pink blanket) as he does at least 2 times a week for a good wash so it is fresh and clean for her. As you may have read Delaney is to start chemo on Monday Oct. 7th. When in chemo it is possible for her to become severely neutropenic and at high risk for infection because her body may not be able to fight off bacterial infection. Knowing this we got our flu shots done today, and anyone in the family that does not have it cannot be in contact with Delaney for her safety. Our nurses in the PICU were sad to see us go! We were sad also. We have made very close friends with all of Delaney's nurses and she has really grown to love them! Over the next few days we will learn how to care for and use the Broviac. In the mean time we are setting up in our new room, trying to make it as bright and beautiful as the baby girl we all love! Delaney Thank you all for your love and support!


Quote of the day "it is your reaction to adversity, not the adversity, that determines how your life's story will develop"

by Travis Newton - Uncle
Day 18 Post Op.   Lots here TEAM

Delaney slept much better last night. She probably slept a total of 6 hours off and on. She ate 2 bowls of Cheerios at 5am and was still hungry for 2 chocolate milks and some pancakes at 7am. The neurosurgeon came through and decided to give her a few more days before they remove her stitches, which means chemo won't start until Monday, October 7. PT came in again and she was not very cooperative. We got her to sit in a little red chair for about 10 minutes. She is getting a little stronger each day, but still unable to hold her head up. Grandpa brought her a large chocolate milkshake for lunch and she drank the whole thing! She had her eye exam. The same opthomologist who examined her the day we found out she had a tumor examined her today. He was amazed at how flat her optic nerves were, because the last time he looked at her eyes he told us her optic nerves were severely inflamed  due to hydrocephalus. She also had a hearing test, so she had to be wheel chaired over to another building. That was a chore in itself as she is not very cooperative and still wants to be so independent. The ear doctor said her hearing is within normal limits and he doesn't see any issues. Grandma and brother came for a visit. Delaney and brother laid in her crib, ate Cheetos, snuggled and watched Despicable Me. Brother is really what lights Delaney up. From the second she sees him she is so happy and smiley! It really makes mommy and daddy proud to see our beautiful babies love each other so much! Tomorrow Delaney gets her broviak in, gets a lumbar puncture and will get her feeding tube changed from the right to the left nostril. We will most likely be moved from the PICU to the pediatric unit on Wednesday.  We have really grown to love our PICU nurses and will be sad to leave them, but hear nothing but wonderful things about the pediatric nurses in the ward. Delaney finished off her night with a cheese pizza and will have to stop eating at midnight. We will make sure she gets at least 1 chocolate milk before then.
Again we thank you all for your love, support and prayers. Delaney is a fighter! GO TEAM DELANEY!

Quote of the day "let your faith be bigger than your fears"

by Travis Newton - Uncle
Day 16 Post Op Update:

Today was another good day for Delaney.  Physical Therapy came in and showed us more exercises we can do with Delaney. Delaney is getting better control of her neck, but still can't hold her head up. She is far from being able to walk, but we hold her up and she will do the motions. She keeps taking about going to Disneyland, so once she's all better we will be making a trip! She didn't have quite as much chocolate milk today, but still drank her fair share! We are anxious about next week. She gets the broviak in on Tuesday and could potentially start chemo that day. It all depends on if the doctors want to remove her stitches or not. 
Delaney has so many people who love and care about her. She is getting better because you are all supporting her. We thank you for that! 


Quote of the day "When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile



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