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Ryleigh Brannon Medical Expense Fundraiser

$2168raised of $12000 goal
18%

Organizer: Amanda Brannon Beneficiary: Ryleigh Brannon

We are setting up this fundraiser for our beautiful baby girl, Ryleigh. Ryleigh was born six weeks premature in August of 2011 and spent over two weeks in the NICU before she could come home. As...

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We are setting up this fundraiser for our beautiful baby girl, Ryleigh. Ryleigh was born six weeks premature in August of 2011 and spent over two weeks in the NICU before she could come home. As parents we were thrilled to be bringing home our precious miracle. However, we never imagined her premature birth would be the easiest obstacle her little life would encounter. Ryleigh’s first few weeks at home seemed normal and despite her lack of growth we thought everything was alright. We quickly realized that her lack of weight gain/minimal weight gain was not normal and expressed our concern to her pediatrician. In late fall 2011 Ryleigh was sent to a cardiologist who diagnosed her with an ASD (Atrial Septal Defect) also known as a hole in the heart. We were not overly concerned because a majority of ASD’s close without surgical interference. A couple of months passed and it was January of 2012. Ryleigh became very sick and was hospitalized with RSV (respiratory syncytial virus) and bronchitis. During her hospitalization we meet her Gastroenterologist who ordered an upper GI study. The study revealed Ryleigh had an aberrant right Subclavian artery that had already caused a notch on her esophagus. We were shocked by the finding but that still did not explain why Ryleigh was so small. After a week stay in the hospital we got to bring her home. That is when Ryleigh’s medical situation took a turn for the worst and her story of her fight for survival truly begins. Before we knew it February 2012 had arrived and Ryleigh still had failure to thrive. The two specialists treating Ryleigh thought she needed immediate care and admitted her to Vanderbilt Hospital. This hospitalization was agonizing because Ryleigh was miserable throughout various procedures. After her weeklong stay we left with further diagnoses, no change in her current medical status, and a heart monitor. The team of doctors at Vanderbilt diagnosed Ryleigh with Laryngomalacia (moderate to severe), apnea, and bradycardia. Little did we know that we would have our hearts broken weeks later when results from a genetic blood test finally came back. The results of the blood test revealed Ryleigh had a Chromosome 7p defect and was the first to be diagnosed with this particular spanning number. We never felt more helpless than that very moment as we sat in the doctor’s office with tears streaming down our faces. Her geneticist could give us very little answers at the time and ordered MRI’s for Ryleigh. The MRI’s arrived a few weeks later and at this point we thought we had become emotionally stabilized with Ryleigh’s medical condition. We were very wrong. The MRI’s revealed Ryleigh had thinning of the corpus callosum, a tethered spinal cord caused by a fatty tumor, and Syringomyelia (Three fluid filled cysts in her spinal cord). The neurosurgeon explained that based on Ryleigh’s current status that the surgery to correct the spinal issues would do no good because he did not see her quality of life improving therefore we would better serve our efforts by focusing on maintaining her current quality of life. We cannot begin to explain the flood of emotions that overcame us and how difficult the days following were for our family to get through. Now to get to July 2012, Ryleigh was evaluated by a new geneticist who specializes in craniofacial defects and syndrome identification. The geneticist sent Ryleigh for blood test to confirm his suspicions of Russell Silver Syndrome. The test could take weeks to come back but we are hoping for a firm answer sooner than later. Ryleigh will be eleven months old mid-July and still weighs under eleven pounds and just over 24 inches long. We hope that Ryleigh’s story touches your heart and that you find her cause worthy for your donation. We truly appreciate you reading about our miracle baby girl. Donations will be used to cover medical cost not covered by insurance and thank you again for your generosity. Sincerely, The Brannon Family
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Updates

10/08/2012
by Amanda Brannon
We want to thank everyone who contributed to Ryleigh's fundraiser. We are also appreciative to those who helped promote her fundraiser. We could not have done it without you! We also want to give a special thank you to everyone at YouCaring for making Ryleigh's fundraiser possible and helping so many other families on your site! It is amazing! 

We know we did not reach our goal but we did gain the support of so many others who want to see our baby girl live the best life possible! We wanted to share that Ryleigh has a page on Facebook at Facebook.com/supportryleigh. We update on a regular basis so please stop by and check on her! We actually uploaded her first video yesterday! 

We are so appreciative of everything done for Ryleigh


07/17/2012
by Amanda Brannon
We want to start by giving everyone a huge Thank You!

We are astonished with the amount of love and support for our baby girl Ryleigh. The word speechless comes to mind when thinking about the generosity shown by such kindhearted individuals. In the past few days we have witnessed the extraordinary passion that others share with us when it comes to taking care of Ryleigh. We never imagined such a blessing was possible. We will continue to be grateful for what has been done for our family.

We also want to say thank you for those who despite not being able to donate gave the gift of kind words and supported our baby girl by promoting her fundraiser. Even though we haven't reached our goal we still feel Ryleigh's fundraiser has been successful. Again, we say thank you for everything.

The Brannon Family

Supporters

Landon & Mommy
donated$10.00
Wednesday, October 03, 2012


Michelle & Ryan
donatedHidden Amount
Wednesday, September 19, 2012


Khsp221 from BBC
donated$5.00
Saturday, September 08, 2012

Will donate more when I can; hugs to the Brannon family!


BBC Mama
donated$5.00
Friday, September 07, 2012

Keep this alive ladies, it's such a worthy cause!


Innasense
donated$10.00
Friday, September 07, 2012

Let's keep this fundraiser going!


Jami & Gracelyn
donated$10.00
Friday, September 07, 2012


lb
donated$10.00
Monday, September 03, 2012

From one mama to another <3


Anonymous
donatedHidden Amount
Tuesday, August 28, 2012


Anonymous
donated$5.00
Sunday, August 26, 2012

“… fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.” ~ Isaiah 41:10 “When it is dark enough, you can see the stars.” ~ Ralph Waldo Emerson


Sara and Jazzy (Innasense)
donated$30.00
Friday, August 24, 2012

You inspire us to live our lives to the fullest. Keep on smiling Ryleigh!


Sarah Honeysett
donated$5.00
Thursday, August 23, 2012


Nicole & Landon
donated$5.00
Thursday, August 23, 2012


cowgirl_3298
donated$5.00
Thursday, August 23, 2012

Every little bit helps!!


Anonymous
donated$5.00
Thursday, August 23, 2012


Patrick & Rhonda Splear
donatedHidden Amount
Sunday, August 05, 2012


Mariah Ervin & family
donated$20.00
Thursday, August 02, 2012


Baby Landon
donated$10.00
Tuesday, July 31, 2012

Keep the fundraiser a I've!


Anonymous
donatedHidden Amount
Monday, July 30, 2012


Anonymous
donatedHidden Amount
Monday, July 23, 2012

From a fellow August 2011 Momma! Love to you all, especially sweet baby Ryleigh


Jami, Gracelyn & Family
donated$20.00
Monday, July 23, 2012

Ryleigh is always in our thoughts.


Sebastian
donated$20.00
Saturday, July 21, 2012


Anonymous
donated$20.00
Wednesday, July 18, 2012


Anonymous
donated$5.00
Wednesday, July 18, 2012

Fellow Aug bbc mama. Prayers to your family.


Dyse from BBC
donated$45.00
Wednesday, July 18, 2012

Your strength is amazing. I love your posts on BBC, while I am a lurker, I always see your kindness in your posts/reponses.


Tim and Jamie Tyner
donated$100.00
Tuesday, July 17, 2012

Our daughter Mellissa passed this on to us from her baby center group. She has a special place in her heart for your family. We will pray for you all.


Anonymous
donatedHidden Amount
Monday, July 16, 2012

Keep on going!


Sara E.
donated$10.00
Monday, July 16, 2012

From a mother of the BBC August 2011 board here to show support. Hugs and prayers your way!


Violet
donated$10.00
Sunday, July 15, 2012

I, too, had a 6 week preemie. It really hit home with me. I can't do much, but I'm moved to do something!


Amy H.
donated$5.00
Sunday, July 15, 2012

I am a fellow august 2011 BBC mama and your story just breaks my heart. Sending prayers for your sweet baby girl.


August 2011 Momma
donatedHidden Amount
Sunday, July 15, 2012

Just trying to end the night off on an even note! Still praying for you all!


Anonymous
donated$20.00
Saturday, July 14, 2012

Aug 2011 mama here sending your family lots of positive thoughts and support.


Heather and Emily (a fellow August 2011 Mommy and Baby)
donated$10.00
Saturday, July 14, 2012

Hugs to sweet Ryleigh and her Mommy.


Terry Davis
donated$50.00
Friday, July 13, 2012

I pray for the day when these things don't happen to children....or anyone.


Jamie Lanier"s family
donated$200.00
Friday, July 13, 2012


The Eklund family
donatedHidden Amount
Friday, July 13, 2012

Giving in celebration of a year of being blessed with health and happiness for our little girl. Praying fior the same for Ryleigh and your family .


Michelle & Ryan
donatedHidden Amount
Friday, July 13, 2012

Happy upcoming 1st Birthday Ryleigh!


August Momma
donatedHidden Amount
Friday, July 13, 2012


Anonymous
donatedHidden Amount
Friday, July 13, 2012

You are always in our prayers.


Milan Maria
donated$25.00
Friday, July 13, 2012

Praying for you baby Ryleigh and your family. You are a very beautiful little girl. God bless you all.


Anonymous
donated$10.00
Thursday, July 12, 2012

August 2011 Mommas <3 you!


Tiffani and Alice
donatedHidden Amount
Thursday, July 12, 2012

<3 Fellow August 2011 Momma here. Lots of hugs!!


Anonymous
donatedHidden Amount
Thursday, July 12, 2012

She looks like a sweety - hang in there!


Anonymous
donated$50.00
Thursday, July 12, 2012

Best wishes from another August 2011 Momma!


Drkpriestess
donatedHidden Amount
Thursday, July 12, 2012

Following your story from day one on babycenter! My thoughts and prayers are with you all!


Davin
donated$50.00
Thursday, July 12, 2012


Lauren Frucci
donated$200.00
Thursday, July 12, 2012

We will be praying for you guys!


Remy (rlissa)
donated$25.00
Thursday, July 12, 2012

I am a fellow Aug 2011 mommy and have been following your story from the beginning, my heart breaks for you and your baby girl. As a mom of a son with a mito disorder, I know first hand how expensive and devastating it is to have a child with a chronic illness. I am praying for your little angel, you and your family!


The Harris Family
donatedHidden Amount
Thursday, July 12, 2012


An anonymous donor
donated$75.00
Thursday, July 12, 2012

From another August 2011 Momma! Hugs for baby Ryleigh.


Anonymous
donated$5.00
Thursday, July 12, 2012


MrsVekman aka Lisa Alvarado
donatedHidden Amount
Thursday, July 12, 2012

I wish we could do more.


Anonymous
donated$25.00
Thursday, July 12, 2012

God will care for you!


Karli and Stella (km5488)
donated$30.00
Thursday, July 12, 2012

I've been following sweet Ryleigh's story from our August 2011 Mommas group and will keep sending prayers her way!


Holly
donated$25.00
Thursday, July 12, 2012


Anonymous
donatedHidden Amount
Thursday, July 12, 2012

Praying for your family and beautiful little Ryleigh. I wish I could just wrap you up in hugs! -Rundiva from BBC


Nicole & Ryan
donated$20.00
Thursday, July 12, 2012

Fellow August 2011 Momma (colee7589). Give Ryleigh a big hug from us.


Anonymous
donated$5.00
Thursday, July 12, 2012


Anonymous
donatedHidden Amount
Thursday, July 12, 2012


Jessica Takacs
donated$10.00
Wednesday, July 11, 2012

Leofamily2011 from our BBC group. Hugs from Connor and I <3


Nicole Cummings
donated$10.00
Wednesday, July 11, 2012

Best of luck, you and Ryleigh are amazing, I'm going to spread the word about your page.


Tiffany and Blake !
donated$5.00
Wednesday, July 11, 2012

Your positive attitude on things is amazing !!


Anonymous
donated$20.00
Wednesday, July 11, 2012


Amanda and Nidalee
donated$5.00
Wednesday, July 11, 2012

Nidaleesmomma from our BBC group. I shared this to help you spread it. Hope you reach your goal! =)


A Fellow August 2011 mama
donatedHidden Amount
Wednesday, July 11, 2012

I don't have a lot to give but any little bit helps I think!


Nicole & Landon (nicoleelyse954)
donated$20.00
Wednesday, July 11, 2012

God bless you and Ryleigh. I'll donate when I can, I hope it helps!


Angie and Dawson
donated$25.00
Wednesday, July 11, 2012

WIshing the best for Ryleigh and your family. Continuing to pray for strength for all!


Anonymous
donated$20.00
Wednesday, July 11, 2012

Keep staying strong momma and baby Ryleigh <3


Anonymous
donatedHidden Amount
Wednesday, July 11, 2012


Anonymous
donated$25.00
Wednesday, July 11, 2012

Thoughts and prayers to you and your family - God bless baby Ryleigh!


Troysmomm
donatedHidden Amount
Wednesday, July 11, 2012

We love you!


Anonymous
donated$50.00
Wednesday, July 11, 2012

I am a fellow BBC momma that has been following Ryleigh's story. She is lucky to be a part of your family and have you fighting for her. Stay strong and I hope you get some answers!


Anonymous
donated$25.00
Wednesday, July 11, 2012

I heard your daughter's story through BBC. My thoughts and prayers are with your baby and family.


Kelly Perrin
donated$20.00
Wednesday, July 11, 2012

Good luck to Ryleigh and her loving family.


Gillian R
donated$50.00
Wednesday, July 11, 2012

We all love the Brannons!


Anonymous
donated$10.00
Wednesday, July 11, 2012

August 2011 Mommas <3 you!


Jennifer Harris
donated$5.00
Tuesday, July 10, 2012

Been following Ryleigh's story via BBC board and wishing you the best.


Katie Fogle
donated$20.00
Tuesday, July 10, 2012

So glad you decided to do this momabrannon! Good luck!

Comments

Jordan Cassady
You and your family are in my prayers... Glad Rileigh loved the head band...
Cheryl
I have contributions to give you from people that don't like to do things online. We'll keep working towards the target!
Lisa
I'm touched by your story and hope and pray your little girl will get the help she needs. My little girl's name is Rily so this is especially close to my heart. The girls could pass for sisters they look alike.
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