Rory's Chiari Surgery

$1,915raised of $5,000 goal

Beneficiary: Rory Milligan Organizer: Krista Milligan

This fundraiser is closed
Rory is a 15-year-old high school freshman &  my daughter.  She has suffered from headaches, dizziness, & balance problems since she was a little girl & was diagnosed with Chiari Malformation 2 years ago.  Chiari Malformation occurs when the cerebellum (the part of the brain at the bottom of the skull) is herniated through the foramen magnum (opening at the bottom of the skull through which the spinal cord passes to join the brain) into the spinal canal.  These cerebellar tonsils (named for their shape) cause compression of brain tissue & disruption of cerebrospinal fluid, which leads to the symptoms that Rory suffers from.  Since her diagnosis, we have tried every treatment short of surgery that we could find - dietary supplements, herbal supplements, change in diet, intensive physical therapy, pain medications, & anti-seizure medications.  Nothing has helped :-(  Rory has had to give up several sports & other activities that make her symptoms worse & has started missing more & more school since the headaches have started affecting her day-to-day life.  We finally have the opportunity to see a doctor at one of the few Chiari Centers in the United States, but we have to travel from Montana to New York in order to do so.   She'll have several pre-surgery appointments & she will be in the hospital for 4 or 5 days.  All in all I am planning to be in New York for at least 2 weeks.  The expenses are going to be more than my single-mom teacher's income can absorb.  I don't want anybody to donate more than they can afford, but every little bit will help
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