Silas Cruz Blaylock

$15,293raised of $50,000 goal
30%

Organizer: Grace Blaylock Beneficiary: Silas Blaylock

This fundraiser is closed

Thank you all so much for your continued thoughts and prayers for Silas. Because we have a continued outpouring of people expressing a desire to help, we have established this website. Everyone who knows Marcus & Mari understand what giving and loving people they are. Silas is their first child and has brought so much joy to everyone he meets.
Silas was admitted into the hospital last week and was diagnosed with acute myelogenous leukemia. This is not something anyone can prepare for so we are asking for help through this donation page.  Marc and Mari also need help with meals during their stay in the hospital.  You can volunteer through http://www.carecalendar.org

ID: 130414

PW: 3330

Silas cannot be left alone. The hospital requires at least one of his parents be there at all times. He's only 6 months old and his discomfort also means he wants to be held all the time.
In order to defray medical and recovery costs, the family is accepting donations through this site. Anything helps. And we can never have enough prayers. It is times like these that we realize how important the support of friends and family are.
Forever thank you, The Blaylock's 

"Like" Silas on Facebook

Check out Silas' other site, "Embracing Silas" that features more information about his mom and dad, upcoming benefits, and more photos. Just click HERE

Updates

Updates

01/21/2013
by Grace Blaylock


From Mari;

01/18/13

 

 

 

 

 

 

 

 

 

It’s been awhile since we posted an update.  We get so busy with the day to day and before we know it, weeks have passed.  It has been two weeks since the Super Silas Spectacular.   It was a great day and a great turn out.  Marcus and I got to see a lot of family and friends that we hadn’t seen in a while and we got to meet many many wonderful people.  We met one beautiful and amazing young woman who was diagnosed with AML when she was 6 weeks old.  Now in her twenties, she continues to raise awareness and participate in leukemia organizations.  Our friends and family did an amazing job of putting together a very successful event and what Marcus and I took away from the event was priceless.  Cheesy I know but there’s just no other way to put it.  The people who we’ve been lucky enough to be surrounded by have given us so much and we are forever indebted to everyone.

Silas went into the hospital the following Tuesday to begin his 3rd round of chemotherapy.  This round, called Intensification I, consisted of 3 of the 4 chemos he has had before but the dosage for one of them was 10 times greater than the previous rounds so the doctor warned us to expect fever, nausea and other side effects he hadn’t yet experienced.  Silas did have some low fevers for a couple of days and he was often a little fussy which isn’t him at all so we attributed it to him feeling nauseous.  He finished chemo this past Tuesday and he will stay in the hospital as his ANC continues to drop, today it is 88.  I know we have already done this twice before but we really don’t know what to expect when Silas’ ANC bottoms out.  The first round was really tough; Silas had a lot of fever, a lot of nausea, and a lot of vomiting.  It was hard seeing him feel that bad so we were, mentally, better prepared for the 2nd round.  Silas did great the 2nd round though…at one point his Dr. said Silas was his best-behaved patient in regards to side effects and symptoms.  All we can do now is wait over the next several days and weeks and hope that he handles the after-effects of chemo as well as he did for his 2nd round.

When this all began one of our many concerns was how this would delay Silas’ development.  He is attached to an IV so his mobility is limited.  When he is in the hospital he spends a lot of time in our arms or in his crib but he doesn’t get other opportunities to move around.  So far, though, he is unstoppable.  He’s moving along like any other 9 month old, crawling, and pulling himself up to standing position, sitting up on his own when he is on stomach, he shakes his head no (that’s his favorite), and can sort of nod his head, although at this point it is more of a full body nod.  He is amazing!

Silas’ mama


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01/05/2013
by Grace Blaylock


01/05/13
From Silas' parents;

<img class="alignleft size-medium wp-image-178" title="bathtimepunk" src="http://embracingsilus.org/wp-content/uploads/2012/11/bathtimepunk-224x300.jpg" alt="" width="224" height="300">

<img class="alignright size-medium wp-image-179" title="bathtimepunk2" src="http://embracingsilus.org/wp-content/uploads/2012/11/bathtimepunk2-224x300.jpg" alt="" width="224" height="300">

 

 

 

 

 

 

 

 

I’m writing this from the comfort of home!  Silas was discharged a week ago, Friday.   Posting an update has been on our to do list for a while but we’ve been busy enjoying being home.  His risk of infection is lower, otherwise he would still be in the hospital, however, we still have to be very careful with his exposure to infection so we are very cautious about where we take him, especially with the flu season.  Last Sunday, we took him to the San Antonio Museum of Art…it was perfect.  There were just a few other people there so we practically had the museum to ourselves.   It was also great to spend his first New Year’s here at home.  Although we had to spend most of the holiday in the hospital, it was nice to end the year at home.  Silas’ favorite part of being home is his bath time!  In the hospital he gets a sponge bath because of his port and he gets to splash around once a week when they change out the needles from his port.  He loves, loves, loves his nightly baths!

Silas has been to the clinic for his labs to check his blood counts twice this week, on Wednesday and Friday.  His ANC has not been high enough for him to be re-admitted to start the third round.  I have to admit on Wednesday, I was glad that we would get a little more time on the outside; but Friday, when we found out he still hadn’t recovered enough yet, I was disappointed.  I want his little body to be kicking butt building those blood cells so he can start his next round.  The doctor warned us though, after each round of chemo he will take longer to recover so there is no need to be concerned.  I’ll take him in again on Monday for labs, so maybe he’ll be ready then.

We are so thankful for all the gifts Silas received during Christmas from family, friends, and generous people and organizations.  We have received so many prayers, love, and support and tomorrow it will be nice to be able to thank many of you in person.  Our friends and family have put together the Super Silas Spectacular to benefit Silas.  We have received a great response for the event already.  Did I mention that included an interview with Isis Romero of KSAT 12 News?  We want to thank everyone who has had a part in putting the event together from our friends and family who did all the leg work facilitation the event, the artists who have donated their work for auction, the bands who will be performing at the event, the people who have generously donated other items for auction, and everyone else that had a part in making the event possible.   Thank you, thank you, thank you, thank you!!!  We are so blessed to have such wonderful people in our lives.


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12/25/2012
by Grace Blaylock


12/23/12

<img class="aligncenter size-medium wp-image-169" title="Christmas Crib" src="http://embracingsilus.org/wp-content/uploads/2012/11/Christmas-Crib--225x300.jpg" alt="" width="225" height="300">

Silas has handled this round of chemo very well so far.  It wasn’t until just yesterday (8 days post chemo induction) that he got a fever.   He is now on antibiotics and they are controlling his fever with Tylenol.   He is still in pretty good spirits considering the circumstances.  He is still eating ok and wanting to play.  Silas has needed blood and also platelet infusions twice now as his levels have dropped very low due to the chemo.  He needed infusions during his first round, also, so this is to be expected.  It looks like we will be here for Christmas but hopefully, we will start seeing his ANC come up in the next few days and maybe we will make it home for New Year’s .   That would be a great Christmas present.

We want to thank all the organizations that have generously donated presents for all the kids on our floor.   Silas has definitely been building up his collection of teddy bears (unfortunately he can’t play with them until he’s done with chemo.  Only hard plastic toys right now).  One of the fraternities at UTSA (sorry cant remember name),  SAPD, Hearts for Hope, and Young Texans Against Cancer have all donated various toys and gift card.  Lego’s for Leukemia donated giant legos (which he loves!).  The most notable was a little girl who used to be admitted here , that has recovered now, came by with her mom to give gifts to all the kids.

There is a Music benefit scheduled on Jan 6, 2013 at Sams Burger Joint, from 2-9pm.  Check out Facebook page.


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12/17/2012
by Grace Blaylock

December 15, 2012

<img title="Silasheartsmom" src="http://embracingsilus.org/wp-content/uploads/2012/11/silasheartsmom2.jpg" alt="Silas" width="300" height="402">


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12/17/2012
by Grace Blaylock

December 15, 2012

From Silas’ dad…

So he just finished up his 2nd round of chemo and he has been handling it great.  His days have been spent playing, smiling at the nurses, and continuing to work on his development by crawling and us “trying” to have him eat more solids.  He is also much more vocal now and beginning to blow kisses.    We even got a nice surprise when the dr. said he could come off his IV for fluids today (since he’s eating fine and currently not needing antibiotics).  It was great to roam around the ward, do tummy time, and move more freely around the room without wheeling along his IV fluids and meds.   (the dr. said he has been his most behaved patient, in terms of symptoms,  lately)  .

Its been great to have almost zero side effects during the chemo and of course nice to see him happy and playing but unfortunately we also now are preparing ourselves to be ready for him to get sick again.  Remember, its after the chemo is done when his immune system is at its lowest that he is most susceptible to getting sick.   Also, the dr. has informed us that his recovery time, after each treatment, will be longer each time.  So, yes, it looks like we will be here through Christmas.

Although we will be here throughout the holidays the staff and other patients have really done a great job with the Christmas decorations.  The San Antonio symphony and the spurs coyote even stopped by the other day to play Christmas carols.

We want to say thank you to everyone who has signed up to have dinner delivered to us; this continues to be such a huge help.    We also want to say thanks to our parents for all their help.  Thanks to Jose and Ana for coming every afternoon and taking care of him and thanks mom for driving over from el paso to stay the night with Silas for a week to give us a break.  Also thanks to some of our close friends like Lorraine Gibson who has been working on rallying volunteers with my mom for the care calendar (among a million other things) and Melissa Adame for managing the website and even working on a music benefit for Silas next month.

<img class="aligncenter size-medium wp-image-167" title="xmassilas" src="http://embracingsilus.org/wp-content/uploads/2012/11/xmassilas-300x225.jpg" alt="" width="300" height="225">


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12/10/2012
by Grace Blaylock

<img src="webkit-fake-url://519CB8E1-BFD2-4C01-8CDD-197B64303733/paroledsilas.jpg" alt="paroledsilas.jpg">


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12/10/2012
by Grace Blaylock

December 8, 2013

From Mari,
I’d like to start off by saying thank you to the nurses and staff at Methodist Children’s Hospital in our unit.  They are an amazing, compassionate, selfless group of people who go above and beyond what is in their job description.  Silas is in good hands here at the hospital.

Speaking of the hospital, he is back for his second round of chemo.  He was admitted Thursday morning and they began his chemo that afternoon.  This round will last 8 days compared to the last round that went for 10 days.  He finished day 3 today which means we are almost half-way done with this round.  It was different coming into this round for Silas.  His first round started with him recovering from an infection in his intestines and already extremely immnocompromised.  This time around he had no infection to recover from and his ANC was over 1000 which is good.  I don’t know when he will be sent home again, it is all up to him and how quickly he recovers to a safe enough level that the doctors are comfortable with letting him out for a little bit.  I’m assuming we will be in here at least through Christmas.

I know once this round of chemo takes it’s toll on his body we’ll have some rough days but I’m trying to learn from my little man and to just take it day by day and live in this moment.  And right now, this moment is good.  It’s one of the blessings of him being so young…physically, when he feels good, mentally he is great.  He doesn’t have the hangs ups that someone older might have feeling bad about their situation or frustrated at being stuck in a hospital.  He doesn’t care that his first Halloween was spent on pain meds to make him feel better or that his first Thanksgiving was spend nauseous and sick…he’s living in the right now and right now he feels good so he’s happy!  It’s a lesson we all should learn.

Since being admitted on Thursday he was having problems with eating…at first we thought he just wanted one of his regular bottles, not the hospital premixed infant feeders they have.  We brought his bottles from home and when he saw them he was so excited because the kid was starving.  The premixed formula the hospital uses is the same kind we use so we were just taking the formula from the feeders they come in and putting it in his bottle.  Then yesterday he hardly ate at all and this morning he was still refusing his bottle.  One of the nurses didn’t think he should be having problems with eating so early on in this round so she suggested we bring his formula from home (which is the same as the hospitals but in powder form) and try that.  That was what he was wanting…when he saw the container the formula comes in he started crying because he wanted it.  Phooh!  He’s eating again and this has been our biggest problem the past few days so we are doing good.   He doesn’t have quite the energy he normally does but he’s still smiling and laughing and that is what matters most.

Thank you all for your continued support!

Silas’ mama


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12/04/2012
by Grace Blaylock
<img src="http://www.youcaring.com/uploads/fundraiser/Silas%20first%20haircut.jpg" alt="Silas first haircut" width="460" height="344">
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12/03/2012
by Grace Blaylock


12/02/12

From Silas’ dad…

We haven’t been able to put up a post because so much has been going on.  But all good news.  On Thursday we got to leave the hospital to go home.  Silas’ ANC were rising quick and dr. gave us the “ok” to be discharged.  So things have been busy with the move and the transition back to the house but it sure is nice to be home.  He’s been sleeping ok and having fun back at the house with his toys  (even though most of his toys were the same ones we had at hospital, we really moved in).  It’s nice that he’s not attached (ie. IV lines) to anything either and we’re able to move him around freely. The next steps are to monitor his ANC and platelets and see if they are able to stay up on their own.  We’ll take Silas to an outpatient clinic every other day to check his blood.  Once his immune system is holding its own he will be readmitted for the 2nd of 4 rounds of chemo.   This could take a few days or a few weeks.  The sooner the better that means he’s able to recover quicker.  We take him in tomorrow for his lab tests.    I have to say it’s been nice to be home but bittersweet knowing that we have to go back.  Our bags are packed ready to head back to the hospital at anytime.

He got his first haircut last Wednesday; it was falling out and getting all over the place, including his eyes and mouth.  There’s a hairdresser in the hospital so we had her come down to buzz the rest of his locks off.  He was a little freaked out with the noise but did ok.   I gotta say, bald may be he look, now that you didn’t notice them before but all you see now are those big brown eyes.


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11/29/2012
by Grace Blaylock
<img title="Jumparoo Silas" src="http://embracingsilus.org/wp-content/uploads/2012/11/jumperoosilas.jpg" alt="Silas Jumping &amp; Smiling" width="336" height="450">
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11/29/2012
by Grace Blaylock

November 27, 2012

We’ve officially been here a month…it seems much longer.  It was on the 31st that our lives did a 180.  The irony is Silas had gone for his 6 month check-up and vaccinations the Tuesday before; his pediatrician told us he could skip his 9 month check-up because he was healthy, he was meeting all his developmental milestones, he hadn’t had any noticeable problems…things changed very quickly.

I’m happy to say, though, that he’s been doing much better the past couple of days now that the effects of the first phase of chemo have subsided and his blood counts have begun to build back up.  He hasn’t had a fever in more than 48 hours and all the precautionary tests they took to check for infection have all come back negative. Yay!  The past couple of days he has spent playing, eating, smiling, laughing, and he might squeeze in a small nap here and there so it’s business as usual.

Once his blood counts are “recovered” they will begin the next phase of chemotherapy.  The great news is he may get to go home for a couple of days before that begins.  Without getting too technical, his doctor looks at his ANC (Absolute Neutrophil Count).  This determines his risk of infection and the doc wants it to be high before they let him out into the big, bad world.  Anything lower than 500 is a high risk of infection and he had been at 0 even before he began treatment…BUT yesterday his ANC was 20 and today it was…(drumroll please)…400!  He’s still at a high risk of infection but with gains like we’ve seen the past couple of days he should be at a safe level soon (>1000).

Tomorrow morning he will have a another minor surgery to draw some bone marrow and to give him another lumbar puncture for chemo.  He does have to be sedated but he should do fine.  It’s all part of his treatment.

The docs goals are for Silas to bust out of here on Thursday or Friday if the increasing ANC trend continues.   Love to everyone for their support, and generosity.

-Silas’ mama


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11/25/2012
by Grace Blaylock

11/24/12

From Silas’ dad…

Silas is right in the middle of the period that should be the roughest time during this first round of chemotherapy.  He is 9 days post chemo and, according to staff, in his case wont be feeling better till day 10-14 as his immune system builds back up.   The past few days have been very hard with his fevers, nausea, and discomfort.  The staff here is great, though, and they are doing a great job keeping him comfortable.  Of course, we are too; he takes a lot of naps in our arms.  He gives us at least one smile a day so we are happy.

Thanks to all our friends and family who brought us up Thanksgiving dinner and of course all the meals that have been brought continue to be a huge help. ( It was good to see ya Mr. Mcmullen, the fish and pumpkin cheesecake were awesome!)  Thanks again, for the food and also the donations…it makes life a little easier.

<img class="size-medium wp-image-153" title="Silas and Dad" src="http://embracingsilus.org/wp-content/uploads/2012/11/photo-4-e1353802184694-224x300.jpg" alt="" width="224" height="300">


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11/23/2012
by Grace Blaylock
Hello everyone and Happy Thanksgiving!
Monday, 11/19, Marc had to return to work. Mari continues to be confined in the hospital with Silas. Marc and Mari continue to establish some sense of routine in spite of all their challenges. 
They are so appreciative of the continuous outpouring of love and support. The meals provided by friends and family are making a direct impact on their daily lives. The meals are allowing Marc to go directly to the hospital after work and spend the rest of his day with Mari and Silas, omitting time to make a meal for Mari and himself.  The carecalendar.org   is a web based system to organize meals for them.  You may sign up to deliver dinner or arrange to have dinner delivered to them.  ID: 130414  SECURITY CODE: 3330

If you do not live in San Antonio it is still possible for you to take part in the carecalendar.org .  
EatOutIn  will deliver meals from local restaurants to the hospital. Key in the hospital zip code 78229 and all the participating restaurants will appear.  You can view the menu from participating restaurants to place an order, and for an additional small delivery fee, Marc and Mari can enjoy dinner together in the hospital. 
Silas is admitted to Methodist Children's Hospital.  7700 Floyd Curl Drive San Antonio, Texas 78229 210-575-7000 .  
They are on the 4th floor in the Oncology unit.  If you are delivering a meal personally, please stop at the nurse's station.
Silas has completed his first phase of chemotherapy but will stay in the hospital through his second phase. We are still not sure when he will be able go home.
Thanks to everyone, again, for your help with Marc and Mari's CareCalendar.
Warmly,
Grace Blaylock

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11/15/2012
by Grace Blaylock

11/15/02 

Day 10 of Chemo

Silas finished the last day of his first phase of chemo (Induction I). Yay!  He did great up until today…he wasn’t feeling the best.  He was fussy most of the day because he was feeling nauseous but he was given some medication and by the end of the day (when he needed to go to sleep) he perked up and wanted to play.  Now it’s the waiting game. He will remain in the hospital because he is immunocompromised so they can keep a close eye on him.  His next phase of chemo will start as early as the beginning of December depending on how quickly his blood counts work their way back up…they will get lower before they get better.  Depending on how quickly his blood counts get back to a safe level we may even get to go home for a little bit.

Marcus and I will continue to say this forever and ever but thank you, THANK you, THANK YOU to everyone.

~Mari (Silas’ mama)


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11/07/2012
by Grace Blaylock
November 5, 2012
Mommy got a flu shot today.  Daddy already had one.  The Dr. recommended that anyone who comes in contact with Silas have one.  
Silas is doing well.  He's healing from surgery he had Saturday to insert a portacath.  His first chemo treatment has been delayed a day so we're all a little anxious.  However, this will give him a little more time to heal.  
He spent his day playing with his tio Vince, tia Talia, granddad, and both his grandmothers.  When he got a little irritable and fussy the bubbles from his Auntie Alina really helped cheer him up.  
During his surgery Saturday Silas did receive a small dose of chemo and he's experiencing some side effects of fever and nasea.  It's so very important for his diapers to be changed frequently.  He cannot be left in a wet diaper for any length of time because chemotherapy causes his skin to be more sensitive and there is chemotherapy in urine.  Diaper changes have become a 2 person operation.  Both have to wear gloves.  The soiled diaper goes into a special bag then it's weighed and recorded.  The wipes and diaper and gloves have to be disposed of in a biohazard container.  
Mommy and daddy are in Silas' room almost all the time.  Tonight they got to leave for 30 minutes to take a little walk  in "Zoe's prayer garden" that's part of the hospital.  Grandma Grace got to babysit. Sometimes we just need a little outside air. 
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11/06/2012
by Grace Blaylock
Monday, Nov. 5, 2012
Silas had a good day.  He was not able to begin chemotherapy which allowed him to recover a little more from his surgery Saturday.  He's feeling much less sore and was taking a bottle regularly.  He got to visit with family and played peek-a-boo and listen to music.  He even laughed a little.  It's so much easier for meds to be administered through the port and for blood draws.  No more pokes!!
Because he did receive a small dose of chemo during his surgery Saturday, changing his diaper is a 2 person job.  We cannot allow him to be in a wet diaper for any amount of time.  We have to use gloves, place his soiled diaper in a special bag to be weighed, then place the wipes in another special bag which goes in a bin for special disposal.  During the night Marc and Mari have to get up every 2 hours to change him to prevent  chemicals in his system from affecting his skin.  
When he did get a little fussy it was bubbles from his Auntie Alina that distracted him.  We'll have to make sure we always have some on hand!  



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11/07/2012
by Grace Blaylock
November 6, 2012
Silas is ready for his first chemotherapy treatment.  We've all be coached on what to expect during the treatment.  Silas will not feel anything or suffer during the treatment itself.  As a matter of fact we're told he may not experience significant signs of side effects for a day or two. 
Tio Vince spends the morning wiping down everything in the room with antibacterial wipes.  Abuelita Anna wears a mask for precautionary purpose.  
To Marc and Mari's delight, lunch arrives with a visit from Debbie.  What a relief not to have to leave their baby all day because of the support of friends and family!  
Silas' white blood cell count is rock bottom.  White blood cells are responsible for protecting the body from infections.  The medical staff advises Marc and Mari to remove any plush toys from the room.  Also any toys made from cloth material, wood and any toys that may be porous which can harbor bacteria.  All visiting family members are required to have their flu shot.  Visitors are also limited.or discouraged. No such thing as too many precautions for Silas.
Grandma Grace did not feel comfortable visiting this morning since her voice was hoarse due to allergies.  She did come later in the evening and wore a mask, but refrained from holding Silas.  How difficult that was!  
Silas is displaying symptoms of fever and irritablility and receives regular doses of tylonol.  Grandma brought his squeeky plastic giraffe and we get a giggle from him.  From now on, it'll take some creative planning to distract him with toys, and music and funny dances from daddy. 
Thank you, God, for giving Silas such a talented and caring medical team.




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11/07/2012
by Grace Blaylock
November 5, 2012
Mommy got a flu shot today.  Daddy already had one.  The Dr. recommended that anyone who comes in contact with Silas have one.  
Silas is doing well.  He's healing from surgery he had Saturday to insert a portacath.  His first chemo treatment has been delayed a day so we're all a little anxious.  However, this will give him a little more time to heal.  
He spent his day playing with his tio Vince, tia Talia, granddad, and both his grandmothers.  When he got a little irritable and fussy the bubbles from his Auntie Alina really helped cheer him up.  
During his surgery Saturday Silas did receive a small dose of chemo and he's experiencing some side effects of fever and nasea.  It's so very important for his diapers to be changed frequently.  He cannot be left in a wet diaper for any length of time because chemotherapy causes his skin to be more sensitive and there is chemotherapy in urine.  Diaper changes have become a 2 person operation.  Both have to wear gloves.  The soiled diaper goes into a special bag then it's weighed and recorded.  The wipes and diaper and gloves have to be disposed of in a biohazard container.  
Mommy and daddy are in Silas' room almost all the time.  Tonight they got to leave for 30 minutes to take a little walk  in "Zoe's prayer garden" that's part of the hospital.  Grandma Grace got to babysit. Sometimes we just need a little outside air. 
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11/14/2012
by Grace Blaylock
Here are some other sites of interest regarding Silas:

"Like" Silas on Facebook
Here's a site featuring more information about his mom and dad, upcoming benefits, and more photos and videos.  Just click HERE

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11/11/2012
by Grace Blaylock
We are grateful and humbled by the overwhelming response from everyone.  Two weeks ago our lives were forever changed and as we focus on our son's fight against leukemia we can rest easy that our family and friends are looking our for us.  We are thankful for so many things in our life, and we have been reminded everyday how thankful we are that we know such giving and generous people.  The support you have given has taken away many of our worries so we can concentrate on caring for our son.   

Silas is half way through his first round of chemo and he remains the happy, laughing, active, little boy we love.  I know it is just the beginning of his fight but his sweet spirit is amazing.

Thank you from Silas' mom,
~Mari


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11/09/2012
by Grace Blaylock
The last 24 hrs have been good for Silas.  He woke up with a smile today, and has worn it off and on for most of the morning, which makes his mom and dad smile as well!  His bloodwork for this morning shows all cultures have been negative, so no active infection, and his labwork is stable, so he won't be needing any blood products today either, only the chemo and antibiotics (to prevent an infection, not to treat one).  Results also came in yesterday for the genetic testing, which is done to determine how Silas will likely respond to chemo, and helps determine the risk of a reoccurence of the cancer after chemotherapy.  A positive test would indicate a more agressive cancer, and Silas's tests were negative, so all the family is happy to hear this news.
Thank you all for your ongoing support and prayers, and we'll keep the updates coming!
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11/07/2012
by Grace Blaylock
November 6, 2012
Silas is ready for his first chemotherapy treatment.  We've all been coached on what to expect during the treatment.  Silas will not feel anything or suffer during the treatment itself.  As a matter of fact we're told he may not experience significant signs of side effects for a day or two. 
Tio Vince spends the morning wiping down everything in the room with antibacterial wipes.  Abuelita Anna wears a mask for precautionary purpose.  
To Marc and Mari's delight, lunch arrives with a visit from Debbie.  What a relief not to have to leave their baby all day because of the support of friends and family!  
Silas' white blood cell count is rock bottom.  White blood cells are responsible for protecting the body from infections.  The medical staff advises Marc and Mari to remove any plush toys from the room.  Also any toys made from cloth material, wood and any toys that may be porous which can harbor bacteria.  All visiting family members are required to have their flu shot.  Visitors are also limited.or discouraged. No such thing as too many precautions for Silas. 
Grandma Grace did not feel comfortable visiting this morning since her voice was hoarse due to allergies.  She did come later in the evening and wore a mask, but refrained from holding Silas.  How difficult that was!  
Silas is displaying symptoms of fever and irritablility and receives regular doses of tylonol.  Grandma brought his squeeky plastic giraffe and we get a giggle from him.  From now on, it'll take some creative planning to distract him with toys, and music and funny dances from daddy. 
Thank you, God, for giving Silas such a talented and caring medical team.


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by Grace Blaylock

We know you love Silas; that's why you are on this site.  So, Marc and Mari would hate for you to make a visit to the hospital or their home when Silas is between rounds of chemotherapy and have to ask you to leave... Silas continues to have amazingly high spirits throughout his treatment, so it's tempting to get complacent and carry on as if it were business as usual.  But, it's not business as usual.

If you have or have had a fever, sore throat, cough, diarrhea, cold, recent vaccination, and/or are feeling sick, or even suffer from allergies, please avoid visiting.  

The chemotherapy Silas receives makes him very susceptible to infections that children with normal functioning immune systems could fend off.  In Silas’ case, it could be fatal. 

Neutrophils are key components in the system of defense against infection and Silas’ are monitored everyday after a treatment.
 

Risk of Infection based on Absolute Neutrophil Count (ANC)

ANC greater than 1.5

ANC 1.-1.5

ANC .5-1.0

ANC .1-.5

ANC less than .1

 

No increased risk of infection 

Slight increased risk of infection

 Moderate increase in risk of infection

High risk of infection

 Extremely high risk of infection

Throughout Silas's first round of chemotherapy, his ANC has been below .5 and some days less than .1  

Mari’s and Marc’s hands are parched and dry from all the hand washing and hand sanitizer.  They are doing at least two loads of personal laundry a day because of constant changes. This does NOT include hospital linens, blankets, towels and Silas‘ gowns.  This is all to maintain an environment as sterile as possible for Silas.   

If you are considering making a visit, please speak with Marc and Mari first. 

ALWAYS STOP AT THE NURSES STATION BEFORE ENTERING SILAS’ ROOM.

Thanks, for understanding.

 

 

 

 

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