Rae is a very active member on our board, with a little marchie named Ronan. Most of us know their story, but here is a little background for those who don't.
Ronan was recently diagnosed with CGD officially by the Mayo Clinic. (read more about CGD here http://www.cgdsociety.org/)
He started having symptoms and surgeries when he was only a few months old. Rae has been fighting for him to get a diagnosis, and their family has been through a lot. Lots of testing, lots of surgery, lots of doctor visits. And that means lots of expenses. They have had to travel far to specialists, and stay for days waiting for tests to be done. They are considering an expensive bone marrow transplant that could make a huge difference. This is where we come in!
If you have ANYTHING to spare, please help. No amount is too little. With all of us pitching in, hopefully we can ease their burden a bit and they can worry about Ronan and keeping him healthy, rather than their growing medical bills and travel expenses.
here are links to Ronan's backstory on BBC.