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Super V - Victor Jarvis

$6,750raised of $7,000 goal
96%

Organizer: Lacy Nichols Beneficiary: Victor Jarvis

Victor is a 2 year old little boy battling liver cancer. He was diagnosed after his mother noticed a lump on his abdomen on Christmas Day, which turned out to be a large tumor.

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Fundraiser Details

Victor Jarvis is a 2 year old little boy battling liver cancer (hepatoblastoma). He was taken to the ER after his family noticed a lump in his abdomen on Christmas Day. He is now undergoing chemotherapy treatments at St. Louis Children's Hospital.
His mother nearly lost her life after giving birth to Victor, but fought hard to live for him. Now we are fighting hard for Victor!
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Updates

Updates

01/28/2014
by Lacy Nichols
Big News:
 
Alpha-fetoprotein (AFP) is a protein that is produced by the liver. The normal range is something like 1-8; when this all began, V's AFP was more than 465,000. Just got word from his nurse that it is now HALF of what it was.
 
What's that mean? Simply put, it means Victor is kicking cancer's butt!! Take THAT, tumor!
 
 
***Victor-y***

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01/19/2014
by Lacy Nichols
1/18/14
I remember around this time last year, my third grade team met for our weekly meeting. Rather than beginning right away with discussions of assessments and teaching strategies, we spent a few moments around that table as nothing more than a bunch of moms. In those few moments; I learned the most effective methods of removing Vaseline from a toddlers hair, how to clean vomit out of carpets and furniture, the fastest way to bring down fevers, among other things. Through the laughter, I mentioned (as a still somewhat new mommy), "I'm really lucky. V is a very healthy baby, he's only been on an antibiotic once." The room fell silent as all the moms looked at me in complete shock. One suggested I better knock on wood, and fast. The others laughed in agreement. I wish I would have listened. I buzzed my son's head today.
Earlier, we inserted something called an OG tube through V's nose and into his stomach. The doctors decided that it's time to get more aggressive about this poop thing, so they brought out the big guns: Go Lytely (you may be familiar with this liquid if you've ever had a colonoscopy). Adults would be expected to drink this terrible stuff within a certain amount of time, but Mr. V is just barely two and can't even take cherry flavored medicine without it coming back up. The OG tube acts as a direct line to the stomach. We've been pushing this fluid into his belly for several hours, and his tummy decided it had had enough. As I wiped the vomit off his chin and removed his soaking wet pajama top, I asked V, "are you okay, Buddy?" He began to answer by nodding his head, but the Go Lytely interrupted him by forcing it's way out of his mouth once more. V took a deep breath, swallowed, and then continued his nod as he said in the most sweetest of voices, "uh huh." The pure innocence and forgiveness that I find in him literally stops me in my tracks and takes my breath away.
Once we were finally clean, I lay him back down in the clean sheets and stroked the skin that only yesterday was covered with hair. I sang the song that I do each night, and when I finished; V rolled towards me, grabbed my hand and said, "Mommy, go ni-night." As if the events of today and tonight are completely normal. Well, I suppose they are these days.

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01/15/2014
by Lacy Nichols
It's been another long day as Mr. V is still feeling pretty crummy. His ANC is still at 0, but his hemoglobin and platelets have actually gone up a little bit!
 
We decided to put him on morphine today for a couple of reasons. The first and most obvious reason is to help manage the pain and discomfort he's feeling from both the chemo as well as the constipation. The other reason we decided on morphine is because it's given through the IV which means one less oral medication (V has a difficult time keeping things down). We did an x-ray today that showed there is in fact stool in his colon. Late last night, after the meds came up yet again, I tried mixing the meds in ice cream. That continues to be the only way to get the meds in his system and keep them there. We are hoping that now that he's actually keeping the meds down, he'll go potty soon. If he doesn't go within 24 hours of his scheduled chemo appointment this Friday, they'll have to postpone it.
Though it took some bribing and a bit of a firm tone, I did get V out of bed for a bit today. As he rested his head on my shoulder, I noticed several strands of hair on the collar of his shirt... it's happening. My baby is beginning to lose his beautiful hair. *deep breaths* I choose to see it as a sign that the chemo is doing what it's supposed to do (but between you and me, it also breaks my heart into a million pieces).

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01/14/2014
by Lacy Nichols
1/13/14
It's been an interesting day today. Poor Mr. V still hasn't pooped since Saturday. His belly is distending and most of the medicines used to help him are coming back up. Today there was a small amount of blood and tissue in his vomit. Docto
rs say it's called mucositis and reminded me that chemo attacks rapidly producing cells; the entire GI track is made up of rapidly producing cells. The plan is to watch it and keep him comfortable with oxycodone because these sores (for lack of a better term) can be quite painful. Thankfully, the oxy seams to do the trick!
 
He hasn't had much of an appetite today, could he from nausea or because of the mucositis. I offered him all of his favorites and he snubbed his nose at every single choice (an expensive way to figure out what your two year old will eat). They don't start getting super concerned until a kiddo loses about 20% of his body weight. So far, V has lost about 13%. A couple hours ago he said yes to ice cream! My nursing tech rushed to grab some. I asked again before I opened it and he reaffirmed that he indeed wanted ice cream. I've never been so excited about ice cream in my life! I opened it and handed the spoon and ice cream to him with a huge smile on my face. He spooned up the biggest bite I've ever seen... and fed it to Pooh (stuffed animal). *sigh* A little bit later he did eat a few bites of his pretzel. Yay!!!
 
Last night was a little rough for the little nugget as he was uncomfortable. It's difficult to tell if it's discomfort caused by pain, or if it's general discomfort. He trued desperately to find a position that was conducive to a good night's sleep, but everything he tried caused him to sit up and cry "owie!" I still haven't gotten used to seeing my boy in pain.
 
I showed V the videos from WGEM and KHQA tonight. As we were watching, he pointed and said, "mommy... me?" I told him how many people love him and want him to get better. Then we clapped.

Sera

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01/12/2014
by Lacy Nichols
Let's start with some awesome news: last night marked two nights in a row that V didn't wake up with a panic attack! He slept well, even through his vitals through the night and blood draw this morning.

CBC came back and his counts are dropping a little faster than they have been. We're probably looking at another blood transfusion in the next day or so. His fever has been gone since about midnight. We're doing another blood culture to look for infection and started some antibiotics as a precaution since his white blood count is down to 19. Doctors want him to stay until his counts start going back up.

He still doesn't have much of an appetite, but will almost always eat a pretzel from Auntie Anne's (full of much needed calories).

Thank you again for your kindness and support. It helps more than you know. Victor-y!!!

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01/12/2014
by Lacy Nichols
Let's start with some awesome news: last night marked two nights in a row that V didn't wake up with a panic attack! He slept well, even through his vitals through the night and blood draw this morning.

CBC came back and his counts are dropping a little faster than they have been. We're probably looking at another blood transfusion in the next day or so. His fever has been gone since about midnight. We're doing another blood culture to look for infection and started some antibiotics as a precaution since his white blood count is down to 19. Doctors want him to stay until his counts start going back up.

He still doesn't have much of an appetite, but will almost always eat a pretzel from Auntie Anne's (full of much needed calories).

Thank you again for your kindness and support. It helps more than you know. Victor-y!!!

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01/09/2014
by Lacy Nichols
WOW! We met our goal in less than on day....so I increased it :) To say that Sera is overwhelmed by your generosity is an understatement. Let's see how much we can raise for this sweet little boy! Thank you all so very much!
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